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Comments (2,757)
I have had PMR for over a year. My markers are high but still negative. I...
https://connect.mayoclinic.org/comment/1042734/
I have had PMR for over a year. ... Going up to 25mg of Prednisone and slowing ... sulfaSALAzine 2 tablets twice a day while tapering ... down on the Prednisone.
Welcome @veronicamac, Sorry to hear that you have been struggling for 9 years with PMR. When...
https://connect.mayoclinic.org/comment/1041733/
have been struggling for 9 years with PMR ... time you reduce down to 2.5 mg of prednisone ... the PMR flares up and you have to increase ... I'm wondering how much you are tapering ... may be that it's too large of a taper
Am also taking risendronate weekly for past 2 years with no side effects. Took prednisone for...
https://connect.mayoclinic.org/comment/1041339/
Took prednisone for 14 months for PMR ... Had flare up of PMR late January so ... back on Prednisone in Feb and now tapering
"Would you mind sharing what medication you took to take off the Prednisone? Do you still...
https://connect.mayoclinic.org/comment/1040764/
Is your PMR gone? ... Without all the details I will say tapering ... hope that I would ever be able to taper ... I was afraid to taper any lower because ... it was clear I would not be able to taper
It saddens me to hear that people went through the same trauma as me. I too...
https://connect.mayoclinic.org/comment/1038348/
So he suspected PMR, so put me on prednisone ... rheumatologist thought I didn't have PMR ... so tapered me off the prednisone- big ... only after i began reading about the PMR
Welcome @ddonnagirl1, You are spot on, movement is critical with PMR. I wake up with some...
https://connect.mayoclinic.org/comment/1036397/
spot on, movement is critical with PMR ... #39;m really old and thankfully my PMR ... and I used a daily pain log when tapering ... down on prednisone and also found that ... How long have you had PMR?
Hello @dj13, I would like to add my welcome to Connect along with @dadcue and others....
https://connect.mayoclinic.org/comment/1035211/
I was started on 20 mg prednisone also ... I floundered some tapering down with ... prednisone but my rheumatologist told ... of 1 to 10 along with my dosage of prednisone ... years to taper off of prednisone with
Welcome to the forum. You might be one of the many people who have problems when...
https://connect.mayoclinic.org/comment/1035177/
when they approach the 7 mg dose of prednisone ... only person that has problems as you taper ... For me it wasn't only a PMR problem ... You may want to try tapering by .5 mg ... when we get into single digits of prednisone
Yikes. I’m sorry to hear this, but glad it sounds like you’re on the mend. Hopefully...
https://connect.mayoclinic.org/comment/1034898/
make me very nervous too… I thought prednisone ... almost always had to be tapered, but ... and PMR specifically, and then ask ... they’re not aware of how debilitating PMR ... can be and how prednisone is tapered
Hi @deborah57, I had PMR for a year, undiagnosed, pain on a scale of 10 out...
https://connect.mayoclinic.org/comment/1029374/
Hi @deborah57, I had PMR for a year, ... and tapered every two weeks. ... PMR and GCA made me anorexic and I lost ... My rheumatologist advised me on the taper ... My taper went well and I was off prednisone
@cropdoc, @emo, @ae2024, and all... YES! ITS AWFUL! Since Covid last July and again in November,...
https://connect.mayoclinic.org/comment/1026834/
methatrexate 7.5 mg once weekly and 10mg Prednisone ... for PMR, GCA, and Sarcoidosis flares ... The PMR and GCA are residual from Covid ... believe she will help with sweating, PMR ... On paper towels to wipe my face and
To update: I had to stop the kevzara due to allergic reactions at the injection site...
https://connect.mayoclinic.org/comment/1026705/
looked great levels low and I was 3/4mg prednisone ... on my taper when stopping. ... I continue to attempt the taper and ... hope to get off prednisone someday! ... Hopefully research will expand for PMR
@nyxygirl. I did not split my doses. I took the dose for that day the same...
https://connect.mayoclinic.org/comment/1023151/
my Internist was very familiar with PMR ... started with an aggressive dose of prednisone ... for about 12 days, she smacked PMR ... right off the bat, and I think my taper
Someone else posted this article not too long ago. https://connect.mayoclinic.org/discussion/safe-dose-and-tapering-on-glucocorticoid-therapy/?pg=1#comment-1020760 I guess everyone was speechless or...
https://connect.mayoclinic.org/comment/1022858/
't anything she could do until PMR ... When Actemra prevented PMR flares, I ... was able to taper down to 3 mg. ... nearly an entire year to completely taper ... I was able to taper off prednisone but
The following link spells it out. However, there is considerable controversy about what the "best way"...
https://connect.mayoclinic.org/comment/1022518/
patients seemed to achieve remission of PMR ... A slow tapering of the prednisone, less ... Once prednisone is tapered to 10 mg/ ... day, a further slow taper by 1 mg every ... for PMR, there are no magic ways that
Humira is a TNF inhibitor which isn't likely to help PMR. My experience with Humira was...
https://connect.mayoclinic.org/comment/1008061/
inhibitor which isn't likely to help PMR ... I was able to successfully taper off ... Soon after I tapered off prednisone ... While on Humira, I wasn't able to taper ... off prednisone again because PMR pain
Every bottle of melatonin I ever purchased had a warning not to use if you have...
https://connect.mayoclinic.org/comment/1007936/
PMR and GCA are autoimmune disorders ... On 40 mg of prednisone to treat GCA, ... As I tapered prednisone down to 10 mg
@beaver, and all...I'm so sorry you've had a relapse! No fun! Yucky situation...I sent a message...
https://connect.mayoclinic.org/comment/1007795/
and a Folate supplement with 10mg Prednisone ... This is designed to reduce the PMR, ... assists the steroid and allows us to taper ... the steroid intake...I've taken Prednisone
Hi @rocjr1, Welcome to Connect. I think it's always a good plan to discuss options with...
https://connect.mayoclinic.org/comment/1006416/
off prednisone. ... PMR can be challenging for doctors as ... that you were just diagnosed with PMR ... currently at 17.5 mg prednisone with ... My PMR is currently in remission.
Hi Bev I had PMR and subsequently GCA going back to 2013. I am still on...
https://connect.mayoclinic.org/comment/1004361/
Hi Bev
I had PMR and subsequently GCA ... I am still on prednisone 7 mg for my ... have the results of long-term use of prednisone ... Although prednisone is a lifesaver, ... to my skin, which is now like crêpe paper
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