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372 total results
Comments (357)
I am 70 and was diagnosed in 2020. My CIDP neuropathy affects my right foot and...
I am 70 and was diagnosed in 2020. ... My CIDP neuropathy affects my right ... I am very fortunate that the CIDP has
Support Group: Autoimmune Diseases
Posted: Jul 25, 2024
@cyp238ress I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves...
things and treating what could be diagnosed ... cervical myelopathy injury (delayed diagnosis ... If CIDP is a possibility, you may need
Support Group: Spine Health
Posted: Jul 24, 2024
Hi again. Thanks for coming back to me. I’m sorry to learn how much this is...
had protein in my blood and I was diagnosed ... my symptoms could be due to that (CIDP
Support Group: Autoimmune Diseases
Posted: Jul 3, 2024
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
for over 20 years before seeking a diagnosis ... Even then after getting a diagnosis ... There are some discussions on CIDP along ... #39;s a link to the discussions on CIDP ... search=CIDP.
Support Group: Neuropathy
Posted: Jun 8, 2024
@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...
diseases are much more difficult to diagnose ... than others, CIDP being one. ... Luckily, yours has been diagnosed and ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... I was diagnosed 6 years ago with a different
Support Group: Autoimmune Diseases
Posted: May 10, 2024
I was diagnosed with CIDP last summer but have had symptoms for several years. I am...
I was diagnosed with CIDP last summer ... although it’s really more of a clinical diagnosis ... serum and spinal tap can help in the diagnosis ... Without the diagnosis, you won’t get
Support Group: Autoimmune Diseases
Posted: May 2, 2024
IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...
plasma exchange is the treatment for CIDP ... (the doctors) want to test me for CIDP ... Current diagnosis SFN, CAD (cardiac
Support Group: Neuropathy
Posted: May 1, 2024
Welcome @ariadnakushak, I think it may take more than one specific test to diagnose CIDP. Here...
take more than one specific test to diagnose ... CIDP. ... from Mayo Clinic on the topic. --- CIDP ... : New tests that help diagnose this ... /cidp-new-tests-that-help-diagnose-this-rare-condition
Support Group: Neuropathy
Posted: Apr 29, 2024
Why thank you for even noticing that Jennifer! Yes, when I see the neurologist I do...
All that was part of my CIDP diagnosis ... At the time I had a diagnosis of myofascial
Support Group: Spine Health
Posted: Mar 18, 2024
I have been bounced around from doctor to doctor and have had many tests for over...
Autoimmune diagnoses seem to still be ... The only diagnoses in the last 7 years ... closely at the potential for MS or CIDP
Support Group: Autoimmune Diseases
Posted: Mar 17, 2024
New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...
misdiagnosed in 2020 then properly diagnosed ... in 2021 CIDP/AMSAN. ... Much much rarer than CIDP alone.
Support Group: Autoimmune Diseases
Posted: Mar 16, 2024
@sb4ca Everything you have written about sounds like an autoimmune problem to me. Do you see...
second opinion from a neurosurgeon diagnosed ... originally interpreted the EMG/NCS results diagnosed ... can't say for sure that it is CIDP
Support Group: Spine Health
Posted: Mar 16, 2024