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727 total results
Comments (703)
My husband is the one with PMR and GCA. Diagnosed with PMR May 2023, GCA Feb...
My husband is the one with PMR and GCA ... Diagnosed with PMR May 2023, GCA Feb ... down to 12.5 mg when he developed GCA ... He's also on Actemra injections ... I have no idea if his PMR or GCA is
You are my hero. I have tried to offer my suggestions to many taking Actemra or...
offer my suggestions to many taking Actemra ... Actemra works on the IL-6 same as Kevzara ... appears to have better results on GCA
Posted: May 25, 2024
@dadcue Wow!! You have been through it all!! That sounds awful! I will make sure that...
wide number of things because of the GCA ... and still taking Actemra? ... My husband is also on Actemra, down
@glinda47 Thank you! We got his inflammation levels back today (CRP and ESR) and they are...
been since he got PMR in May 2023 and GCA ... I feel the Actemra is helping him and ... And I really hope you don't get GCA ... even though he had PMR with all the GCA ... admitted his was the worse case of GCA
I'm doing monthly infusions of Actemra (tocilizumab) for refractory PMR. Actemra is FDA approved for GCA...
I'm doing monthly infusions of Actemra ... Actemra is FDA approved for GCA but ... Kevzara and Acterma are IL-6 inhibitors ... is the cytokine implicated in both GCA ... I have taken Actemra for more than 3
Posted: Apr 6, 2024
Actemra (tocilizumab) got me off prednisone. There was a waiver granted because of my "inability" to...
Actemra (tocilizumab) got me off prednisone ... Actemra was FDA approved for GCA at ... My rheumatologist thought Actemra &#34 ... #34;looking promising" for PMR/GCA ... I still do a monthly infusing of Actemra
Posted: Mar 13, 2024
When I was on Prednisone for my GCA, I split my daily dosage anyway I wanted...
When I was on Prednisone for my GCA, ... for 6 months prior to switching to Actemra ... Actemra worked fine for me for the 90 ... side effects, and it cleared up my GCA ... Once off the Actemra, my platelets went
Posted: Mar 3, 2024
I was told the same about taking more than one biologic --- no can do! Inflixamab,...
been shown to be efficacious for PMR/GCA ... ophthalmologist insisted on stopping Actemra ... I was reluctant to stop Actemra because
Nobody asked me when they crafted Medicare rules. I agree with you that it makes no...
denied my rheumatologist’s request for Actemra ... since I wasn’t diagnosed with GCA. ... Actemra isn’t FDA approved for PMR.
I was on 60 mg/day of Prednisone due to very high levels of inflammation due to...
inflammation due to PMR and/or non-cranial GCA ... I began weekly injections of Actemra ... physically obvious side effects of Actemra ... Overall, for me the side effects of Actemra ... told the main issue of concern with Actemra
Posted: Jan 20, 2024
It is interesting that you are off prednisone and your doctor is considering starting Actemra. I...
your doctor is considering starting Actemra ... I started Actemra 4 years ago for PMR ... Part of the criteria for getting Actemra ... My regret was that Actemra wasn' ... GCA.
Posted: Jan 1, 2024
I know how you feel and I resisted going to the VA after my military service....
Actemra changed everything for me. ... rheumatologist said I would only be able to get Actemra ... because I wasn't diagnosed with GCA ... Actemra has made a huge difference in
Posted: Dec 12, 2023
Thank-you for sharing this. I think the results of this study were published in 2016. That...
considered to be a breakthrough year for GCA ... I gave myself my 1st injection of Actemra ... My rheumatologist said Actemra was my ... There are some downsides to Actemra. ... I don't want to take Actemra forever
Posted: Dec 6, 2023
I hope Actemra works for you. Being optimistic is important I think. I lost all hope...
I hope Actemra works for you. ... the "only option" for PMR/GCA ... I reluctantly agreed to try Actemra ... My rheumatologist only said Actemra ... because of something unrelated to PMR/GCA
Discussion: GCA conserns
Posted: Nov 30, 2023
A biologic is a medication derived from living things. These things can be human but not...
I take Actemra (tocilizumab) for refractory ... My rheumatologist was excited about Actemra ... being FDA approved for GCA. ... He made sure I was willing to try Actemra ... had any serious side effects from Actemra
Posted: Nov 29, 2023
After the GCA diagnosis I started another prednisone taper and also started infusions of Actemra. I...
After the GCA diagnosis I started another ... taper and also started infusions of Actemra ... I have not had any GCA symptoms since
Posted: Nov 24, 2023