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548 total results
Comments (480)
Hi I was diagnosed in June of2021 with lung to liver net Ki67 1-5% with two...
in June of2021 with lung to liver net ... done about 1000 hours of research on nets ... , or freezing or heating the liver tumors ... to decrease tumor load. ... discussion for me is the ABC.s of neuroendocrine
Welcome @rebecka93, I'm sorry to hear that your son has been diagnosed with NET. I'm sure...
that your son has been diagnosed with NET ... tumor appear or is it always metastatic ... /connect.mayoclinic.org/discussion/neuroendocrine-metastatic-tumor ... / I'm tagging fellow NET members ... /connect.mayoclinic.org/discussion/neuroendocrin-tumor
Posted: Feb 11, 2023
Hello again @taneall I'm glad to hear that you are finding lots of information on NETs...
are finding lots of information on NETs ... cancerblog.mayoclinic.org/category/cancer-type/neuroendocrine-tumors-cancer-type
Posted: Jan 25, 2023
Welcome @mir123. NET of the breast is rare, but you're not alone. I've moved your message...
NET of the breast is rare, but you&#39 ... existing discussion: - Anyone have neuroendocrine ... tumor (NETs) of the breast? ... her cancers were treated, including NET ... - Primary Neuroendocrine Tumor of
Welcome @kt348. Finding out that you have cancer sends one into a tailspin. It's so hard...
kaforester3, who also have pancreatice neuroendocrine ... tumors, I added your discussion to ... the Neuroendocrine Tumors group as well ... It sounds like the tumor was found incidentally ... Are you being seen by a NETs specialist
Posted: Oct 17, 2022
Hello @nathanb1979 Welcome to the NETs discussion on Mayo Connect. I am sorry to hear of...
Hello @nathanb1979 Welcome to the NETs ... As neuroendocrine tumors seem to be ... from Mayo Clinic's website, --Neuroendocrine ... Tumors https://www.mayoclinic.org/ ... diseases-conditions/neuroendocrine-tumors
Posted: Oct 3, 2022
I did not have my first scan until 3 months after my last infusion. The nuclear...
might also want to take a look at net.org ... (Neuroendocrine Tumor Research Foundation ... are several videos posted on various NET
You will learn a lot with your Mayo doctor and it should move quickly. Gallium 68...
Scans are used to diagnose / identify Neuroendocrine ... Tumors (if that is what you / your ... Mayo has very experienced NeT specialists ... Some NETs can secrete insulin causing ... However, since this is a NET chat support
Phxsuns, it sounds like your GI has not given you a clearly understandable explanation as to...
explanation as to why no referral to a NETs ... overlooked as can often happen with neuroendocrine ... tumors. ... mccoreprodcrmextncast.blob.core.windows.net
Posted: May 3, 2021
@haramir I found this helpful article about nutrition and NETs - Eating Right with Neuroendocrine Tumors...
helpful article about nutrition and NETs ... - Eating Right with Neuroendocrine ... Tumors https://netrf.org/old-for-patients ... /living-with-nets/nutrition/ While ... if your brother has had surgery for NETs
Posted: Mar 10 2:59pm
Sounds as if your medical team has caught this before it forms into the tumor and...
caught this before it forms into the tumor ... pre-cancerous or pre-invasive condition where neuroendocrine ... condition you describe is rare for the NET ... often thought that years before the NETs ... landed and formed into a tumor, I
Discussion: Someone can help?
Posted: Feb 2 8:53am
Did your endoscopy include a a biopsy that confirmed your NETs diagnosis? Somatuline Depot (Lanreotide) can...
include a a biopsy that confirmed your NETs ... might be related to lack of large tumor ... I still have and always will have Neuroendocrine
Discussion: Someone can help?
Posted: Feb 1 4:56pm
@kelseylenk, yes, you can request a second opinion with Mayo Clinic NET specialists. You can start...
a second opinion with Mayo Clinic NET ... to connect with members here in the NET ... It is hosted by a Mayo Clinic NETs social ... Tumor Support Group Meeting: Zebras ... https://connect.mayoclinic.org/event/neuroendocrine-tumor-support-group-meeting-ne-fl-neuroendocrine-cancer-zebras
@lpaelevated4 In my opinion, as a patient who has had a total pancreactectomy due to multiple...
total pancreactectomy due to multiple Neuroendocrine ... Tumors, you should seek an additional ... MEN1, after they found the pancreatic tumors ... alternating MRI's yearly to look for new NETs ... The contrast they use is one that NET
Support Group: Pancreatic Cancer
Posted: Oct 1, 2025
@prariezebra: I’ve been in a similar situation and know your apprehension & fear well. 4 yrs...
since you already have proof your tumor ... tumors). ... tumors) and how to recommend treatment ... Online you will find several Neuroendocrine ... Tumor Cancer Support groups that offer
Hi Mike. Do you know what kind of PET scan you are getting? For example, A...
For example, A NET PET scan, specifically ... diagnostic tool used to find and map neuroendocrine ... tumors in the body. ... Also, is your oncologist a NET specialist
@ginger39 How long have you had this tumor and what are your symptoms? You may want...
ginger39 How long have you had this tumor ... https://www.mdanderson.org/cancerwise/neuroendocrine-tumors ... my.clevelandclinic.org/health/diseases/22006-neuroendocrine-tumors-net ... www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors ... //www.healthline.com/health/cancer/neuroendocrine-tumors
Support Group: Melanoma & Skin Cancer
Posted: May 20, 2025