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2,925 total results
Comments (2,758)
Hi. It’s so nice to hear a more positive story! If your symptoms just started in...
Rheumy initially gave me the one week tapering ... of Methylprednisolone rather than Prednisone ... I just tapered to 5 mg yesterday and ... morning pain, but I had all the other PMR ... ‘Hope you continue to taper easily!
Interesting that you say that about regulating your own prednisone that’s kind of what I am...
say that about regulating your own prednisone ... interesting that said working with this prednisone ... and tapering. ... I have PMR/GCA. ... I carry a a bottle of prednisone with
Hi, my name is Leslie and I have recently started on my PMR journey with bilateral...
and I have recently started on my PMR ... rheumatologist gave me a one week high but tapering ... course of prednisone which immediately ... been experimenting with taking my prednisone ... is not pleased with the addition of prednisone
I really believe mine came about because of extreme stress. I was already totally stressed from...
I was aching all over and then the PMR ... I was put on 10 mgs of prednisone and ... 20 months I was able to get off of prednisone ... by tapering very slowly and have been
Posted: Jun 18, 2023
I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...
since it isn't FDA approved for PMR ... Injections every 2 weeks worked well and I tapered ... I had better luck tapering off prednisone ... to treat PMR. ... 12 years after being diagnosed with PMR
I was diagnosed with PMR a year ago. I was initially put on 30 mg prednisone...
I was diagnosed with PMR a year ago. ... I was initially put on 30 mg prednisone ... with a taper for one year. ... Took me gradually off all prednisone
Everyone is different, but since you mentioned it’s only your first month with PMR, I’m wondering...
mentioned it’s only your first month with PMR ... , I’m wondering if you may be tapering ... The one thing we all share with PMR ... that in most cases, slow-slow-slow taper ... and she told me they used to call prednisone
@pkalkstein I'm writing just to say how important and clear I think your post is.....it is...
PMR/GCA...we don't get cured, and ... prednisone allows us to manage the ... pain, taper slowly and stave off GCA ... diagnosed with the flu...probably PMR
Discussion: Breakthrough Pain?
Posted: Jun 11, 2023
Hi @lanieg, I'm sorry to hear that the prednisone is messing with your blood glucose. That...
lanieg, I'm sorry to hear that the prednisone ... do anything to treat the cause of PMR ... helpful when you are struggling to taper ... off of prednisone or need alternatives ... to Prednisone?
Hi @jholland ... What do you mean by experimental stages of inflammatory arthritis? The biologic that...
I was always able to taper off in a ... It became impossible to taper off prednisone ... tociliumab) was started I was able to taper ... I couldn't taper off because Actemra ... I tapered off prednisone in 3 months
Posted: Jun 10, 2023
Hello @livingwithpmr, Tapering off of prednisone while managing the PMR symptoms can be difficult at times....
Hello @livingwithpmr, Tapering off of ... prednisone while managing the PMR symptoms ... — PMR Dosages and Managing Symptoms ... helped me was keeping a daily log of my prednisone ... had in the morning before taking the prednisone
Posted: Jun 4, 2023
Thanks Grammy for your fast reply! My blood inflammation markers are normal and initially elevated but...
I know you can have PMR with normal ... don’t know where I’d be without the prednisone ... treatment I am much better until this last taper
Wishing you luck... I don't know if GCA could pop up again as a problem, but...
But on the prednisone dose, if this ... helps, if tapering by 5 milligrams feels ... his caregiver; he is the one with PMR ... never diagnosed with GCA; his highest prednisone ... his rheumatologist suggested to try tapering
Me too with low grade headaches and/or/whooshing/ringing. Am stuck in my tapering down from 20 MG...
Am stuck in my tapering down from 20 ... MG prednisone plus LDN to a divided ... He said that since I have been on prednisone ... or the pmr or something else giving ... from a doctor who seems to know about PMR
Thank-you but when I looked to find information I found the following: "What Is Not Eligible...
to take daily for PMR. ... and encouraged me to keep trying to taper ... that was recently FDA approved for PMR ... been tried sooner because it made tapering ... who thought Actemra should work for PMR
Posted: May 30, 2023
Hello @gmanurse, Great advice, I wished more primary care docs understood PMR a little better and...
more primary care docs understood PMR ... and not focusing on getting off of prednisone ... I saw the following tapering plan on ... known about with my first round with PMR ... slow and nearly stop reduction plan (Tapering
I'm currently off prednisone but I took it for more than 12 years for PMR. I...
I'm currently off prednisone but ... took it for more than 12 years for PMR ... ;depends how I feel" method of tapering ... The effects of prednisone did wear off ... , I would take less prednisone.
Posted: May 28, 2023
Hello @freeme, Welcome to Connect. It's good that you are advocating for your health and learning...
learning as much as you can about PMR ... I've had 2 occurrences of PMR but ... What helped me when I was tapering off ... of prednisone was keeping a daily log ... with my prednisone dose for the day
I received Actemra for PMR 4 years ago.. Actemra was requested and approved. Actemra works very...
minimal side effects and was able to taper ... off prednisone relatively quickly. ... I was unable to taper off prednisone ... young" (64 years old) to take prednisone ... GCA), most notably the inability to taper