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733 total results

Comments (692)

wow elained. You are a trooper. You are a classic example of how the body turns...

https://connect.mayoclinic.org/comment/1081873/

The Kevzara as you mentioned is an IL

Discussion: Anyone With PMR Also Diagnosed With Sjogren's?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 6 11:22am

@mikeydee Hi there - do you plan to plot out all this data : ) that...

https://connect.mayoclinic.org/comment/1013631/

for 2024 in case i needed to take Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 11 9:40am

I give your rheumatologist credit for wanting to "manage your pain." She isn't wrong for wanting...

https://connect.mayoclinic.org/comment/1118265/

being treated with methotrexate and/or Kevzara ... don't have any experience with Kevzara ... Your mileage with Kevzara might be different

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 5 10:56am

Hi bsmith57, I can’t believe how much of this PMR is out there. If this helps,...

https://connect.mayoclinic.org/comment/1122821/

Kevzara might be helpful but you won

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 13 11:21am

I recently started Kevzara 11/23 I was diagnosed with PMR 7/22 my Pred dose was 20mg...

https://connect.mayoclinic.org/comment/996604/

I recently started Kevzara 11/23 I ... was at 5mg prednisone when starting Kevzara

Discussion: Kevzara and Prednisone Tapering before and during Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 13 11:29am

Our government doesn't get overly involved in medical decisions except for granting FDA approval of the...

https://connect.mayoclinic.org/comment/1067333/

Kevzara is now FDA approved for PMR. ... easily be switched and treated with Kevzara

Discussion: 2 year struggle to get off prednisone still hard to get from 3 to 2mg

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 13 3:42pm

Did you consider you may be having a reaction to coming down off the Prednisone? Had...

https://connect.mayoclinic.org/comment/1079106/

sure if she'll be putting me on Kevzara

Discussion: Prednisone for over a year along with Kevzara for last 5 months

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 3:38pm

Will never get a Covid Booster with all the negative side affects that I'm hearing about....

https://connect.mayoclinic.org/comment/950724/

Just got approval for Kevzara but waiting ... and cons they have experienced with Kevzara

Discussion: Any side effects from present flu shot with PMR?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 20, 2023

Thanks for the reply, John, and for the wisdom you’ve gleaned from your experiences with PMR,...

https://connect.mayoclinic.org/comment/1006520/

on a biologique such as Actemra or Kevzara

Discussion: Advice/experience about going back on Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 30 10:36am

I am taking the Evenity shots once a month for the osteoporosis. I can take them...

https://connect.mayoclinic.org/comment/1030545/

I have not heard of Kevzara.

Discussion: Rheumatoid Drs

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9 1:21pm

@paulagcl and others -- I have (finally) found a second person i know who has PMR!...

https://connect.mayoclinic.org/comment/933956/

including that patients are now on KEVZARA

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

As I have commented before, my PCP has handled my PMR from the beginning last January....

https://connect.mayoclinic.org/comment/979180/

reluctant to try new approaches such as Kevzara

Discussion: There is a national shortage of rheumatologists.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 12, 2023

Hi, congratulations on getting off prednisone. I have been off since Jan 9 after being on...

https://connect.mayoclinic.org/comment/1043768/

23 until mid Feb 24, I was also on Kevzara

Discussion: Post prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 1 2:40pm

Karo, So sorry to hear about your headaches, I haven't experienced those although I do get...

https://connect.mayoclinic.org/comment/1123761/

the hospital pharmacy that sends my Kevzara

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 14 4:37pm

Why were your brother and brother-in-law treated with prednisone for so long? I thought prednisone was...

https://connect.mayoclinic.org/comment/994709/

is great that you were prescribed Kevzara

Discussion: PMR: Are there treatment alternatives to Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 9 8:54pm

I am hopefully going on Kevzara starting this week. It actually targets the IL-6 anti inflammatory...

https://connect.mayoclinic.org/comment/977940/

I am hopefully going on Kevzara starting

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 10, 2023

I’ve been on Pred for 8 years, can’t seem to go below 4 mls without a...

https://connect.mayoclinic.org/comment/1116241/

term but now says a biologic like Kevzara

Discussion: What justifies an increase in prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2 6:26am

It's very simple to find out which Medicare part D drug plans cover Actemra. Just go...

https://connect.mayoclinic.org/comment/1140672/

end of last year, before I got on Kevzara

Discussion: Actemra coverage on Medicare in California?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 12 10:36pm

Yes, Kevzara is the drug. I checked on cost, around $3k/month. I have been on prednisone...

https://connect.mayoclinic.org/comment/1078826/

Yes, Kevzara is the drug.

Discussion: Methotrexate to wean off long term Prednisone for PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 1 8:13am

I agree with Dadcue. Its great that Kevzara works. I think it should be tried as...

https://connect.mayoclinic.org/comment/1141882/

Its great that Kevzara works.

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 15 10:23am