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274 total results
Comments (260)
Hi, I have a neuromuscular doctor. I had nerve conduction studies. All four extremities were tested...
https://connect.mayoclinic.org/comment/1020856/
the one who asked me if I’d heard of CIDP ... symptom” that needs a dx to get proper treatment ... Is or can CIDP (poly radiculopathy)
I am headed for my 5th month of ivig treatments. Balance is better, muscles relaxed, small...
https://connect.mayoclinic.org/comment/1014991/
am headed for my 5th month of ivig treatments ... repair nerve seems quicker then large CIDP
Since I was diagnosed with sfpn or CIDP, I've seen neurologists, pain specialists, a pain therapist...
https://connect.mayoclinic.org/comment/966206/
Since I was diagnosed with sfpn or CIDP ... of them has exhausted their list of treatment
I had an Abbott spinal cord stimulator implant in 1971, and the first year was wonderful!...
https://connect.mayoclinic.org/comment/904914/
Other treatments are Prednisone to slow ... the progress of CIDP, Cymbalta, Topamax
I have a variant of CIDP and was getting IVIG infusions. They seemed to slow the...
https://connect.mayoclinic.org/comment/893033/
I have a variant of CIDP and was getting ... standards and I no longer qualify for the treatments ... New treatments...symptom management?
I have always expected and hoped not to live past 80. Now that I am 78...
https://connect.mayoclinic.org/comment/871191/
am 78 almost 79 and suffering with CIDP ... to another state for sorely needed treatment
After 12 years of chasing the root cause of my symptoms, I was finally diagnosed with...
https://connect.mayoclinic.org/comment/859788/
symptoms, I was finally diagnosed with CIDP ... I am SO EXCITED to see there are treatments
Welcome @sunflowergirl050710, It's difficult not to worry about a treatment when you are not sure of...
https://connect.mayoclinic.org/comment/854530/
#39;s difficult not to worry about a treatment ... /connect.mayoclinic.org/discussion/cidp-having-ivig-reactions ... neuropathy symptoms you have or other treatments
Mitchsfm@mitchsfm Hello Mitch So sorry to hear you are having difficulties with Medicare approval for IgG...
https://connect.mayoclinic.org/comment/831512/
approval for IgG infusion therapy for CIDP ... I was diagnosed with CIDP in 2021
and ... definitive test for the diagnosis of CIDP ... one test that will say yes you have CIDP ... infusions also charge around $16,000 per treatment
@kim1234: iv/ig has helped to keep my disease relatively stable. I get two infusions every three...
https://connect.mayoclinic.org/comment/806297/
including standard Medicare, do cover treatments ... years ago and that is when I started treatment ... One of the treatments I received was ... immunotherapy and I believe caused the CIDP ... just aren't equipped to deal with CIDP
Hello Glenn @cgrogers, Welcome to Connect. You will find members talking about CIDP in the Autoimmune...
https://connect.mayoclinic.org/comment/786104/
You will find members talking about CIDP ... /
-- CIDP and concerns about treatment ... CIDP? ... What is your CIDP story? ... Are you getting treatment currently?
Upcoming webinar of interest... Foundation for Peripheral Neuropathy Webinar: Hereditary Neuropathy & Genetic Testing Thu, Oct...
https://connect.mayoclinic.org/comment/749431/
lead patients down the right path for treatment ... inflammatory demyelinating polyneuropathy (CIDP
Hi Lori, thanks very much for your message! Being at Mayo was very encouraging. After my...
https://connect.mayoclinic.org/comment/746600/
I'm also dealing with a CIDP diagnosis ... testing and is wanting me to start IVIG treatment ... #39;m working towards starting the treatment
My husband ( 71 yrs.) is no where near as ill as you poor souls are...
https://connect.mayoclinic.org/comment/744160/
Inflamatory Demyelinating Polyneuropathy (CIDP ... Perhaps his treatment might help you
Has anyone here seen Mayo for CIDP treatment? My dad who is 74 has been receiving...
https://connect.mayoclinic.org/comment/739280/
Has anyone here seen Mayo for CIDP treatment ... who is 74 has been receiving IVIG treatments
I had the Moderna vaccine as well and developed similar symptoms. It took almost one year...
https://connect.mayoclinic.org/comment/702758/
and I finally have a diagnosis of CIDP ... satisfied with your diagnosis and treatment
Hi @tonyinaus, Welcome to Connect. Since new members are not able to post links for a...
https://connect.mayoclinic.org/comment/645752/
thought I would share the link GBS/CIDP ... Foundation for you - https://www.gbs-cidp.org ... mind sharing a little more about your treatment
Yes I am able to be with him some of the time. They are taking him...
https://connect.mayoclinic.org/comment/614111/
Mayo clinic would do any different treatment ... They have him on steroids for the CIDP
I have cidp. For 10 years it got progressively worse until I could not even button...
https://connect.mayoclinic.org/comment/591398/
I have cidp. ... it may reverse my progress with my treatment
Hand, I get an infusion of Reclast once a year. I've had four infusions so far...
https://connect.mayoclinic.org/comment/99628/
over 13 months to be diagnosed with CIDP ... have found neurologist with a good treatment
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