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Comments (1,105)

Who would be interesting to hear what happened in those intermittent Trials. I was in chat...

https://connect.mayoclinic.org/comment/1188188/

them had done Intermittent Lupron/orgovyx

Discussion: Withdrawal from orgovyx: How long will fatigue and hot flashes last?

Support Group: Prostate Cancer

Posted: Dec 10 9:00pm

I was on orgovyx for 1 year and now off for 2 months. I also had...

https://connect.mayoclinic.org/comment/1052319/

I was on orgovyx for 1 year and now

Discussion: Orgovyx done. What to expect?

Support Group: Prostate Cancer

Posted: Apr 17 9:26am

Toolbelt, Congratulations! I've been waiting to see how you made out. Fantastic results. It's a GREAT...

https://connect.mayoclinic.org/comment/1042557/

will let you off the hook with the Orgovyx

Discussion: 3 Month post SBRT PSA

Support Group: Prostate Cancer

Posted: Mar 30 7:22am

Well said. My update is - after getting a second opinion with a Dr that was...

https://connect.mayoclinic.org/comment/1124062/

and the risk - I’m currently taking Orgovyx

Discussion: ADT. Afraid of it

Support Group: Prostate Cancer

Posted: Aug 15 9:30am

I have had exactly what your doctor is recommending. Once the PSA hits .2 after a...

https://connect.mayoclinic.org/comment/1173916/

I was on Orgovyx and nubeqa for over ... Orgovyx will weaken bones and cause ... started taking Lupron a drug just like Orgovyx ... Orgovyx has a lot of side effects.

Discussion: Anyone had salvage radiation treatment followed by Xofigo for mets?

Support Group: Prostate Cancer

Posted: Nov 15 11:17am

Doc and wife disagree...............She contends that in fact I am still full of crap.........The doc, on...

https://connect.mayoclinic.org/comment/975039/

Starting Orgovyx and Flomax tomorrow

Discussion: Doc says I am full of sh*t

Support Group: Prostate Cancer

Posted: Dec 4, 2023

I can't guarantee that your experience will be the same, but after 3 years on ADT...

https://connect.mayoclinic.org/comment/1114465/

Firmagon) and switching to daily pills (Orgovyx

Discussion: Erleada and Lupron: Anyone have late appearing side effects?

Support Group: Prostate Cancer

Posted: Jul 30 8:55am

I have UnitedHealthcare Medicare Advantage through the State of Georgia. I just started Orgovyx in September....

https://connect.mayoclinic.org/comment/943194/

I just started Orgovyx in September.

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 6, 2023

Seasuite: Orgovyx is covered under Medicare Part D. Prior to PCa, my only Rx meds were...

https://connect.mayoclinic.org/comment/942794/

Seasuite: Orgovyx is covered under ... Orgovyx was a Tier 5 branded med with

Discussion: What's your experience with Orgovyx (relugolix)?

Support Group: Prostate Cancer

Posted: Oct 6, 2023

I am 76 yrs old. I had a robotic prostatectomy in 2006, and doctor reported prostate...

https://connect.mayoclinic.org/comment/981845/

A different oncologist suggested Orgovyx ... Can anyone suggest a good reason why Orgovyx

Discussion: How long do Lupron side effects last after treatment concludes?

Support Group: Prostate Cancer

Posted: Dec 16, 2023

I was on Zytiga for several months when I noticed a shortness of breath. It started...

https://connect.mayoclinic.org/comment/1185287/

I eventually moved on to Orgovyx, and

Discussion: Has anyone had to discontinue Zytiga due to side effects?

Support Group: Prostate Cancer

Posted: Dec 6 6:50am

Thanks! What has me scared based on what I read on the Orgovyx web site was...

https://connect.mayoclinic.org/comment/1192761/

scared based on what I read on the Orgovyx

Discussion: Orgovyx and the timeline for return of normal testosterone level

Support Group: Prostate Cancer

Posted: 20 hours ago

No. that's probably another poster. I was on Firmagon+Apalutamide from October 2021 (mCSPC), then switched to...

https://connect.mayoclinic.org/comment/1079009/

October 2021 (mCSPC), then switched to Orgovyx

Discussion: Apalutamide vs abiraterone: which is more effective?

Support Group: Prostate Cancer

Posted: Jun 1 12:47pm

Orgovyx/arbiterone is tolerable for me and since it is pill form you can discontinue if intolerable....

https://connect.mayoclinic.org/comment/1114922/

Orgovyx/arbiterone is tolerable for

Discussion: Prostate cancer radiation failed

Support Group: Prostate Cancer

Posted: Jul 30 10:23pm

I'm on orgovyx and hadn't heard of this before. I'm not being test for testosterone but...

https://connect.mayoclinic.org/comment/889276/

I'm on orgovyx and hadn't heard

Discussion: Husband not responding to ADT

Support Group: Prostate Cancer

Posted: Jul 3, 2023

Yes. Casodex. It took awhile for me to get the Orgovyx ok’d by my insurance. Had...

https://connect.mayoclinic.org/comment/1075558/

It took awhile for me to get the Orgovyx

Discussion: Relief for hot flashes during the night

Support Group: Prostate Cancer

Posted: May 27 8:59am

I am a fellow PCa patient. My care team wanted to start ADT 4 to 8...

https://connect.mayoclinic.org/comment/1094813/

started RT 7 weeks after ADT started (Orgovyx

Discussion: When to start ADT treatment of 4+3 score?

Support Group: Prostate Cancer

Posted: Jun 26 6:33pm

On orgovyx/zitiga 13 months Gleason 9 nodal involvement psa undectable since 3rd wk testosterone less than...

https://connect.mayoclinic.org/comment/1048383/

On orgovyx/zitiga 13 months Gleason

Discussion: Orgovyx and Zytiga combined

Support Group: Prostate Cancer

Posted: Apr 10 10:32am

I take Orgovyx and Zytiga when I get up to pee at night. I sleep like...

https://connect.mayoclinic.org/comment/1138638/

I take Orgovyx and Zytiga when I get

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 8 11:08pm

Without a doubt! 74 and 3rd month on ORGOVYX with hot flashes every hour. No energy,...

https://connect.mayoclinic.org/comment/1139517/

74 and 3rd month on ORGOVYX with hot

Discussion: Orgovyx extreme fatigue side effects

Support Group: Prostate Cancer

Posted: Sep 10 2:29pm