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984 total results
Comments (955)
"Prednisone is incredibly effective in reining in inflammation but can also quickly and sometimes dramatically raise...
high doses of prednisone daily for PMR ... and blood pressure skyrocketed after PMR ... were being monitored because I was on Actemra
The way I understand it is the following: Only after 10 mg do you need to...
anywhere near 10 mg for ten years after PMR ... There were other factors so not just PMR ... What worked for me after Actemra was ... stayed on 3 mg of prednisone. while Actemra ... prevented a PMR flare.
How long were you taking prednisone? Some people have resilient adrenals. My adrenals weren't so resilient...
I needed the assistance from Actemra ... I just kept telling myself, PMR inflammation ... was being controlled with Actemra. ... think I would have a major flare of PMR ... ;t have a flare of PMR when I stopped
Yes ... you are right. The pain is hard to fight and it made me do...
rheumatologist wanted me to try it again after PMR ... When Actemra got me off prednisone entirely ... Now I just do a monthly infusion of Actemra ... There is no rule that says PMR and inflammatory ... It doesn't need to be PMR only or
Discussion: PMR target areas
Posted: May 13, 2024
In reply to @jabrown0407 "When I received my first PMR diagnosis I refused steroids long term...
jabrown0407 "When I received my first PMR ... happy with what I've seen re: Actemra ... if just untreated inflammation from PMR
Posted: Apr 14, 2024
@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...
lowest it's been since he got PMR ... I feel the Actemra is helping him and ... stress headaches (even though he had PMR
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
I'm doing monthly infusions of Actemra ... (tocilizumab) for refractory PMR. ... Actemra is FDA approved for GCA but ... Kevzara is FDA approved for PMR. ... cytokine implicated in both GCA and PMR
Posted: Apr 6, 2024
Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...
prednisone which was being used to treat PMR ... Actemra was FDA approved for GCA at ... the time but not FDA approved for PMR ... ;should work" for PMR but he didn ... were "looking promising" for PMR
Posted: Mar 13, 2024
@pb50 I'm curious about how you use prednisone for flares of RA. I used prednisone for...
A PMR diagnosis was a late addition ... I blamed PMR on a lack of Prednisone ... other times I blamed Prednisone for PMR ... After PMR was diagnosed, a rheumatologist ... prednisone daily for 12 years until Actemra
Discussion: Rheumatoid Drs
Posted: Mar 9, 2024
I used to think the 10% rule made a difference. That was before an endocrinologist told...
aspect of this is whether or not the PMR ... I was pretty sure Actemra had that part ... Actemra allowed me to taper quickly
Posted: Mar 3, 2024
I was told the same about taking more than one biologic --- no can do! Inflixamab,...
t been shown to be efficacious for PMR ... ophthalmologist insisted on stopping Actemra ... I was reluctant to stop Actemra because ... it worked so well for PMR. ... Humira wasn't working well for PMR
@krueg and @julie4868 Being on Actemra infusions for 17 and 14 months respectively seems like a...
Actemra won't work for everyone. ... I haven't had any flares of PMR ... while on Actemra. ... sparing effects" for people with PMR ... enough but taking three medications for PMR
Posted: Feb 26, 2024
Just so you know ... I was on prednisone for 12 years for PMR. Prednisone suppressed...
was on prednisone for 12 years for PMR ... Both PMR flares and adrenal insufficiency ... prednisone because a biologic called Actemra ... to get off prednisone while taking Actemra ... Actemra doesn't suppress adrenal
Discussion: Post prednisone
Posted: Feb 25, 2024
Hi @bitsygirl, I don’t think I would start using steroids if you can manage without them....
I was diagnosed with PMR in March 2022 ... I am hoping to try Actemera as soon ... helpful to you and good luck with your PMR
Posted: Feb 10, 2024
I think much was learned from people in the past who had RA and were treated...
treatment options for people with PMR ... taking prednisone and waiting until PMR ... PMR seems exactly like what I was told ... work for me and for now at least, Actemra ... Either that, or many people with PMR
Posted: Feb 6, 2024
Reactive arthritis was diagnosed 20 years before PMR was diagnosed. The main reason PMR was diagnosed...
arthritis was diagnosed 20 years before PMR ... The main reason PMR was diagnosed was ... She said I had both PMR and reactive ... felt strongly that I had developed PMR ... any luck you might be treated with Actemra
Posted: Feb 5, 2024
In the first week after PMR diagnosis, I have needed to increase prednisone from 10 to...
In the first week after PMR diagnosis ... Actemra is not an option for me because ... anyone have experience with Humira for PMR
Posted: Feb 1, 2024