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Comments (692)

Sorry your going through this. MTX can take up to 12wks or longer to start working...

https://connect.mayoclinic.org/comment/1108152/

move to one of the biologics like Kevzara

Discussion: Prednisone and methetrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 19 8:55am

I have never had IL-6 testing done. It does seem like it could be a useful...

https://connect.mayoclinic.org/comment/1132059/

PMR and considers a biologic like Kevzara

Discussion: methotrexate or kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 28 6:34am

Thank you! Yes, sent a pretty compelling message to doc saing something has to give. I...

https://connect.mayoclinic.org/comment/845169/

Also looking at Kevzara.

Discussion: PMR and Methotrexate

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18, 2023

Yes, possible osteoporosis. One year apart. Old rheumatologist said osteoporosis but needed prevention because of daily...

https://connect.mayoclinic.org/comment/1121809/

Any suggestions about starting Kevzara

Discussion: PMR with normal blood markers

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 11 4:26pm

To update: I had to stop the kevzara due to allergic reactions at the injection site...

https://connect.mayoclinic.org/comment/1026705/

To update: I had to stop the kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 3 10:49am

@pb50 Both Kevzara and Actemra (IL-6 inhibitors) are FDA approved for the treatment of RA. Remicade...

https://connect.mayoclinic.org/comment/995468/

@pb50 Both Kevzara and Actemra (

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 11 9:20am

My ALP did go up when I got PMR, but not above the normal range. It...

https://connect.mayoclinic.org/comment/1124686/

49, correlating with when I went on Kevzara

Discussion: Elevated alk phos

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 16 10:00am

Your symptoms don't point to a clear-cut case of PMR as you seem to realize. However,...

https://connect.mayoclinic.org/comment/1118947/

The switch occurred after I started Kevzara

Discussion: PMR with only lower body pain?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 6 1:58pm

Good to hear that Kevzara is working for many of you. I am still on 15...

https://connect.mayoclinic.org/comment/939171/

Good to hear that Kevzara is working ... I am still on 15 mg Predisone with Kevsara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 30, 2023

Methotrexate is used to help prevent inflammation while trying to taper off prednisone. The idea if...

https://connect.mayoclinic.org/comment/1094212/

Then newer biologics like Kevzara and

Discussion: Tapering Pains Body Response or PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 25 8:36pm

Alternate day dosing is often tried so 2.5 mg every other day might be worth a...

https://connect.mayoclinic.org/comment/1160554/

If you are on Kevzara, I think there ... have a PMR flare since you are on Kevzara

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21 1:16pm

That’s very interesting, I did not know that. Maybe they are missing a lot of diagnosis....

https://connect.mayoclinic.org/comment/873894/

prednisone were so I have just added Kevzara

Discussion: Can we make PMR funny ? Can we fight the immune cells involved ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6, 2023

Hi, I am newly diagnosed with PMR since July and have been on Predisone since then....

https://connect.mayoclinic.org/comment/936737/

to 15 mg my doctor wants me to try Kevzara

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 26, 2023

@riji where do you live ? there is a Novartis trial recruiting people that are having...

https://connect.mayoclinic.org/comment/993087/

And /or ask you doctors to consider Kevzara

Discussion: PMR Taper and pain

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 7 10:59am

I've been on this group 2 1/2 years and it has been so helpful. At the...

https://connect.mayoclinic.org/comment/1116436/

I learned about Kevzara and how to get

Discussion: Thank you Reminder to PMR group

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2 10:39am

dadcue; I know that this is long term and at 82 the side effects long term...

https://connect.mayoclinic.org/comment/994591/

I feel really fortunate that Kevzara

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 4:07pm

How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...

https://connect.mayoclinic.org/comment/895854/

How is it going with Kevzara?

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 14, 2023

Hi~ I am 55, and I have been dealing with PMR for about 9 years. I...

https://connect.mayoclinic.org/comment/1052932/

Rheumatologist wants me to start on Kevzara ... 🙄 Has anyone been on Kevzara

Discussion: Starting treatment with Kevzara: My journey

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 18 8:49am

Unfortunately, there isn't a cure for PMR. PMR is an autoimmune inflammatory muscle disease and its...

https://connect.mayoclinic.org/comment/1002489/

prednisone and perhaps with newly approved Kevzara

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 23 1:14pm

Thank you Dad. Sorry it went to Therese. This is all quite interesting. I've had a...

https://connect.mayoclinic.org/comment/1175192/

while Actemra but Methotrexate, then Kevzara

Discussion: GCA prednisone vs. actemra infusion therapy

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 17 8:34pm