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Comments (1,149)

Actually the treatments for PMR and GCA are not the same. The biologic drug Actemra is...

https://connect.mayoclinic.org/comment/1307925/

to treat GCA, and the biologic drug Kevzara

Discussion: Has anyone had their voice affected by Pmr? I have read that it is.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 19 3:08pm

I have PMR & long covid. MY LC caused the PMR. I just completed prednisone &...

https://connect.mayoclinic.org/comment/1151078/

just completed prednisone & am on Kevzara

Discussion: Need to decide to get a Covid Shot while I have PMR.

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 3, 2024

I have had PMR for at least 30 years and been of and off prednisone (P)...

https://connect.mayoclinic.org/comment/1330852/

months and no help I was switched to Kevzara ... I have been on Kevzara for about 6 months

Discussion: Any experiences with Kevzara (sarilumab)?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 19 7:33pm

The specialty pharmacy is in the same town and I can go to pic them up...

https://connect.mayoclinic.org/comment/1363257/

I get two shots of Kevzara sent to me

Discussion: Questions for people taking Actemra and Kevzara injections

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 4 5:44am

Methotrexate is commonly used in the USA too. Actemra isn't used so much because it hasn't...

https://connect.mayoclinic.org/comment/1025051/

Kevzara is now FDA approved for PMR. ... For Kevzara, no approval is necessary

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 29, 2024

I was diagnosed with PMR last November and have been treated with Prednisone since then. Was...

https://connect.mayoclinic.org/comment/938384/

My doctor recommended Kevzara and I ... grateful to have the opportunity to take Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 28, 2023

I have not had any guidance for reducing prednisone while taking Kevzara. I do know you...

https://connect.mayoclinic.org/comment/980138/

for reducing prednisone while taking Kevzara ... slowly taper off prednisone and the Kevzara

Discussion: How long has PMR lasted - I'm trying to find the average

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 14, 2023

What injection med are you using? I use kevzara bi-monthly. My doctor wants me to wean...

https://connect.mayoclinic.org/comment/1160388/

I use kevzara bi-monthly.

Discussion: PMR pain management with medical cannabis

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 21, 2024

You are so right about me getting off steroids. I have done some research about Kevzara,...

https://connect.mayoclinic.org/comment/1058147/

I have done some research about Kevzara

Discussion: Does Kevzara put PMR in to remission?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 27, 2024

I’ve just started on Kevzara this week. Also taking MTX 17.5 mg weekly and currently on...

https://connect.mayoclinic.org/comment/951893/

I’ve just started on Kevzara this week

Discussion: How does Kevzara help with PMR symptoms and pain? I am being weaned

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 22, 2023

I thought Medicare would only cover Kevzara if it was given in a dr office or...

https://connect.mayoclinic.org/comment/1188484/

thought Medicare would only cover Kevzara

Discussion: Newly diagnosed with PMR taking prednisone 15 mg. Working well. Dr wan

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 11, 2024

Wellsbjt@ I am exactly where you are. On Kevzara and have tapered to 4mg. Prednisone. Going...

https://connect.mayoclinic.org/comment/1340711/

On Kevzara and have tapered to 4mg.

Discussion: kevzara and relapse

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 3 11:16pm

I currently don't have a rheumatologist as mine moved back to Florida in May. The only...

https://connect.mayoclinic.org/comment/1131267/

rheumie talked about starting me on Kevzara ... Planning to ask my PCP about a scrip for Kevzara

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 26, 2024

I’m glad you asked and hopefully we will hear good news from the others. I have...

https://connect.mayoclinic.org/comment/896454/

Kevzara can apparently cause them to ... whether or not it is safe to return to Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 15, 2023

Hi @sheralee, I just had my first Kevzara injection on Tuesday. So far, so good. No...

https://connect.mayoclinic.org/comment/867174/

Hi @sheralee, I just had my first Kevzara ... m exactly who they describe in the Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2023

I’m sorry that you’re struggling, PMR affects everyone so differently. I’ve been maintaining on 4 mg...

https://connect.mayoclinic.org/comment/866386/

I decided to chicken out on the Kevzara ... Some folks do well on Kevzara, I just

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 25, 2023

@wilmingtonemperor ha ha - don't faint - you are missing a zero -- when put Kevzara...

https://connect.mayoclinic.org/comment/977060/

you are missing a zero -- when put Kevzara

Discussion: Wrist and finger pain while tapering prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 8, 2023

My doctor still has me on prednisone for almost 1 yr. down to 10 mg but...

https://connect.mayoclinic.org/comment/933598/

He was reluctant to put me on Kevzara

Discussion: Kevzara (sarilumab) to treat PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 21, 2023

I have been on Prednisone since January of 2023. After 2 failed attempts in tapering off...

https://connect.mayoclinic.org/comment/1147078/

Prednisone, my Rheumatologist prescribed Kevzara ... I have been on Kevzara for 3 months ... have had no side effects from the Kevzara

Discussion: Actemra vs Kevzara success?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 25, 2024

Hi I started on 20mg of prednisone for PMR 4 years ago. Had difficulty tapering down...

https://connect.mayoclinic.org/comment/1079807/

difficulty tapering down so started KEVZARA

Discussion: Anyone have discomfort or pain when tapering off prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 2, 2024