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2,013 total results
Comments (1,922)
I debated whether or not to post this but after giving it a lot of thought...
https://connect.mayoclinic.org/comment/1526152/
I was on Actemra for 5 years for PMR ... /GCA. ... Unfortunately, my PMR has relapsed. ... really beneficial for treatment of GCA ... and PMR, but make sure you understand
Discussion: Amount of time on Actemra
Support Group: Polymyalgia Rheumatica (PMR)
Posted: 5 days ago
I agree that you probably tapered too soon after starting Kevzara, and your prednisone dose is...
https://connect.mayoclinic.org/comment/1520491/
prednisone dose is too low to handle your PMR ... When I started Actemra to treat GCA ... and PMR, I was at 60 mg of prednisone ... I never had any symptoms of GCA or PMR
Discussion: When to taper prednisone when starting kevzara
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 5 4:49pm
I was diagnosed with PMR in March 2022. In December 2025 (symptom-free and. prednisone-free for 14...
https://connect.mayoclinic.org/comment/1519857/
I was diagnosed with PMR in March 2022 ... for 14 months), was diagnosed with GCA ... other similar medications approved for GCA ... was previously taking prednisone for PMR
Discussion: Medications for Temporal Arteritis/Giant Cell Arteritis (GCA)
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 4 8:50pm
@caroljeand -- I really appreciate your response to my inquiry. Your sense that my treatment should...
https://connect.mayoclinic.org/comment/1519599/
my treatment should be addressing GCA ... /PMR is reassuring to me. ... perspective of fellow travelers on the GCA ... /PMR journey.
Discussion: Ongoing jaw pain in established GCA/PMR patient
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Mar 4 2:13pm
Actemra (tocilizumab) works well for me. Actemra is available as a monthly infusion which I have...
https://connect.mayoclinic.org/comment/1511478/
I was diagnosed with PMR almost 20 years ... authorization to give me Actemra to treat PMR ... some questions about "possible GCA ... didn't make the case that I had GCA ... I doubt GCA would have ever developed
Discussion: PMR and possible GCA - unable to take oral steroids - alternatives?
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 21 5:45pm
@allinge "I'm still waiting to see a rheumatologist but the waiting list is one to two...
https://connect.mayoclinic.org/comment/1511062/
present when I was diagnosed with PMR ... more concerning because of possible GCA ... I have always denied ever having GCA
Discussion: Where have you experienced pain due to PMR?H
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 21 9:24am
@kayept I've been treated with 15 mg Prednisone for PMR. My doctor thought we could do...
https://connect.mayoclinic.org/comment/1510560/
treated with 15 mg Prednisone for PMR ... That opened the GCA can of worms. ... enough indication that I don't have GCA
Discussion: GCA (Giant Cell Arteritis) and PMR (polymyalgia rheumatica)
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Feb 20 2:25pm
@doreenc Wow! You have been through it!! I tend to disagree with you about the "fragility...
https://connect.mayoclinic.org/comment/1098574/
Our first rheumatologist (he has PMR ... and GCA, high doses of prednisone to ... healthy until May 2023 when he developed PMR ... He's on another drug for the GCA
Discussion: Fracturing easily - how do you manage everyday life?
Support Group: Osteoporosis & Bone Health
Posted: Jul 3, 2024
@pkh3381, @beaver, @astaingegerdm, @pb50, @johnbishop, and all...I developed GCA and PMR following a Covid infection in...
https://connect.mayoclinic.org/comment/1004212/
@johnbishop, and all...I developed GCA ... and PMR following a Covid infection ... I'm 77 now, dealing with new PMR ... , GCA, and microscopic poly????? ... and GCA.
Discussion: Temporal Arteritis, PMR, RA
Support Group: Autoimmune Diseases
Posted: Jan 26, 2024
@mkportzen, and all... Wow! You've really been through some difficult times with this mess. I'm so...
https://connect.mayoclinic.org/comment/1028888/
After the 2nd Covid, I developed new PMR ... and GCA that hit me suddenly and was ... , while taking Prednisone 10mg for PMR ... for GCA.
Discussion: Has anyone had chronic asthma due to Post Covid(Omicron) Pnuemonia?
Support Group: Post-COVID Recovery & COVID-19
Posted: Mar 6, 2024
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
https://connect.mayoclinic.org/comment/1067338/
PMR but just hoped and prayed he wouldn ... as he was tapering off Prednisone (PMR ... With these illnesses, both PMR and GCA ... As far as PMR, I'm not sure it&#39 ... inflammation levels rise again and your PMR
Discussion: Has anyone "self-tapered" (increase or decrease prednisone)
Support Group: Polymyalgia Rheumatica (PMR)
Posted: May 13, 2024
@alandy233 & re: Jeff. I also have PMR/GCA. My rheumatologist put me on 60 mg of...
https://connect.mayoclinic.org/comment/1481629/
I also have PMR/GCA. ... didn’t care about side effects or GCA ... convinced it is the correct answer for GCA ... & PMR. Certainly not for me. ... them that you have a diagnosis of GCA
Discussion: Trying To get Answers About GCA
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 13 5:55pm
@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
https://connect.mayoclinic.org/comment/1480815/
6 weeks after I was diagnosed with GCA ... and PMR. ... does Actemra help preserve vision in gca ... patients with glucocorticoid-resistant GCA ... at least some of their vision from GCA
Discussion: Trying To get Answers About GCA
Support Group: Polymyalgia Rheumatica (PMR)
Posted: Jan 12 5:41pm