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2,273 total results
Comments (2,167)
Hi @rocjr1, Welcome to Connect. I think it's always a good plan to discuss options with...
off prednisone. ... PMR can be challenging for doctors as ... that you were just diagnosed with PMR ... currently at 17.5 mg prednisone with ... My PMR is currently in remission.
Posted: Jan 30 8:59am
@beaver, and all...I'm so sorry you've had a relapse! No fun! Yucky situation...I sent a message...
and a Folate supplement with 10mg Prednisone ... This is designed to reduce the PMR, ... assists the steroid and allows us to taper ... the steroid intake...I've taken Prednisone
Support Group: Autoimmune Diseases
Posted: Feb 1 10:51am
Humira is a TNF inhibitor which isn't likely to help PMR. My experience with Humira was...
inhibitor which isn't likely to help PMR ... I was able to successfully taper off ... Soon after I tapered off prednisone ... While on Humira, I wasn't able to taper ... off prednisone again because PMR pain
Posted: Feb 1 9:44pm
"I do a split dose and have been holding the morning to 10 mg and tapering...
been holding the morning to 10 mg and tapering ... 2023 , had to be bumped up to 30 mg Prednisone ... , tapering 2.5mg/month till reaching ... muskoskeletal manifestations in PMR
Posted: Oct 24, 2023
A low dose of prednisone seems to help many people since they seem to stay on...
hundreds of my failed attempts to taper ... I don't think I was tapering too ... the addition of Actemra which kept PMR ... Prednisone won't get rid of PMR ... Actemra seems to cause PMR to go into
Posted: Jan 24 9:44am
Hi @ccarrasca, Welcome to Connect. 8 years is a long time for an occurrence of PMR....
is a long time for an occurrence of PMR ... lasted 3 and half years before I could taper ... off of prednisone and then it returned ... and it took me 1 and a half years to taper ... Both times I was started with 20 mg prednisone
One would hope PMR patients of the future will have better options than prednisone. I took...
One would hope PMR patients of the future ... for PMR and never could taper off. ... the only option for PMR and GCA. ... I was able to taper off prednisone in ... getting Actemra approved for me to treat PMR
Posted: Jul 9, 2023
Thanks, this is very helpful. You mentioned that Actemra can be stopped at any time (unlike...
can be stopped at any time (unlike Prednisone ... Actemra would increase the risk of a PMR ... Otherwise it would have no advantage over tapering ... Prednisone alone.
Posted: Jul 1, 2023
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
working well for me, and had helped me tapered ... down to 8 mg/day of Prednisone. ... Assuming no relapses, I should be off Prednisone ... My sleep returned once the Prednisone ... My blood tests are very near my pre-PMR
Posted: Jul 6, 2023
That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...
before Kevzara was FDA approved for PMR ... PMR flares haven't happened as long ... I was just fortunate to be able to taper ... 12 years to treat PMR. ... I had to taper down to 3 mg of prednisone
Posted: Jun 28, 2023
Someone else posted this article not too long ago. https://connect.mayoclinic.org/discussion/safe-dose-and-tapering-on-glucocorticoid-therapy/?pg=1#comment-1020760 I guess everyone was speechless or...
't anything she could do until PMR ... When Actemra prevented PMR flares, I ... was able to taper down to 3 mg. ... nearly an entire year to completely taper ... I was able to taper off prednisone but
Discussion: Synacthen Test
Posted: Feb 26 8:18am
@vellen I'm guessing 2 weeks was too soon to taper down. I've had 2 occurrences of...
I've had 2 occurrences of PMR and ... I was started on 20 mg prednisone for ... the morning along with my dose of prednisone ... and 1-1/2 years the second time with PMR ... a prescription for 1 mg and 2.5 mg prednisone
Posted: Jun 24, 2023
Thank-you but when I looked to find information I found the following: "What Is Not Eligible...
to take daily for PMR. ... and encouraged me to keep trying to taper ... that was recently FDA approved for PMR ... been tried sooner because it made tapering ... who thought Actemra should work for PMR
Posted: May 30, 2023
Hello All -- the official publication of the ACR is the "Rheumatologist" and has very recent...
to me on page two is this rapid taper ... as requiring high prednisone doses. ... treated with at least 15 milligrams of prednisone ... patients should ideally be tapered ... well my current trajectory is zero Prednsone
Hi; the Wilmingtonemperor here. I was diagnosed nearly a year ago with PMR. The highest dose...
was diagnosed nearly a year ago with PMR ... I was put on a 12 week taper when I ... I tapered down to 2.5 as my Kevzara ... I do not expect a flare since prednisone ... PMR is chronic. Good luck
Every bottle of melatonin I ever purchased had a warning not to use if you have...
PMR and GCA are autoimmune disorders ... On 40 mg of prednisone to treat GCA, ... As I tapered prednisone down to 10 mg
Posted: Feb 1 3:19pm
Hello @bhadfield, Welcome to Connect. I'm sorry to hear you had a bad flare up of...
If the prednisone helped with the symptoms ... , I wonder if you might be tapering ... issue with polymyalgia rheumatica (PMR ... ) when tapering off of prednisone too ... talked with your doctor about a slower tapering
Posted: Jul 16, 2023
I am so grateful to find this meeting place. I don't know anyone with PMR and...
I don't know anyone with PMR and ... I have been o Prednisone ever since ... and my rheumatologist is having me taper ... ....as in.."will I ever get of Prednisone
Hello. And thanks for sharing the knowledge and perspective from your experience with tapering prednisone. Next...
perspective from your experience with tapering ... prednisone. ... month will be one year for me with PMR
Discussion: PMR Taper and pain
Posted: Jan 15 8:44am