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Comments (417)
@alandy233 & re: Jeff. I also have PMR/GCA. My rheumatologist put me on 60 mg of...
I also have PMR/GCA. ... My vision is good. ... didn’t care about side effects or GCA ... better than the pain and not having vision ... them that you have a diagnosis of GCA
Posted: Jan 13 5:55pm
@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
6 weeks after I was diagnosed with GCA ... in gca? ... in Giant Cell Arteritis (GCA) by acting ... patients with glucocorticoid-resistant GCA ... from GCA.
Posted: Jan 12 5:41pm
@pah17 Yes, I had one on the second day I was in the hospital for temporary...
was in the hospital for temporary vision ... doctors started me on treatment for GCA ... before they did the biopsy, because the vision ... My vision turned out ok.
Posted: Feb 19 4:35am
@mark2471 Your list of GCA symptoms is good. I had fatigue in my jaw muscles while...
@mark2471 Your list of GCA symptoms ... cheekbones, and scalp tenderness, plus vision
Discussion: Newly diagnosed
Posted: Jan 22 6:37pm
@susanlf I'm glad you're seeing an ophthalmologist soon. He or she can check your eyes for...
your eyes for any damage from the GCA ... After I was diagnosed with GCA and PMR ... months to monitor for problems from the GCA ... episodes (a few seconds each) of near vision ... I hope you don't have GCA.
Discussion: Possible GCA
Posted: Jan 22 2:30pm
@alandy233 I think that you're correct about your previous doses of prednisone being too low to...
prednisone being too low to control the GCA ... prednisone during that time to control the GCA ... With your vision problems, you might ... If your GCA is mainly caused by IL-6 ... But if your GCA is caused by IL-6 plus
Posted: Jan 13 3:14am
@tsc Thank you for checking in and sharing. To be honest and this is just my...
experience my Doctor has in dealing with Vision ... have a feeling I may be his first GCA ... w/ associated Vision Loss patient.
Posted: Jan 13 6:10pm
@johnbishop I agree from reading up on GCA it sounds like that is happening to her...
johnbishop I agree from reading up on GCA ... new to PMR but have read up about GCA ... and scalp tenderness with blurred vision
@jeff97 So glad your vision is ok, after your scares. My diagnoses came within a week...
@jeff97 So glad your vision is ok, ... week of each other--PMR & then GCA ... barely walk) & confided about the GCA ... about it and, thankfully it mentioned GCA
@betsyhase I took 1000 mg of methyl-prednisolone a day for 3 days to save my vision...
methyl-prednisolone a day for 3 days to save my vision ... from GCA, followed by 6 weeks of 60 ... 80 a day if I needed to to save my vision
@julieahp I was diagnosed with GCA in July 2025, a few months after I had spine...
@julieahp I was diagnosed with GCA in ... Following that I experienced blurred vision ... ran tests and surmized that I had GCA
@peaceprevail7 I had PMR for several months before developing GCA. The PMR was primarily stiffness in...
for several months before developing GCA ... For GCA, I had low grade fever, night ... eventually an episode of temporary partial vision ... the emergency room for the loss of vision ... started treatment then and it saved my vision
Yes. Promptly responded to 20 mg of prednisone within 6 hours. ESR, CRP, all rheumatic disease...
, bike ride, and have not suffered vision ... temporal arteritis) can cause permanent vision ... didn’t prevent me from developing GCA
Discussion: Newly diagnosed
Posted: Jan 22 11:01am
@alandy233, how way your diagnosis of GCA reached? Did you have a temporal artery biopsy? I...
alandy233, how way your diagnosis of GCA ... diagnosed, but I didn't have any vision ... loss from GCA. ... current doctors have had in treating GCA
Posted: Jan 13 12:28pm
@mwhite6262 I would do my best to get off the pred as soon as your body...
the 40mg should help it if it's gca ... eyes, you need to get to an er, as gca ... can make you lose your vision.
@tuckerp You are right that prednisone can have a lot of side effects, and some of...
started taking prednisone to treat GCA ... Prednisone saved my life and my vision ... bit while I had untreated PMR and GCA ... prednisone (besides it saving my life and vision ... for prednisone that helps PMR and GCA
Discussion: Newly diagnosed
Posted: Jan 30 8:02am