Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
303 total results
Comments (287)
My husband was given 5 IVIG treatments and although he had no reactions from them after...
My husband was given 5 IVIG treatments ... reactions from them after the fifth treatment ... diagnosis is wrong, he does not have CIDP
Welcome Toolman 53! I too have had a combination of GBS and CIDP although my timeline...
have had a combination of GBS and CIDP ... in the hospital and now I feel the CIDP ... Once you’re established there and treatment ... you should be able to continue your treatments ... significant progress with whatever treatment
Support Group: Neuropathy
Posted: Nov 9, 2024
I made a post about it months ago after my neurologist brought it up to me....
news-events-human-drugs/fda-approves-treatment-chronic-inflammatory-demyelinating-polyneuropathy-cidp-adults
Support Group: Autoimmune Diseases
Posted: Sep 17, 2024
@cyp238ress I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves...
surgery until you try other non-surgical treatments ... 8 years trying to get answers and treatment ... If CIDP is a possibility, you may need
Support Group: Spine Health
Posted: Jul 24, 2024
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
opportunity and insight into how the treatments ... many different symptoms, causes and treatments ... There are some discussions on CIDP along ... #39;s a link to the discussions on CIDP ... search=CIDP.
Support Group: Neuropathy
Posted: Jun 8, 2024
Hi I was just diagnosed with CIDP after 7 years of bizarre symptoms and neuropathy. I...
Hi I was just diagnosed with CIDP after ... Can this be related to my CIDP? ... Starting IVIG treatment next week, hoping
That’s a good question because I still don’t completely understand what I’ve been told (or not...
Pre CIDP diagnosis, I had neuropathy ... to a Neurologist, who gave me the CIDP ... I was supposed to get 3 IVIG treatments ... During treatment I started progressively ... I then received Plasma Apheresis treatments
Support Group: Autoimmune Diseases
Posted: Jul 10, 2019
@sherlock, I see that you have met some of the members in the Anyone here dealing...
but have started one specifically on CIDP ... discussion as they have all mentioned CIDP ... invite @angelarisstrom, who had IVIG treatments ... syndrome which is closely related to CIDP
Support Group: Autoimmune Diseases
Posted: Jan 6, 2019
Most neurologists treat small fiber neuropathy with drugs like cymbalta, lyrica, neurontin,etc. Since I have CIDP,...
Since I have CIDP, the first treatment ... insurances don't want to pay for this treatment ... to do the paperwork to justify IVIG treatment
Support Group: Neuropathy
Posted: Nov 29, 2018
Hi Tab, welcome to Connect. I'd like to introduce you to a few other members who...
other members who are talking about CIDP ... discussion – Anyone been diagnosed with CIDP ... care team take to monitor you after treatment
In 2008, I started with episodes of feeling like passing out. Then symptoms went away. Month...
I have a dual diagnosis of CMT and CIDP ... Got started on my IVIG treatments 2 ... balance are what gets bad before my treatments
Support Group: Autoimmune Diseases
Posted: Oct 24, 2020
I am new to this site- I was officially dx with Igm-CIDP/MGUS July 2019 by Mayo...
site- I was officially dx with Igm-CIDP ... I was first dx with CMT/CIDP after starting ... recommendation was to continue the IVIG treatments ... August 2020 and I now have my IVIG treatments ... I read that CIDP has association with
Support Group: Autoimmune Diseases
Posted: Oct 23, 2020