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1,115 total results

Comments (1,054)

I feel for you, you are not alone. This is one frustrating disease. I am down...

https://connect.mayoclinic.org/comment/1226689/

I started Kevzara then backed out after

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 1 7:46am

It would be too fast if you were only taking prednisone and following a standard reduction...

https://connect.mayoclinic.org/comment/1090316/

But taking methotrexate and Kevzara

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 20, 2024

Remember Kevzara is trying to control the PMR restart or flare caused by the taper of...

https://connect.mayoclinic.org/comment/1080674/

Remember Kevzara is trying to control

Discussion: Prednisone to Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 4, 2024

CORRECTION: I will probably go with Actemra in either case. Unless tapering is successful in less...

https://connect.mayoclinic.org/comment/832159/

Kevzara gets very expensive quickly

Discussion: How hard is it to get on Actemra (Tocilizumab) with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 26, 2023

Been on Kevzara 5 weeks, SED and CRP are all normal. First time since my initial...

https://connect.mayoclinic.org/comment/1295319/

Been on Kevzara 5 weeks, SED and CRP

Discussion: I’m just wondering how old most of you are with PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 2 6:58pm

Kevzara and Actemra are new biologics that insurance may cover. Usually if you have tried methotrexate...

https://connect.mayoclinic.org/comment/1116358/

Kevzara and Actemra are new biologics ... prednisone you can generally stop taking Kevzara ... So the Kevzara may not help.

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2024

I was on Prednisone for over a year prior. I had a lot of side effects...

https://connect.mayoclinic.org/comment/1080135/

started to taper before I started the Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 3, 2024

I was told it was palendromic pmr. Can happen in the feet and/or hands. My hands...

https://connect.mayoclinic.org/comment/1175899/

Better now after methotrexate, then Kevzara

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 18, 2024

I also took the Pfizer Covid vaccine and booster in 2020 as a work requirement. In...

https://connect.mayoclinic.org/comment/1076521/

then in 2022 developed PMR and now on kevzara

Discussion: Anyone diagnosed with PMR after the Covid vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 28, 2024

I started Kevzara mid December and I had infections in both eye lids soon after. Very...

https://connect.mayoclinic.org/comment/1044195/

I started Kevzara mid December and I

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 2, 2024

Have been on prednisone 20 since Jan and unable to reduce beyond 15 . Labs were...

https://connect.mayoclinic.org/comment/868934/

Took first dose of Kevzara a few days

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 29, 2023

I've been on Kevzara about 8 months. I haven't noticed any negative side effects as far...

https://connect.mayoclinic.org/comment/1193167/

I've been on Kevzara about 8 months ... free drugs runs out I will go off Kevzara

Discussion: Starting KEVZARA: Anyone experience side effects?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 18, 2024

My schedule has been very similar but my legs continue to hurt and and ache pain...

https://connect.mayoclinic.org/comment/1117846/

I am on Kevzara 18 weeks. ... Swelling is not a common side effect on Kevzara

Discussion: Prednisone to Kevzara back to Prednisone. ( Hope not )

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4, 2024

Three mg is the lowest dose I have taken since starting prednisone almost exactly a year...

https://connect.mayoclinic.org/comment/975382/

up the decrease when I started the Kevzara

Discussion: PMR Dosages and Managing Symptoms

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 5, 2023

If you still have pain in the morning i think you should consult with your Rheumatologist...

https://connect.mayoclinic.org/comment/930093/

- perhaps you are a candidate for Kevzara

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 14, 2023

According to Johns Hopkins Rheumatology website, "There is no “safe” dose of prednisone. Prednisone over time...

https://connect.mayoclinic.org/comment/1238474/

I started on Kevzara in early January ... My insurance company approved Kevzara ... I hope that Kevzara's manufacturer ... Currently, prescribing Kevzara before ... allows the plan to exclude payment for Kevzara

Discussion: New to PMR diagnosis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 16 3:39pm

Kevzara is now an option for me since it was FDA approved for PMR in February...

https://connect.mayoclinic.org/comment/1171767/

Kevzara is now an option for me since ... However, I'm not on Kevzara (Sarilumab ... news-releases/news-release-details/kevzarar-sarilumab-approved-fda-first-and-only-biologic ... Both Actemra and Kevzara are IL-6 receptor

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 11, 2024

I don't have any experience with Kevzara. I have taken Actemra for PMR for a long...

https://connect.mayoclinic.org/comment/1150737/

don't have any experience with Kevzara ... Kevzara and Actemra are similar and ... Both Kevzara and Actemra are both IL

Discussion: Weaning off of prednisone & pain management

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 2, 2024

Kevzara is FDA approved for PMR. I started a similar biologic called Actemra after 12 years...

https://connect.mayoclinic.org/comment/970815/

Kevzara is FDA approved for PMR. ... Both Kevzara (sarilumab) and Actemra ... receptor-antagonists-for-ra-management/ Kevzara