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972 total results
Comments (925)
My first dose of Ocrevus went OK, I had a fever and headache afterwards. My head...
My neurologist diagnosed me with neuropathy ... They did tests that confirmed my small ... fiber neoropathy. ... have seizures so it was hard to see what ... The test that helped with the diagnosis
Support Group: Brain & Nervous System
Posted: Jul 22, 2017
The good news is that you recognize you are starting to gain weight despite watching what...
starting to gain weight despite watching what ... What has helped my was reading a book ... answers for my autoimmune diseases - small ... fiber peripheral neuropathy (SFPN)
Discussion: Ischemic stroke
Posted: Mar 29, 2017
Hi @dash99999, I'm sorry to hear your suffering - been there, done (and doing) that. As...
printed out a list of bullet points of what ... MY APPRAISAL 1 SMALL FIBER NEUROPATHY ... (SFN) SFN is peripheral neuropathy ... Bad for reflux/GERD and neuropathy. ... You have to shake the tree and see what
Hello @mikead63, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy with just numbness and...
I have idiopathic small fiber peripheral ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... One thing that really helped me was ... has helped them. ... What symptoms bother you the most?
Support Group: Neuropathy
Posted: Jan 28 12:02pm
penn, pSS is so much much more than just dryness (SICCA) issues, as you are proof...
constantly, I was taking Benadryl to help ... It also really helps with the chronic ... I have small fiber neuropathy also. ... Did you get small fiber nerve testing ... What did your RH know that made her
Support Group: Autoimmune Diseases
Posted: Sep 24, 2024
I am so compassionate for what you are going through. I have extremely painful SFN in...
I am so compassionate for what you are ... But when I lay down the small fiber ... neuropathy pain is a 10 out of a 10. ... especially CBN which is supposed to help ... have intuitively felt that that's what
Support Group: Neuropathy
Posted: May 25, 2024
Hi— I’m new to Mayo! My Neurologist (migraines) was the most helpful to me with my...
Neurologist (migraines) was the most helpful ... work, an MRI brain (R/O MS) and a small ... Fiber Neuropathy and a Vit B/folate ... My advice to anyone with what seems ... I have flares and am learning what can
Support Group: Just Want to Talk
Posted: Feb 2 10:28am
Glad your husband feel better with special shoes and Gababentin.... Unfortunately, the relief will not last...
thing first you have to determine what ... venous blood flow, skin biopsy for small ... fiber neuropathy ( SFN) etc... ... , being on Gababentin and bunch of helpful ... maintenance twice a month...Hope this help
Support Group: Neuropathy
Posted: Jan 8 10:10am
Hello. I'm very sorry to read your story. I am a chronic pain sufferer from progressive...
chronic pain sufferer from progressive small ... fiber poly neuropathy and my mom a ... more drugs and were only wanting to help ... It's cruel what they've done ... Someone must help. Best of luck.
Support Group: Neuropathy
Posted: Feb 2, 2020
It has been a 4 year journey filled with troubleshooting and misfires before landing on my...
before landing on my new normal of Small ... Fiber Polyneuropathy. ... hand brace (from weeding too much – what ... Yeah, so what. ... Fiber Polyneuropathy.
Support Group: Neuropathy
Posted: May 12, 2020
Good afternoon. This discussion is an effort to give everyone an opportunity to share their neuropathy...
scattered everywhere, he asked: "What ... skin biopsy to confirm that I had small ... fiber peripheral neuropathy (SFPN). ... Alter what I can, accept what I can& ... Share your neuropathy journey to help
Support Group: Neuropathy
Posted: May 12, 2020
I can understand being discouraged, especially when there really is no cure for neuropathy, only treatments...
When I was diagnosed with idiopathic small ... fiber peripheral neuropathy after it ... I finally decided I needed to know what ... told me there is nothing that will help ... research until I found something that helps
Support Group: Neuropathy
Posted: Nov 28, 2022
Mine started in my hands and feet in 2011. I am still fighting for an official...
All symptoms point to small fiber neuropathy ... Everything I have learned about what ... Check out the Facebook group called Small ... Nerve Fiber Neuropathy. ... The people are really helpful, and many
Support Group: Neuropathy
Posted: Jan 9 10:02am
If you don't know what is causing your foot pain, figuring out what might help will...
If you don't know what is causing ... help will be challenging. ... foot do work for many people with small ... fiber neuropathy, which is caused by ... fiber neuropathy, which damages the
Support Group: Neuropathy
Posted: Jan 15 1:29pm
Hi, My name is Mat and I am 70 years old. My experience with PN started...
Some years ago, I was taking a small ... getting worse but the Gabapentin does help ... fiber neuropathy. ... hope to see how others are doing and what ... me how fast things will change or what
Support Group: Neuropathy
Posted: Mar 3 2:49pm
Love your profile photo @npostusa! You've had quite a struggle and it sounds like you are...
alcohol after being diagnosed with small ... fiber peripheral neuropathy as I know ... that alcohol can make neuropathy worse ... www.ncbi.nlm.nih.gov/pmc/articles/PMC8226943/ What ... pain when I got up in the morning and what
Hello @micasmar, Welcome to Connect. You will notice that we merged your discussion here with the...
I have idiopathic small fiber peripheral ... journey and what helps us in the following ... What's Yours? ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... can help neuropathy?
Support Group: Neuropathy
Posted: Jul 25, 2021
Hello @tryingandtesting, I would like to add my welcome along with @celia16 and others. Thanks for...
Thanks for sharing what has helped you ... I shared my neuropathy journey along ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... of the recommended supplements to help ... my idiopathic small fiber PN and have
Support Group: Neuropathy
Posted: Feb 25 8:07am
Hi @sharonfranks1119, I don't think your question is strange. There are many different symptoms related to...
I have idiopathic small fiber neuropathy ... What you feel with your sense of touch ... and dysesthesia to learn what others ... search=brachial+plexus+neuropathy - ... doctors suggested any treatments to help
Discussion: Odd symptom
Support Group: Neuropathy
Posted: Feb 28 8:02am
Hello @jeffrapp, welcome to Connect. Thank you for posting. I also have idiopathic small fiber peripheral...
I also have idiopathic small fiber peripheral ... neuropathy only I just have the numbness ... From what my neurologist told me only ... weather seems to loosen the body and help ... PubMed which is a great resource to help