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984 total results
Comments (955)
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... discontinue Prednisone, even with the Acterma ... GCA/PMR is a stubborn disorder that
I stopped eating almost everything because of my weight gain while on Prednisone. Exercise during PMR...
Exercise during PMR was nearly impossible ... To be honest, I don't think Actemra ... Actemra just seems better to me than ... I really don't want to be on Actemra
Posted: Sep 26, 2024
C-reactive protein (CRP) and erythrocyte sedimentation rate (ESR) levels are "monitored" when a person is on...
monitored" when a person is on Actemra ... When a person is on Actemra a doctor ... When I didn't have an Actemra infusion ... disease activity" for people with PMR ... Some people have active symptoms of PMR
Posted: Sep 20, 2024
If I'm not mistaken, I think @redboat had insurance with Kaiser Permanente. I know for sure...
I know for sure his case of PMR was ... He was on Actemra and had a good initial ... I have been on Actemra for more than ... #39;m getting nervous about being on Actemra ... I had a small copay when I did Actemra
Posted: Aug 30, 2024
"I hate to say this - my endocrinologist said I didn't need to taper prednisone from...
probably worked for uveitis but my PMR ... on 15 mg of Prednisone again until Actemra ... to zero in 3 months the second time Actemra
Posted: Aug 30, 2024
@sandiw77 Hello Sandi, I’m on hold at the moment because of other health issues I’m having...
m having but my doctor wants me on Actemra ... Since getting PMR it has been difficult ... on 7.5 mg until I finally start my Actemra—he ... posted on how you are doing on the Actemra
Posted: Aug 29, 2024
I have never had IL-6 testing done. It does seem like it could be a useful...
of information if a doctor suspects PMR ... considers a biologic like Kevzara or Actemra ... asked my rheumatologist why he thought Actemra ... "Key hallmarks associated with PMR ... https://www.pmrandil6.com/il-6-and-pmr
Posted: Aug 28, 2024
Sometimes I'm reluctant to say which biologic because tapering off prednisone wasn't simply a matter of...
The problem was my diagnosis was PMR ... would work for PMR. ... work for PMR but might not work for ... PMR. ... treat PMR.
Posted: Aug 27, 2024
Here are some of the problems I have heard. Just my opinion. MTX is drug that...
have said it doesnt work to stop the PMR ... newer biologics are aimed more at PMR ... Kevzara and Actemra. ... which has been shown to be active in PMR
Posted: Aug 21, 2024
I have severe spinal stenosis that was discovered while I was being treated with Prednisone for...
being treated with Prednisone for PMR ... shouldn't be treated the same as a PMR ... Actemra is now controlling my inflammation ... but Actemra can be stopped for the
"I had been able to reduce to 5mg a day and still have reasonable comfort, trying...
had a refractory/relapsing type of PMR ... Also, my PMR was probably "steroid ... intermittently for 20 years before PMR ... A biologic called Acterma (tocilizumab ... treatment patterns of people with PMR
Posted: Aug 18, 2024
PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...
PMR was my primary diagnosis and I was ... intermittently for 20 years prior to PMR ... Many times PMR flared again at 7 mg ... My PMR was said to be refractory but ... the same for PMR.
Posted: Aug 17, 2024
"What was the turning point that made you use a biologic?" I didn't want to take...
" I didn't want to take Actemra ... rheumatologist thought I needed prednisone for PMR ... FDA approved for GCA but not PMR. ... I only tried Actemra to "get it ... When Actemra worked ...
Posted: Aug 5, 2024
Thank you for suggesting the utube talk…it was very informative and really helped me believe in...
feel my pain is coming from and how PMR ... effects my body ….it puts in place PMR ... so I’m hopeful that now I’m taking Actemra
Methotrexate is an older conventional medication that is frequently used by rheumatologists for many autoimmune conditions....
only recently been shown to work for PMR ... rheumatologist felt that it should work for PMR ... sarilumab) was recently FDA approved for PMR ... I was taking Prednisone for PMR for ... treated with Prednisone for 12 years, PMR
Posted: Aug 2, 2024
Prednisone reduces inflammation levels whenever we take it. However, prednisone doesn't stay in the body very...
Basically, I think Actemra reset my ... Actemra seems to be blocking the excess ... inflammation caused by PMR but when ... A monthly infusion of Actemra works ... I am just grateful Actemra seems to
My mantra is there isn't any "best way" to taper off Prednisone. There are some guidelines...
introduced another variable called Actemra ... my rheumatologist wanted me to try Actemra ... were still there so Actemra was stopped ... I wanted to go back on Actemra to treat ... After Actemra was restarted for PMR,
Posted: Jun 25, 2024