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1,328 total results
Comments (1,292)
I did not take Actemra but reading the data and Dadcue's literature, I would think stopping...
I did not take Actemra but reading the ... literature, I would think stopping Actemra ... weaned off prednisone then stopping Actemra ... should depend on whether your PMR is ... Like Dadcue your PMR may be a lifelong
Posted: Aug 28, 2025
I suppose Actemra and Kevzara can also disrupt the inflammation network and immune system but hopefully...
I suppose Actemra and Kevzara can also ... rheumatologist thinks so and neither Actemra ... When I was on another PMR forum, a ... "self proclaimed" PMR expert ... entitled to know" because of having PMR
I'm thinking you shouldn't be tapering while traveling. I traveled extensively when I was taking prednisone....
I'm being treated for PMR but not ... Now I get a monthly infusion of Actemra ... (tocilizumab) for PMR. ... So far, since I switched to Actemra, ... The timing of my Actemra infusion gets
Discussion: PMR and travel
Posted: Aug 19, 2025
I was diagnosed with PMR/GCA in July 2024 and began 60 mg. of pred. With that...
I was diagnosed with PMR/GCA in July ... but I'm only about 50% of my pre-PMR ... I get an Actemra infusion every four
Discussion: PMR and fatigue
Posted: Aug 15, 2025
Just so you know … I have seronegative inflammatory arthritis which was diagnosed approximately 20 years...
diagnosed approximately 20 years before PMR ... to have inflammatory arthritis with PMR ... My rheumatologist insisted PMR was my ... at PMR. ... I chose Actemra.
I have been on Actemra infusions for 2.5 months. I have been on prednisone for PMR...
I have been on Actemra infusions for ... I have been on prednisone for PMR for ... have GCA which is why I'm now on Actemra ... After my second Actemra infusion I definitely ... If Actemra allows me to sustain a prednisone
I was treated with Prednisone for 12 years before I was able to taper off Prednisone....
prednisone used to determine how long PMR ... change because technically I still have PMR ... I have been on Actemra alone for the
I just met with my new rheumatologist now that I have GCA as I just got...
GCA as I just got off medication for PMR ... My rheumy recommends the monthly Actemra ... I've had good health until the PMR ... Has anyone eventually gotten off Actemra
3months prednisone taper post Large Vessel GCA/ PMR diagnosis Nov 2024 . ( no more Pred...
prednisone taper post Large Vessel GCA/ PMR ... Nov 24 Simultaneous commencement of Actemera ... Expect to cease Actemera Nov 2025 . ... ie 12 months Actemera treatment.
Maybe Rinvoq (upadacitinib) would work. It was recently FDA approved for GCA and has already been...
PMR or psoriatic arthritis.. ... felt it "should work" for PMR ... since many people with GCA also have PMR ... Actemra was originally FDA approved ... I have both PMR and reactive arthritis
Posted: Jul 19, 2025
A similar thing happened to me. Was initially on 20 mg/day of prednisone due to PMR/GCA....
on 20 mg/day of prednisone due to PMR ... also started on weekly injections Actemra ... period of 6 months while continuing the Actemra ... I ended up staying on Actemra for 2
Posted: Jul 14, 2025
I was diagnosed with PMR/GCA at age 64. My inflammation scores were extraordinarily high, even for...
I was diagnosed with PMR/GCA at age ... I ended up being on Actemra for a total ... Unlike the prednisone, Actemra had no ... Actemra also stopped all further symptoms ... of PMR/GCA except for one very minor
Does anyone’s blood pressure go low while tapering down ?i have pmr been on prednisone for...
i have pmr been on prednisone for 2 ... low cortisol level and symptoms of PMR ... I didn't have the problem when Actemra ... controlled my PMR symptoms but I felt
Posted: Jul 9, 2025
Hi Jeff, It’s been a while since I’ve been here. PMR diagnosis in about 2016. Still...
PMR diagnosis in about 2016. ... osteoporosis or fibromyalgia as I can’t have PMR ... caused chest pain and chest rash, Actemra ... Palindromic PMR (arthritis?)
Posted: Jul 2, 2025
My eGFR is consistently in the 60-70 range so listed as Stage 2 Chronic Kidney Disease....
It was something new when PMR was diagnosed ... years ago and long before I started Actemra ... My PMR symptoms are well controlled ... I had mild neutropenia on Actemra but ... #39;t say I have ever suddenly had a PMR
Posted: Jun 28, 2025
I have multiple conditions that cause pain. Some of my conditions are autoimmune and some aren't....
but not all of my pain was PMR. ... rheumatology visit because I'm on Actemra ... Actemra works for PMR but not for some ... was telling my rheumatologist how Actemra ... the pain gets any worse we can try Actemra
Posted: Jun 25, 2025
Congratulations for tapering off Prednisone. I hope you can stay off Prednisone. I was on Prednisone...
on Prednisone for 12 years to treat PMR ... was able to taper off with help from Actemra ... was still on Prednisone along with Actemra ... I'm on Actemra without Prednisone
Posted: Jun 20, 2025
I have PMR and GCA, and I have definitely gotten more colds since I started treatment...
I have PMR and GCA, and I have definitely ... taking prednisone for a year, and Actemra ... Before getting sick with PMR and GCA ... caught Covid while I was sick with PMR
Posted: Jun 16, 2025