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372 total results
Comments (357)
sb4ca, I have all sorts of neuropathy, pins and needles, just about everywhere. But not my...
https://connect.mayoclinic.org/comment/1131471/
That one made me lol How were you diagnosed ... with CIDP?
I am 70 and was diagnosed in 2020. My CIDP neuropathy affects my right foot and...
https://connect.mayoclinic.org/comment/1111458/
I am 70 and was diagnosed in 2020. ... My CIDP neuropathy affects my right ... I am very fortunate that the CIDP has
@cyp238ress I would only consider surgery if you would be able to decompress spinal cord/nerve roots/nerves...
https://connect.mayoclinic.org/comment/1110835/
things and treating what could be diagnosed ... cervical myelopathy injury (delayed diagnosis ... If CIDP is a possibility, you may need
I also was unable to get an appointment at Mayo Jacksonville for dx of CIDP. I...
https://connect.mayoclinic.org/comment/1099608/
appointment at Mayo Jacksonville for dx of CIDP ... I now have a new and correct diagnosis
Hi again. Thanks for coming back to me. I’m sorry to learn how much this is...
https://connect.mayoclinic.org/comment/1098259/
had protein in my blood and I was diagnosed ... my symptoms could be due to
that (CIDP
I have been diagnosed with CIDP and have had numbness in lips and tongue. I also...
https://connect.mayoclinic.org/comment/1082874/
I have been diagnosed with CIDP and
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
https://connect.mayoclinic.org/comment/1082848/
for over 20 years before seeking a diagnosis ... Even then after getting a diagnosis ... There are some discussions on CIDP along ... #39;s a link to the discussions on CIDP ... search=CIDP.
@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...
https://connect.mayoclinic.org/comment/1065631/
diseases are much more difficult to diagnose ... than others, CIDP being one. ... Luckily, yours has been diagnosed and ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... I was diagnosed 6 years ago with a different
So I am newly diagnosed with CIDP (Mid March). I am going through IVIG. I'm struggling...
https://connect.mayoclinic.org/comment/1064239/
So I am newly diagnosed with CIDP (Mid
I was diagnosed with CIDP last summer but have had symptoms for several years. I am...
https://connect.mayoclinic.org/comment/1060891/
I was diagnosed with CIDP last summer ... although it’s really more of a clinical diagnosis ... serum and spinal tap can help in the diagnosis ... Without the diagnosis, you won’t get
IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...
https://connect.mayoclinic.org/comment/1060318/
plasma exchange is the treatment for CIDP ... (the doctors) want to test me for CIDP ... Current diagnosis
SFN, CAD (cardiac
Hello @blessed09, Welcome to Connect. You mentioned having the IVIG infusion treatments after being diagnosed with...
https://connect.mayoclinic.org/comment/1060144/
IVIG infusion treatments after being diagnosed ... multiple-sclerosis-ms-please-introduce-yourself/
--- CIDP
Welcome @ariadnakushak, I think it may take more than one specific test to diagnose CIDP. Here...
https://connect.mayoclinic.org/comment/1059358/
take more than one specific test to diagnose ... CIDP. ... from Mayo Clinic on the topic.
--- CIDP ... : New tests that help diagnose this ... /cidp-new-tests-that-help-diagnose-this-rare-condition
I can sympathize with you as I have pain everyday in my feet, and like you,...
https://connect.mayoclinic.org/comment/1056380/
I was diagnosed with CIDP several years
I’m 74 with CIDP reaching a severe level before diagnosis last August. You have an excellent...
https://connect.mayoclinic.org/comment/1050223/
I’m 74 with CIDP reaching a severe level ... before diagnosis last August.
Physical therapy is important with CIDP. I’ve had it every two weeks since I was diagnosed...
https://connect.mayoclinic.org/comment/1036793/
Physical therapy is important with CIDP ... had it every two weeks since I was diagnosed
Why thank you for even noticing that Jennifer! Yes, when I see the neurologist I do...
https://connect.mayoclinic.org/comment/1036180/
All that was part of my CIDP diagnosis ... At the time I had a diagnosis of myofascial
I have been bounced around from doctor to doctor and have had many tests for over...
https://connect.mayoclinic.org/comment/1034978/
Autoimmune diagnoses seem to still be ... The only diagnoses in the last 7 years ... closely at the potential for MS or CIDP
New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...
https://connect.mayoclinic.org/comment/1034714/
misdiagnosed in 2020 then properly diagnosed ... in 2021 CIDP/AMSAN. ... Much much rarer than CIDP alone.
@sb4ca Everything you have written about sounds like an autoimmune problem to me. Do you see...
https://connect.mayoclinic.org/comment/1034553/
second opinion from a neurosurgeon diagnosed ... originally interpreted the EMG/NCS results diagnosed ... can't say for sure that it is CIDP
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