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548 total results
Comments (480)
I just got the pathology results --Neuroendocrine tumer- NET/G1/Typical Carcinoid. I had a 9 mm left...
https://connect.mayoclinic.org/comment/798932/
I just got the pathology results --Neuroendocrine ... tumer- NET/G1/Typical Carcinoid.
Followup answer: My invasive surgery (I’m a relatively healthy 80 year old man) was for a...
https://connect.mayoclinic.org/comment/783340/
removed a well-well-differentiated neuroendocrine ... tumor with a 1.2 cm greatest dimension ... Tumor was also present in 1 of 6 lymph ... I appreciate the NET Group postings ... diagnosis and learned a great deal about NET
@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...
https://connect.mayoclinic.org/comment/782731/
This is very typical of neuroendocrine ... tumors. ... for a number of years before their NETs ... is unfortunate but just recently, NETs ... to learn as much as possible about NETs
Welcome @grammabitz. You are understandably nervous. I'm tagging fellow members like @joannem @gaylejean @carcinoid23462 @char1962 @sophiarose...
https://connect.mayoclinic.org/comment/776338/
injection (octreotide) treatment for NETs ... In 2015 you were diagnosed with the neuroendocrine ... tumor in your intestines for which ... Was this tumor diagnosed to also be ... a neuroendocrine tumor?
Hi @sturns, welcome to the NETs group. Is that a picture of you surfing? The abbreviation...
https://connect.mayoclinic.org/comment/717233/
Hi @sturns, welcome to the NETs group ... used for primitive neuroectodermal tumor ... others use it to refer to pancreatic neuroendocrine ... tumors (pNET). ... Can you confirm what type of tumor you
Hello All: For those of you who have had surgery for NETs in the thoracic area...
https://connect.mayoclinic.org/comment/631580/
those of you who have had surgery for NETs ... such as thymic malignancies and lung neuroendocrine ... tumors — and genomic subsets of lung ... Padda also conducts research into tumor ... is a member of the North American Neuroendocrine
@debschmalbach As you probably know from living in New Mexico, we are quite underserved medically. My...
https://connect.mayoclinic.org/comment/1503833/
accepted there however, as my breast tumor ... is neuroendocrine and they do not specifically ... treat NETs in breast).
@ceefer Hi, how are you? I'm sorry to hear what you're going through. It might be...
https://connect.mayoclinic.org/comment/1498901/
be helpful to identify what type of neuroendocrine ... tumor (NET) it is. ... Some tumors, especially pancreatic ones ... My wife had a pancreatic NET that caused
Here is a very educational symposium on Saturday, Feb.14th in 2026. It's coming up on Zoom...
https://connect.mayoclinic.org/comment/1452893/
One of these Docs is my Neuroendocrine ... Tumor doctor. ... https://www.fredhutch.org/en/events/nets-patient-caregiver-education-symposium.html
@cyndiefromnc I appreciate you bringing this topic back to the forefront. Yes, I was a DES...
https://connect.mayoclinic.org/comment/1389765/
not gynecological), though, called NETs ... (neuroendocrine tumors). ... In addition to the NETs, I also have
Welcome, @suziktodd. You've received some supportive and helpful posts from members. I'd like to add my...
https://connect.mayoclinic.org/comment/1356215/
If seeing a NET specialist at Mayo Clinic ... monthly meetings led by a Mayo Clinic NETs ... - Neuroendocrine Tumor Support Group ... https://connect.mayoclinic.org/event/neuroendocrine-tumor-support-group-meeting-ne-fl-neuroendocrine-cancer-zebras
@cjval52 & chronisgirlie92: Neuroendocrine cancer small intestine with metastases in liver caused the digestive symptoms. Many...
https://connect.mayoclinic.org/comment/1347497/
@cjval52 & chronisgirlie92: Neuroendocrine ... monthly shot & surveillance from NET ... The GA PET scan tracts tumor growth ... for surgery - removing the offending NET ... primary tumor tissue.
I had a small nodule removed last year that was confirmed to be neuroendocrine lung net....
https://connect.mayoclinic.org/comment/1343726/
last year that was confirmed to be neuroendocrine ... lung net. ... surgery I was found to have 100s of tumors ... had a difficult time with the pleura nets
Hello @parker27, and welcome to the NETs support group on Mayo Connect. You are asking a...
https://connect.mayoclinic.org/comment/1308448/
Hello @parker27, and welcome to the NETs ... good question regarding how small NET ... tumors are found. ... As @fraaseo posted, NETs are often not ... fdg-pet-scan-vs-68ga-dotatate-pet-scan-for-neuroendocrine-cancer
I had sporadic diarrhea for quite a few years, the hot flashes pretty much started when...
https://connect.mayoclinic.org/comment/1295510/
started when I was diagnosed with NET ... ’s.. the tumors were discovered after ... Diverticulitis attack, My GI doctor noticed the tumors ... The results of the biopsy was neuroendocrine ... tumors..
Hello, my husband (55 years old) was diagnosed with grade 1 stage 4 (primary in small...
https://connect.mayoclinic.org/comment/1295494/
1 stage 4 (primary in small bowel) neuroendocrine ... tumor last year. ... definitely advise you to consult with a NET
This is the article I found and referenced. I don't know about the actual study. https://www.everydayhealth.com/gastroenteropancreatic-neuroendocrine-tumors-gep-nets/
https://connect.mayoclinic.org/comment/1290885/
www.everydayhealth.com/gastroenteropancreatic-neuroendocrine-tumors-gep-nets
In general terms it seems the slower your cancer grows, the less effective chemo would be....
https://connect.mayoclinic.org/comment/1290639/
Therefore, many NETs patients grade ... completely clear PET scan and still have Neuroendocrine ... It isn’t generally used for tumors that ... but for the more aggressive grade 3 tumors ... chemotherapy’s effectiveness in grade 3 tumors
First let me say I'm sorry you had to join this group. The good news is...
https://connect.mayoclinic.org/comment/1285920/
important first step is to find a NET ... There are net specialists in Norfolk ... opinion from another highly regarded net ... specialist to address the liver tumors ... Education
https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Hello @deltadawn and welcome to Mayo Connect. I see that you have posted about sinus cancer...
https://connect.mayoclinic.org/comment/1269423/
have posted about sinus cancer in the NETs ... (neuroendocrine tumors support group ... biopsy indicate that your cancer is a NET
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