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Comments (2,901)
@tuckerp You are right that prednisone can have a lot of side effects, and some of...
@tuckerp You are right that prednisone ... When I started taking prednisone to ... Prednisone saved my life and my vision ... I was able to taper off prednisone by ... They won't know how prednisone will
Discussion: Newly diagnosed
Posted: Jan 30 8:02am
@ds1 I'm not the best person to ask. I had no success tapering my prednisone dose...
I had no success tapering my prednisone ... refused to make another attempt to taper ... off Prednisone. ... off Prednisone by saying that Prednisone ... I was able to taper off Prednisone for
Posted: Feb 5 8:18pm
I was diagnosed with PMR Summer of 2020. I’ve tried methotrexate and was unable to taper...
tried methotrexate and was unable to taper ... off steroids. ... I then went back to Prednisone and am ... For the next year, and slowly tapered ... prednisone?
Posted: Feb 5 10:46am
@elleninz It is all about being and staying hopeful. When Actemra was offered to me, I...
off. ... They were promoting elaborate tapering ... because they knew the best way to taper ... off Prednisone even though they could ... not taper off.
Posted: Feb 8 7:22am
@stonewheel Keep in mind that +/- 3 months is for Kevzara to control PMR. Whether or...
Whether or not you are able to taper ... off Prednisone depends on how suppressed ... you might still need to be on some Prednisone ... long time but hopefully a lot less prednisone
Posted: Feb 9 1:45pm
I started at 20mg (10mg am and 10mg at 3pm) then tapering 2.5 mg every 3...
20mg (10mg am and 10mg at 3pm) then tapering ... by the doctors and will extend the taper ... The UK site says best to taper at around ... or for that matter any need to get off ... Prednisone entirely, but it will be
Posted: Feb 9 11:21am
@jeff97 My rheumatologist and I discuss "possibilities" but in reality, there is no plan to ever...
When I was taking Prednisone --- it ... every visit emphasized how to get me off ... Prednisone any longer. ... t know how I would ever be able to taper ... off Prednisone.
@marymckeith I don't know about my fate. My rheumatologist only told me that I was "too...
I was "too young" to take prednisone ... I took prednisone for half of my left ... I only know when I was still on Prednisone ... deteriorating but now it is improving since I tapered ... off Prednisone.
@krispeabody I originally took Prednisone for flares of uveitis. My ophthalmologist prescribed massive amounts of Prednisone...
... increase as needed and taper off ... I perfected the art of tapering off ... Prednisone for uveitis. ... ophthalmologist said I was skilled at tapering ... off Prednisone.
@kare1 . I switched Rheumatologists twice before finding one I trusted. I went off Prednisone while...
I went off Prednisone while feeling ... dosage were not PMR and I wished I had tapered ... completely off sooner.
Posted: Dec 31, 2025
My doctor has me starting with 10mg Friday evening followed by 10 mg Saturday morning. I...
I am currently taking 10mg of prednisone ... start working and how did that effect tapering ... off from the prednisone?
Posted: May 29, 2025
I'm not sure about Actemra giving back control. In a way... prednisone takes control. Prednisone isn't...
In a way... prednisone takes control ... Prednisone isn't addictive but my ... I had no idea how much prednisone I ... Actemra will make it easier for you to taper ... off prednisone.
Discussion: Actemra Infusions
Posted: Jun 1, 2025
I was also diagnosed with a mild case of PMR--surprisingly my legs and shoulders only hurt...
I started with 10 mg. of Prednisone ... I tapered off of it very gradually-- ... It took about a year to get off of it ... I caught COVID, but I was able to taper ... off 2 mg. within weeks.
Posted: May 19, 2025
I’ve been trying to lower my dose of pred for over a year. I’m on Actemra...
Infusion once a month in to help me ween off ... foot down and insisted I continue the taper ... s concerned that I might never get off ... ’ll turn a corner once I’m totally off ... prednisone, but there’s no guarantee
Posted: May 25, 2025
"Actemra inhibits IL-6, but there are other substances that cause the inflammation from PMR and GCA,"...
plenty of time to do painstakingly slow tapers ... off Prednisone. ... are actively seeking alternatives to Prednisone
Posted: Jun 7, 2025
I am to bring down now, like you I also feel like I have a very...
I started prednisone at 4 mg in dec ... I have begun my taper gradually dropping ... I’m anxious to get off of it completely ... I just was curious how your taper went ... and how long it took you to end prednisone
Posted: Jun 10, 2025
"It raises some questions though if you start taking prednisone again once you've stopped, or even...
There is no best way to taper off prednisone ... It was a miracle I got off Prednisone ... Taking Prednisone was an easy thing ... I needed tons of encouragement to taper ... off Prednisone.
Posted: Jan 7, 2025
Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...
to me on page two is this rapid taper ... don’t think of PMR as requiring high prednisone ... treated with at least 15 milligrams of prednisone ... off steroids within a year, a meta-analysis ... well my current trajectory is zero Prednsone
Thanks for your informative reply @cavalryman . I am currently on my second long term prednisone...
am currently on my second long term prednisone ... diagnosed with PMR, and finally got off ... down to 2 mg. for a week or so, while tapering ... and being fairly anxious about the tapering ... best results in your journey getting off
Posted: Feb 19, 2025