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702 total results
Comments (682)
No problem. I'm on Actemra which is FDA approved for GCA but was approved for me...
https://connect.mayoclinic.org/comment/1058127/
I'm on Actemra which is FDA approved ... approved for me because of 12 years of PMR ... Kevzara and Actemra basically work in ... inhibitors-for-polymyalgia-rheumatica
Actemra
I have tapered to .5 mg of prednisone after being on it for more than 4...
https://connect.mayoclinic.org/comment/795738/
it for more than 4 years since my PMR ... Starting Actemra 6 months ago had allowed
Unfortunately you can't simply stop taking prednisone. Methotrexate might help you get off Prednisone sooner if...
https://connect.mayoclinic.org/comment/1131927/
I am taking a biologic called Actemra ... Actemra (tocilizumab) allowed me to ... I will be on Actemra for as long as ... In the UK, Actemra is restricted to ... I was told my experience with Actemra
Be very careful taking Actemra. I felt it was a wonder drug. It put me in...
https://connect.mayoclinic.org/comment/925560/
Be very careful taking Actemra. ... It put me in PMR remission. ... So….be careful taking Actemra and be ... Luckily my PMR has not returned since ... going off Actemra in May.
@redboat has an incredible story about how high his inflammation markers were. I'm not sure about...
https://connect.mayoclinic.org/comment/1141340/
sure about how he was diagnosed with PMR ... His response to Actemra was remarkable
Thanks so much for replying. I tapered down to 1mg. prednisone. Have felt absolutely terrible, So...
https://connect.mayoclinic.org/comment/1131884/
My ins probably won't cover Actemra ... should add my primary thinks I have PMR
When I was on prednisone alone I could never get down to 5 mg let alone...
https://connect.mayoclinic.org/comment/1135320/
that quickly when a biologic called Actemra ... by 1 mg per week when I was doing Actemra ... This assumes PMR is in remission. ... Kevzara might help to get PMR into remission
@windyshores Oh, Windy, you are so knowledgeable!! I am so glad I asked!!! We have settled...
https://connect.mayoclinic.org/comment/1104493/
dealing with a rheumatologist for his PMR ... So I'm giving him his weekly Actemra
I had two bouts with PMR and then was in remissions When I quickly developed double...
https://connect.mayoclinic.org/comment/718602/
I had two bouts with PMR and then was ... prednisone for 1 1/2 yrs. but now take Actemra
I have read several articles online stating that a biosimilar ( like a generic) of Actemra...
https://connect.mayoclinic.org/comment/829590/
a biosimilar ( like a generic) of Actemra ... get off prednisone the biosimilar Actemra ... Kevzara has been approved for PMR, so
Wow, thanks everyone for sharing these experiences. Overall, it sounds like people are getting doctors to...
https://connect.mayoclinic.org/comment/829413/
prescribe, and insurance to cover, Actemra ... when they "only" have PMR. ... , even if I only have PMR. ... Giant Cell Arteritis, in addition to PMR ... Especially if the PET scan only shows PMR
From what I've read about Actemra, it is a monoclonal antibody against IL6 . I don't...
https://connect.mayoclinic.org/comment/824523/
From what I've read about Actemra ... I think PMR is my biggest challenge.
Ankylosing Spondylitis (AS) https://www.mayoclinic.org/diseases-conditions/ankylosing-spondylitis/symptoms-causes/syc-20354808#:~:text=Ankylosing%20spondylitis%2C%20also%20known%20as,be%20difficult%20to%20breathe%20deeply. There are several types of spondylitis but AS is the more common...
https://connect.mayoclinic.org/comment/824139/
wasn't offered a biologic when PMR ... able to taper off prednisone until Actemra ... but it didn't work as well as Actemra ... did for PMR. ... couldn't take both Humira and Actemra
I am on Actemra also. Wonder drug!!!! After almost five years on prednisone, hydroxychloroquine, methotrexate and...
https://connect.mayoclinic.org/comment/824069/
I am on Actemra also. ... work, I have gone into remission with Actemra ... PMR is a challenge.
Are you still taking Enbrel for AS and uveitis? Are you also taking prednisone for PMR?...
https://connect.mayoclinic.org/comment/813372/
Are you also taking prednisone for PMR ... Actemra is working for me. ... After PMR was diagnosed, I was never ... When Actemra worked so well, I tapered ... It was my choice to go back on Actemra
Interesting!!! I have had PMR for almost five years. On Actemra which has been a miracle...
https://connect.mayoclinic.org/comment/809955/
I have had PMR for almost five years ... On Actemra which has been a miracle ... The possible connection to PMR fascinates
I don't have RA so I can't speak with any experience about RA. However, I'm somewhat...
https://connect.mayoclinic.org/comment/809500/
inflammatory arthritis that coexist with PMR ... it didn't seem to work well for PMR ... Actemra (tocilizumab) is an IL-6 receptor ... blocker and it worked well for PMR ... What happens when a person with both PMR
I'm in the same boat. I was diagnosed with spondylitis about 30 years ago. I also...
https://connect.mayoclinic.org/comment/804341/
years ago when I was diagnosed with PMR ... off prednisone, a biologic called Actemra ... now everything is being managed with Actemra ... I have taken Actemra for 4 years and ... serious side effects while taking Actemra
There is another discussion that you might find helpful -- Actemra (Tocilizumab) to treat PMR??: https://connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr/...
https://connect.mayoclinic.org/comment/788793/
discussion that you might find helpful
-- Actemra ... (Tocilizumab) to treat PMR?? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... help reduce the need for steroids in PMR ... biologics-may-help-reduce-the-need-for-steroids-in-pmr
I had my first visit with him about 8 weeks ago. I gave him a very...
https://connect.mayoclinic.org/comment/767098/
of my last 3 1/2-year history with PMR ... got the notice about the denial for Actemra ... responded that I wanted to appeal the Actemra
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