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548 total results
Comments (480)
Hello @jrsklms, I'm happy to see that @sbee, posted about EMR. I had an EMR in...
https://connect.mayoclinic.org/comment/128543/
My tumor was in the duodenal bulb, also ... very flat, and it was a neuroendocrine ... tumor NET (also called carcinoid).
Here is a link from the Carcinoid Cancer Foundation about 10 Highlights of the Year 2014...
https://connect.mayoclinic.org/comment/127203/
the Year 2014 for the Carcinoid and Neuroendocrine ... Tumor Community
http://www.carcinoid.org ... highlights-of-the-year-2014-for-the-carcinoid-and-neuroendocrine-tumor-community ... Tumors
4) Bringing the Promising Field ... of Immunotherapy to NETs
Using key
@dadcue Hello Mike, I appreciate your post with updates based on your Dotatate Scan. I'm sure...
https://connect.mayoclinic.org/comment/1540099/
facility, here is a link from the Neuroendocrine ... Tumor Research Foundation with a listing ... /for-patients/neuroendocrine-tumor-doctor-database ... Tumor Research Foundation website, ... www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors
@momo5512: Take a deep breath for you need to first hear that Neuroendocrine Carcinoid Tumors are...
https://connect.mayoclinic.org/comment/1547388/
breath for you need to first hear that Neuroendocrine ... Carcinoid Tumors are usually very slow ... yourself by reading the posts on this Neuroendocrine ... We NET patients are all different in ... be able to absorb the guidance your NET
@amygirl: If you have a NET diagnosis and biopsy has revealed K67 stain “Stage & Grade”,...
https://connect.mayoclinic.org/comment/1380196/
@amygirl: If you have a NET diagnosis ... from a treatment consultation from a NET ... NET cancer has drastically different ... need to be proactive with controlling tumor ... YOU are not alone on this road of Neuroendocrine
I was not having symptoms, except extreme fatigue. I have to get my esophagus stretched because...
https://connect.mayoclinic.org/comment/1072630/
what it said "well-differentiated neuroendocrine ... tumor, Grade II". ... from the second EGD was clear - no NET
I did 5 year watch on my lung nodules. then accidentally with through CAT scan two...
https://connect.mayoclinic.org/comment/1057169/
biopsy both lung nodules and yes it was neuroendocrine ... tumor/carcinoid, NETS, for short. ... the time will find any other active NETS ... It is l feel helpful to know my NETs ... be on the safe side, also to find a NET
Neuroendocrine tumor. When I was diagnosed in 2018, they were still referred to as carcinoid tumors,...
https://connect.mayoclinic.org/comment/1055305/
Neuroendocrine tumor. ... were still referred to as carcinoid tumors ... since been put in a larger category of neuroendocrine ... , or NETS.
Allow me to be the acronym buster for this discussion: - SSA = Somatostatin analogue https://www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets/treatment/somatostatin-analogues/what-are...
https://connect.mayoclinic.org/comment/1001311/
www.cancerresearchuk.org/about-cancer/neuroendocrine-tumours-nets ... octreotide and lanreotide
- NELM = neuroendocrine
Hi @deborahmontana I had bilateral total mastectomies (not radical thankfully, not skin or nipple sparing as...
https://connect.mayoclinic.org/comment/963444/
I wonder if reaching to the new tumor ... Your original tumor was larger than ... My small 7 mm tumor was caught in an ... in 2008) from neuroendocrine lung cancer ... among all the lung NETs?
I recommend getting another opinion with a doctor that is familiar with NETS. A NET specialist...
https://connect.mayoclinic.org/comment/957774/
with a doctor that is familiar with NETS ... A NET specialist would be even better ... Since a NETS diagnosis is considered ... You can check out the Neuroendocrine ... Tumors Support Group discussions area
New to this forum. Had total bowel blockage which was found to have been caused by...
https://connect.mayoclinic.org/comment/894648/
which was found to have been caused by NET ... Official language:Metastatic Carcinoma/tumor ... with Neuroendocrine Features. ... Partially removed that tumor, but also ... found NET in lymph nodes and around
Hi Jane @gram26 I would agree with Theresa to check out all the DIPNECH comments on...
https://connect.mayoclinic.org/comment/882190/
Diagnosed as DIPNECH and Lung NETS ( ... As far as we know, my lung NETS is still ... or lung NETS (neuroendocrine cancer ... More NETS patients do have the receptors ... No one even guessed DIPNECH or lung NETS
Digestion issues are different for everyone. I had about a yard of small intestine removed and...
https://connect.mayoclinic.org/comment/879118/
yard of small intestine removed and NETs ... There are about a dozen small NETS in ... one is from another medication for NET ... those to avoid:
Eating Right with a Neuroendocrine ... Tumor (NET) (netrf.org)
I like the idea of one class! My daughter & I work together professionally as an...
https://connect.mayoclinic.org/comment/859863/
have an unusual prognosis in that neuroendocrine ... tumors in the breast have a very poor ... The tumor is HER2 but the NET characteristics
Hi @paula7, I added your question and discussion to the Gynecological Cancers support group as well....
https://connect.mayoclinic.org/comment/836133/
@maria957 has a friend with neuroendocrine ... experiences cervical involvement with her NETs ... While neuroendocrine carcinoma of the ... Paula, that is so encouraging that the tumor
Hi All, I have not been a member of the group for very long. My husband's...
https://connect.mayoclinic.org/comment/805330/
the long march toward understanding NETs ... also an IPMN hanging out with the neuroendocrine ... tumor. ... I encourage everyone to find a NET specialist
Welcome, @dianamontsno. There are different tests used in the diagnosis of NETs. I moved your message...
https://connect.mayoclinic.org/comment/804457/
different tests used in the diagnosis of NETs ... message to this existing discussion:
- Neuroendocrine ... tumor: What tests are used for diagnosis ... /connect.mayoclinic.org/discussion/neuroendocrin-tumor ... currently in the diagnostic stage of NETs
Greetings....I am still standing and living a normal life at 85 with my disease in the...
https://connect.mayoclinic.org/comment/801669/
Low dose radiation to lung tumors about ... There are now many experts on NETS throughout ... https://ronnyallan.net/2023/01/22/neuroendocrine-tumors-are-uncommon-but-definitely-not-rare
I have not had chemo - PRRT (Peptide Receptor Radionuclide Therapy) is NOT chemo. It is...
https://connect.mayoclinic.org/comment/799329/
binds to somatostatin receptors on neuroendocrine ... tumors, straight to the tumor via an ... radio peptide travels to and binds to neuroendocrine ... tumor cells, delivering a targeted ... NETS are very rare so it is important
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