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695 total results
Comments (663)
I started with Actemra injections 5 years ago and was later switched to infusions. I prefer...
https://connect.mayoclinic.org/comment/1195133/
have "subtle increases" in my pain ... level. ... complete relapse or a sudden flare of PMR ... PMR and some other autoimmune disorders
I was diagnosed with GCA in late June 2024. I had undiagnosed PMR for about a...
https://connect.mayoclinic.org/comment/1221493/
I had undiagnosed PMR for about a year ... I've been completely pain free since ... to 14 weeks to reach a consistent level
No ... DHEA wasn't recommended. I tried DHEA for a month on my own and stopped...
https://connect.mayoclinic.org/comment/1226780/
to stay on 3 mg until my cortisol level ... on 3 mg was because Actemra kept PMR ... second time, Actemra seems to keep PMR ... don't have a rapid increase in pain ... but my pain levels gradually increase
I had a cortisone injection in my spine a couple of months ago. The pain management...
https://connect.mayoclinic.org/comment/1230231/
Ever since I got PMR in 2021 I have ... as being at the L2-3 level and nerve ... roots from that level can cause anterior ... I had read that PMR can cause interspinous ... in PMR sufferers but I am quite sure
Welcome @euchrema20, You are not alone with the fatigue. It was with me often when my...
https://connect.mayoclinic.org/comment/1233009/
It was with me often when my PMR was ... When my PMR was active I definitely ... search=PMR+fatigue. ... Do you keep a daily log of your pain ... level and prednisone dose to help with
"I want her to consider Actemra for me. Based on posts in this group, I think...
https://connect.mayoclinic.org/comment/1203893/
Prednisone for 12 years.
2) My case of PMR ... and several medications for nerve pain ... Kevzara was FDA approved for PMR in ... Actemra "should work" for PMR ... An approval committee at the local level
Yes … I also needed to get down to 3 mg before my cortisol level was...
https://connect.mayoclinic.org/comment/1217476/
get down to 3 mg before my cortisol level ... It wasn’t just pain. ... my endocrinologist said my cortisol level ... again for other reasons not related to PMR ... convinced that Actemra worked for PMR
The Mass General normal ranges on my patient portal are : ESR- 0-30 mm/h and for...
https://connect.mayoclinic.org/comment/1219946/
her CRP was higher than my highest level ... with PMR ! ... was very aware of any headache or pain ... was having headaches and unusual pain
A couple of other discussions on CRP and SED rates that might be helpful: -- Ongoing...
https://connect.mayoclinic.org/comment/1219561/
that might be helpful:
-- Ongoing pain ... with normal CRP and ESR - PMR? ... connect.mayoclinic.org/discussion/ongoing-pain ... /
-- CRP and SED levels:
https://connect.mayoclinic.org ... /discussion/crp-and-sed-levels/
Whenever someone says back surgery that gets my attention. Why did you need that? That truly...
https://connect.mayoclinic.org/comment/1201136/
Sudden onset extreme back pain only ... I need a multi-level lumbar fusion the ... because Prednisone relieved all the pain ... inflammatory arthritis about 25 years before PMR
Hi, I was not on a GF diet before PMR, it was a mostly healthy Mediterranean...
https://connect.mayoclinic.org/comment/1192384/
Hi, I was not on a GF diet before PMR ... inflammation, if I slipped up the pain ... levels would increase. ... , my inflammation levels are still a ... Paracetamol for the occasional arthritis pain
How extraordinary your knee pain preceded your PMR diagnosis. I had a similar situation. I contracted...
https://connect.mayoclinic.org/comment/1192039/
How extraordinary your knee pain preceded ... Shortly after I began to experience knee pain ... and bilateral shin pain. ... not address the extremely high CRP level ... So yes, more than likely your knee pain
@nanniepie, @tuckerp and all... Well. welcome to reality and our new world of crazy medical surprises...
https://connect.mayoclinic.org/comment/1215538/
enjoying life at whatever stage or level ... They reduce pain greatly... give me ... PMR attacked me after I had a 2nd Covid ... O2 added for 3-4 days to keep my O2 level ... I was completely surprised by PMR, had
I was diagnosed with EGPA in February of 2024 after about 14 years of advancing symptoms...
https://connect.mayoclinic.org/comment/1217912/
intestinal issues, and finally chronic pain ... was at first misdiagnosed as having PMR ... , but after a month on inadequate levels
The medical mob now says the physiological dose is around 5mg (4-6) rather than the previous...
https://connect.mayoclinic.org/comment/1200532/
previous estimation of 7-8, but cortisol levels ... rather than pushing on and increasing pain ... And then there's seeing if the PMR ... independently determines our inflammation levels ... and adrenaline at constantly high levels
Actemra works well for PMR/GCA. What it doesn’t help with is adrenal insufficiency. My cortisol level...
https://connect.mayoclinic.org/comment/1221192/
Actemra works well for PMR/GCA. ... My cortisol level was checked at about ... My cortisol level was low so I needed ... hard to distinguish the aches and pains ... insufficiency and prednisone withdrawal from PMR
Other than an IL-6 level being interesting to know, I haven't had that level checked. I...
https://connect.mayoclinic.org/comment/1226858/
I would think an IL-6 level would be ... Kevzara for people newly diagnosed with PMR ... Otherwise, maybe the pain source isn ... conditions like fibromyalgia, where pain ... can be normal and you can still have PMR
One thing that helped me get through my 2 occurrences of PMR was to keep a...
https://connect.mayoclinic.org/comment/1233013/
me get through my 2 occurrences of PMR ... was to keep a daily log of my level ... of pain when I got up and the dose ... It also helped to note my level of activity ... play a part in getting through the PMR
I tried Methotrexate and reacted badly, extreme fatigue 24/7, basically couldn't get head off pillow, felt...
https://connect.mayoclinic.org/comment/1200395/
celiac disease which triggered the PMR ... months has made a big difference to my pain ... levels.
Thank you for this information. I have had PMR for 7 years and get to tapering...
https://connect.mayoclinic.org/comment/1211245/
I have had PMR for 7 years and get to ... My doctor is going to do a Cortisol level ... new as my body is beaten from the pain
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