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Comments (1,660)
Hello @ann31, There is another discussion that may be helpful on the topic of alternative treatments...
https://connect.mayoclinic.org/comment/1356275/
topic of alternative treatments for PMR ... .
-- PMR: Are there treatment alternatives ... mentioned a new drug recently approved for GCA ... approves Rinvoq (Upadacitinib) for GCA ... fda-approves-rinvoq-upadacitinib-for-gca
I was very fortunate last year when I was hospitalized with GCA and PMR. I was...
https://connect.mayoclinic.org/comment/1355565/
year when I was hospitalized with GCA ... and PMR.
I had a lot of symptoms of GCA. I had pain in my cheekbones that was...
https://connect.mayoclinic.org/comment/1332129/
I had a lot of symptoms of GCA. ... I just googled headaches and GCA, and ... Are you currently being treated for PMR ... I had PMR for maybe 8 months or so before ... I started having symptoms of GCA.
In July 2024, I was diagnosed with PMR and suspected GCA. My PCP contacted a rheumatologist...
https://connect.mayoclinic.org/comment/1335410/
In July 2024, I was diagnosed with PMR ... and suspected GCA. ... ;t indicate that I didn't have GCA
I was treated 12 years with Prednisone for refractory PMR. When a biologic called Actemra (tocilizumab)...
https://connect.mayoclinic.org/comment/1340606/
years with Prednisone for refractory PMR ... Actemra is FDA approved for GCA but ... "should work" for PMR. ... biologic that is FDA approved for PMR ... I'm an actual person with PMR and
That’s a very good question. My first round with Giant Cell Arteritis (GCA) and Polymyalgia Rheumatica...
https://connect.mayoclinic.org/comment/1367809/
first round with Giant Cell Arteritis (GCA ... ) and Polymyalgia Rheumatica (PMR) lasted ... While my GCA/PMR symptoms remained unchanged ... between infusions, and many of my GCA ... wish you well in your battle with PMR
Prednisone and methotrexate can cause dizziness as side eeffects. It often improves with the dose of...
https://connect.mayoclinic.org/comment/1342599/
And PMR/GCA can cause issues if it' ... As witgh everything PMR trying to tease ... issues is complicated; side effects and PMR
I appreciate everyone sharing their stories. I am thankful to find this group. I thought I...
https://connect.mayoclinic.org/comment/1357427/
was recovering from a severe case of PMR ... 2.5 mg, when I suddenly experienced GCA
I’m 83. Still in good shape. Work out 5/week, play singles tennis 3/week, mostly feel normal...
https://connect.mayoclinic.org/comment/1358568/
I have PMR/GCA. ... My PMR symptoms were still under control ... at 2mg but my GCA reared its ugly head ... If you have GCA symptoms bump up on ... compared to the hell that untreated GCA
I have blurred vision from epiretinal membranes (scar tissue on both retinas). The blurred vision came...
https://connect.mayoclinic.org/comment/1343514/
suddenly and at the same time as the PMR ... blurred vision is associated with PMR ... experience blurred vision (permanent) with PMR ... but without GCA?
Thank you for relating your experiences with these diseases. It sounds like I will be on...
https://connect.mayoclinic.org/comment/1368133/
supposed" light at the end of the PMR ... Then GCA struck so I am at the start
I was treated for GCA in 2019. My symptoms started across my facial bones near my...
https://connect.mayoclinic.org/comment/1356287/
I was treated for GCA in 2019. ... eyes But he wanted to treat it as GCA ... ultrasound that diagnosed possible GCA ... My Rheumatologist told me if GCA that ... Unfortunately, I'm now having PMR
That taper seems unnecessarily fast. I'm tapering prednisone, and I also take weekly Actemra injections. The...
https://connect.mayoclinic.org/comment/1339866/
controls the inflammation from my GCA ... and PMR.
Before I knew that I had PMR, I tried using Extra Strength Arthritis Tylenol for my...
https://connect.mayoclinic.org/comment/1336380/
Before I knew that I had PMR, I tried ... little, and I eventually developed GCA ... at controlling the inflammation of PMR ... The PMR can get worse, and in some cases ... such as mine, allow GCA to develop.
I followed my rheumatologist's recommendations regarding my taper. I figure he has a lot of experience...
https://connect.mayoclinic.org/comment/1335116/
has a lot of experience working with GCA ... and PMR patients, and his plan has
I started methoprednosone at 48 mg daily when first diagnosed with pmr/gca. Then would reduce 1...
https://connect.mayoclinic.org/comment/1351832/
mg daily when first diagnosed with pmr ... /gca.
I agree with your comments however I’ve come to the conclusion that given the alternatives and...
https://connect.mayoclinic.org/comment/1351974/
prednisone as long as it eliminates my PMR ... /GCA symptoms and try to get the dosage ... miserable existence that comes with PMR ... /GCA , prednisone and all that comes
You do need to get it evaluated ... don't wait. I have never been diagnosed with...
https://connect.mayoclinic.org/comment/1357467/
I have never been diagnosed with GCA ... but I have been treated for PMR for ... always ask me about any symptoms of GCA ... but I have never been diagnosed with GCA ... have while you are diagnosed with PMR
I am blind in my left eye because of GCA. I have had PMR since 2017
https://connect.mayoclinic.org/comment/1363089/
am blind in my left eye because of GCA ... I have had PMR since 2017
I have been doing the monthly infusions for GCA/PMR since January 2025. No weight gain/loss.
https://connect.mayoclinic.org/comment/1366847/
been doing the monthly infusions for GCA ... /PMR since January 2025.
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