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Comments (2,902)
@tweetypie13 Thank you for your thoughtful and helpful comment. I have never been completely pain free...
been completely pain free when I have tapered ... Perhaps I should be less eager to get off ... the prednisone....I am now on day 60
Discussion: Newly diagnosed
Posted: Feb 3 12:48am
@tuckerp Hi. Thanks for your reply. I’m touched to hear your loss. I hope you had...
“ At 5 months I started to taper and ... I tapered off over the next month rather ... months at 10mg, you went from 10mg prednisone
Discussion: Exercise
Posted: Feb 1 7:45pm
My blood work was nearly normal but all other PMR symptoms were present and 40 mg...
symptoms were present and 40 mg of prednisone ... After 9 months I have tapered down to ... 12.5 mg of prednisone a day and am ... with hopes that I will be able to get off ... I now taper by .5 mg every two weeks
Discussion: Newly diagnosed
Posted: Jan 31 12:29am
@rocksology I too am 68 years old and was diagnosed with PMR in February 2025. I...
Although prednisone and Actemra have ... I decided to start taping off of Cymbalta ... If you are on prednisone right now ... enough dose, but I really feel that the prednisone
Discussion: PMR and Depression
Posted: Jan 29 2:19pm
A year ago my diagnosis went from chronic pain and fibromyalgia to PMR due to my...
I was on 20 mg prednisone for 3 months ... I attempted a rapid taper, but it still ... took 5 months to taper off. ... A different Rheumatologist took me off ... My body HATES prednisone and it causes
@jeff97 So glad your vision is ok, after your scares. My diagnoses came within a week...
Two trips to urgent care set off internal ... I took Prednisone 7/31/24 - 6/19/25. ... So, been off Prednisone for 7 months ... No withdrawal effects from Prednisone ... (slowwww taper).
I have been off prednisone e for 3 weeks , I only ever had low dose...
I have been off prednisone e for 3 weeks ... of 10 mg per day for 4 months , i tapered ... , now off .
Posted: Jan 18 5:15pm
@judyb43 In an ideal world ... tapering off Prednisone as soon as possible is the best...
off Prednisone as soon as possible ... Tapering off prednisone was easier said ... #39;t wrong to encourage me to get off ... It was impossible for me to taper off ... off prednisone.
Posted: Feb 18 2:10pm
You've done something very dangerous by dropping from 20 mg a day down to zero. Even...
working again when you stop taking prednisone ... - you have to taper off of prednisone ... Depending on how long you have taken prednisone ... "Abruptly stopping 20 mg of prednisone ... I wouldn't try to taper until you
I had the same experience -- wheezing after about 9 months in a trial that was...
I was prescribed the prednisone taper ... last 3 months of watch and wait while off
Discussion: predniSONE
Support Group: MAC & Bronchiectasis
Posted: Feb 14 10:07am
PMR diagnosis October 1 2025. Started RINVOQ January 1, 2026. Stopped Methotrexate and tapering off prednisone....
Stopped Methotrexate and tapering off ... prednisone. ... still there and was pulsed with IV prednisone ... Prednisone up to 50mg.
Posted: Feb 13 2:37pm
@pah17 once on Prednisone I could function normally but felt the intensity of the steroid and...
@pah17 once on Prednisone I could function ... So I was eager to wean from prednisone ... I enjoyed 3 months off Prednisone at ... I am now weaning again, trying to taper ... But I’d still like to get off prednisone
Posted: Feb 13 8:18am
@pah17 This disease has done a number on me. I’m a 78 year old female, on...
meds and now on ant acid meds as the prednisone ... later I’m down to 1 mg and hopefully off ... probably due to my body adjusting to the tapering ... off prednisone.
Posted: Feb 13 5:58am
@linnead Been there, know that feeling. Kevzara was/is my savior. I resisted going on Kevzara too…..”not...
tell me that Kevzara would help me taper ... off of the prednisone. ... I was at abt 8 prednisone when I started ... I did a slooow taper off prednisone, ... and was off after 3 1/2 months.
@mezack25 Tylenol helps me now: it didn’t work at first… I’ve been on prednisone for 20...
didn’t work at first… I’ve been on prednisone ... my last dr said we have to get you off ... prednisone.. ... mg daily and wait till April for a tapering
Posted: Feb 8 10:27am
@cheraloha I think the "difference" is how how much faster you can taper down and hopefully...
#34; is how how much faster you can taper ... down and hopefully off prednisone. ... off prednisone. ... off Prednisone. ... off the first time and close to 2 years
Posted: Feb 7 2:25pm
@stonewheel I'm in awe of @tuckerp because I know what he had to endure and how...
he had to endure and how quickly he tapered ... off prednisone. ... ;m more impressed when someone can taper ... off quickly. ... The hard part was tapering off Prednisone
Discussion: Exercise
Posted: Feb 2 2:57pm
Best of luck to you as you travel and I'm so glad that rilonacept worked for...
I am off all meds except for colchicine ... except for a July flare when I was tapering ... the prednisone too quickly but at that ... I'm very happy to be off the meds ... that doesn't work, they add in prednisone
@pmrnew I don't want anyone to be afraid to take prednisone. I probably would not have...
always encouraged me to keep trying to taper ... off as soon as possible and another ... rheumatologist could have found a way to get me off ... life has improved immensely since I tapered ... off Prednisone.