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303 total results
Comments (287)
Hello @amandayounts14, Welcome to Connect. Thank you for sharing your experience with helping other patients. I...
opportunity and insight into how the treatments ... many different symptoms, causes and treatments ... There are some discussions on CIDP along ... #39;s a link to the discussions on CIDP ... search=CIDP.
Support Group: Neuropathy
Posted: Jun 8, 2024
@terriann I never heard about neuropsychiatric SLE/Lupus. I will talk to my new rheumatologist about this...
rheumatologist about this and also about CIDP ... help you get answers and options for treatment
Support Group: Autoimmune Diseases
Posted: May 20, 2024
I have tested positive for four years for the Epstein Barr virus. I am now being...
I am now being tested for CIDP. ... Treatment truthfully none. ... EMG/nerve conduction test for the CIDP ... inflammatory demylinating disease -CIDP
Support Group: Autoimmune Diseases
Posted: May 15, 2024
@church5x Welcome to Mayo Clinic Connect. I’m so glad you found us! Some autoimmune diseases are...
difficult to diagnose than others, CIDP ... been diagnosed and now you’re getting treatment ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy
Support Group: Autoimmune Diseases
Posted: May 10, 2024
So I am newly diagnosed with CIDP (Mid March). I am going through IVIG. I'm struggling...
So I am newly diagnosed with CIDP (Mid ... I am responding to the treatment and ... I feel yucky after treatments, head
IVIG therapy, steroids and immunotherapy, stem cell transplant along with plasma exchange is the treatment for...
along with plasma exchange is the treatment ... for CIDP according to the medical journal ... (the doctors) want to test me for CIDP
Support Group: Neuropathy
Posted: May 1, 2024
Hello @blessed09, Welcome to Connect. You mentioned having the IVIG infusion treatments after being diagnosed with...
mentioned having the IVIG infusion treatments ... multiple-sclerosis-ms-please-introduce-yourself/ --- CIDP ... Did you find that the IVIG infusion treatments
Support Group: Neuropathy
Posted: May 1, 2024
You are doing some good things for your health in general and that’s great. The CIDP...
The CIDP is autoimmune meaning your ... I hope the CIDP stays mild but at some ... point you may need treatment and I
Support Group: Autoimmune Diseases
Posted: Apr 11, 2024
@nurse49 Have you been tested for Chronic Inflammatory Demyelinating Polyradiculoneuropathy (CIDP)? It requires a spinal tap...
Demyelinating Polyradiculoneuropathy (CIDP ... my.clevelandclinic.org/health/diseases/cidp-chronic-inflammatory-demyelinating-polyneuropathy ... April and will ask to rule out MS and CIDP ... Good luck getting answers and treatment
Support Group: Autoimmune Diseases
Posted: Mar 28, 2024
Reading through some of these stories is very humbling. Unlike most of you, I'm extremely lucky...
inflammatory demyelinating polyneuropathy (CIDP ... Clinic to see if my methylprednisolone treatment ... Intravenous immunoglobulin is another treatment
Support Group: Neuropathy
Posted: Mar 19, 2024
New here and to the Mayo forum in general. I was first misdiagnosed in 2020 then...
2020 then properly diagnosed in 2021 CIDP ... Much much rarer than CIDP alone. ... The treatments have given me a life ... bureaucratitic problem I went without treatment
Support Group: Autoimmune Diseases
Posted: Mar 16, 2024
Hi, I have a neuromuscular doctor. I had nerve conduction studies. All four extremities were tested...
the one who asked me if I’d heard of CIDP ... symptom” that needs a dx to get proper treatment ... Is or can CIDP (poly radiculopathy)
Support Group: Autoimmune Diseases
Posted: Feb 23, 2024
I have a variant of CIDP and was getting IVIG infusions. They seemed to slow the...
I have a variant of CIDP and was getting ... standards and I no longer qualify for the treatments ... New treatments...symptom management?
Support Group: Autoimmune Diseases
Posted: Jul 10, 2023