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Comments (1,933)
Hi @ccarrasca, Welcome to Connect. 8 years is a long time for an occurrence of PMR....
https://connect.mayoclinic.org/comment/936365/
lasted 3 and half years before I could taper ... off of prednisone and then it returned ... and it took me 1 and a half years to taper ... off the second time. ... Both times I was started with 20 mg prednisone
One would hope PMR patients of the future will have better options than prednisone. I took...
https://connect.mayoclinic.org/comment/892625/
for PMR and never could taper off. ... trying to find a way for me to get me off ... prednisone. ... I was able to taper off prednisone in ... Now that I'm off prednisone, I'
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
https://connect.mayoclinic.org/comment/895854/
reducing my PMR/GCA symptoms as I taper ... off Prednisone (now at 7.5 mg/day,
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
https://connect.mayoclinic.org/comment/891301/
working well for me, and had helped me tapered ... down to 8 mg/day of Prednisone. ... Assuming no relapses, I should be off ... Prednisone by October '23. ... My sleep returned once the Prednisone
It is incredible how often people can't seem to decrease their prednisone dose below +/- 7...
https://connect.mayoclinic.org/comment/879644/
people encounter at that stage in tapering ... off prednisone. ... insufficiency after Actemra allowed me to taper ... down to 3 mg of prednisone. ... Otherwise, prednisone will continue
That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...
https://connect.mayoclinic.org/comment/886875/
I was just fortunate to be able to taper ... off prednisone after taking it for ... I had to taper down to 3 mg of prednisone ... The prednisone we take replaces the ... Being off prednisone has allowed me
Someone else posted this article not too long ago. https://connect.mayoclinic.org/discussion/safe-dose-and-tapering-on-glucocorticoid-therapy/?pg=1#comment-1020760 I guess everyone was speechless or...
https://connect.mayoclinic.org/comment/1022858/
prevented PMR flares, I was able to taper ... nearly an entire year to completely taper ... off prednisone. ... I was able to taper off prednisone but ... improve for another year while I stayed off
@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...
https://connect.mayoclinic.org/comment/884478/
of PMR and I was started on 20 mg prednisone ... the morning along with my dose of prednisone ... I took 3-1/2 years to taper off the ... a prescription for 1 mg and 2.5 mg prednisone ... a daily log of your pain level and prednisone
Thank-you but when I looked to find information I found the following: "What Is Not Eligible...
https://connect.mayoclinic.org/comment/869380/
and encouraged me to keep trying to taper ... off prednisone yet they prescribed ... Getting off prednisone was hard to do ... been tried sooner because it made tapering ... off prednisone much easier.
Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...
https://connect.mayoclinic.org/comment/1012486/
to me on page two is this rapid taper ... don’t think of PMR as requiring high prednisone ... treated with at least 15 milligrams of prednisone ... off steroids within a year, a meta-analysis ... well my current trajectory is zero Prednsone
Hi; the Wilmingtonemperor here. I was diagnosed nearly a year ago with PMR. The highest dose...
https://connect.mayoclinic.org/comment/997097/
I was put on a 12 week taper when I ... I tapered down to 2.5 as my Kevzara ... Last Tuesday, Jan 9, I came off prednisone ... I do not expect a flare since prednisone ... am 82 1/2 and hope not to ever take prednisone
I'm hoping that I will be free of this soon but I also expect some pain...
https://connect.mayoclinic.org/comment/994675/
frustrating condition and I feel that the prednisone ... but it did give me relief until I tapered ... ..down to 2.5 now and hoping to be off ... second year anniversary of starting prednisone
@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...
https://connect.mayoclinic.org/comment/1012549/
I was able to taper off prednisone in ... off prednisone for 12 years without ... The goal should be to taper off prednisone ... off prednisone was doing bad things ... Once I was able to get off prednisone
No doubt the prednisone was awesome if you haven't taken it for a long time. Pity...
https://connect.mayoclinic.org/comment/1003772/
I have been off Actemra twice already ... panuveitis flared up as soon as I got off ... the fact that Actemra for PMR got me off ... except when I tapered my prednisone ... That worked well and I got off prednisone
@mzamyl, I struggled my first time around with PMR and took 3 and half years to...
https://connect.mayoclinic.org/comment/694039/
with PMR and took 3 and half years to taper ... off and had problems gaining weight ... which I think really helped me to taper ... off of prednisone in 1 and half years
I know exactly how you’re feeling the same thing happened to me I was on prednisone...
https://connect.mayoclinic.org/comment/1030265/
same thing happened to me I was on prednisone ... ear and you try to take the focus off ... you on 120 mg that is insane and yes prednisone ... and sometimes if you can take it and tape
I have not heard of anyone with PMR tapering and going off Prednisone that quickly, Elizabeth,...
https://connect.mayoclinic.org/comment/979110/
have not heard of anyone with PMR tapering ... and going off Prednisone that quickly ... the day after you have completed the prednisone ... most people are successful in going off ... the prednisone doing a very slow tapering
Hi @deborah57, I had PMR for a year, undiagnosed, pain on a scale of 10 out...
https://connect.mayoclinic.org/comment/1029374/
and tapered every two weeks. ... My rheumatologist advised me on the taper ... My taper went well and I was off prednisone ... In October, I will have been off it ... returned to my usual personality as the taper
I agree with finding a good rheumatologist. The rate at which you taper off prednisone can...
https://connect.mayoclinic.org/comment/1029934/
The rate at which you taper off prednisone ... I have had to taper much more slowly ... After several unsuccessful tapers my
Thank you. My Dr did put in a referral so now I just wait for an...
https://connect.mayoclinic.org/comment/1033064/
That’s why I am trying to taper so quickly ... I need to get off the prednisone as
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