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548 total results
Comments (480)
Hi, my lung nodule was found incidentally. I had a benign lipoma removed from my abdomen,...
Biopsy came back as Neuroendocrine tumor ... new oncologist specialized in all NETS ... She said my tumor is grade 2, stage
@meleelee1, it sounds like you might consider getting a second opinion with a NETs specialist. Sometimes...
consider getting a second opinion with a NETs ... very small, low grade, pancreatic neuroendocrine ... tumors, waiting may be an option. ... tumors care at Mayo Clinic https:// ... www.mayoclinic.org/diseases-conditions/pancreatic-neuroendocrine-tumors
Posted: Feb 21, 2023
Welcome @tufan, I'm sorry to hear that treatment thus far has not slowed the progression of...
not slowed the progression of the neuroendocrine ... tumor of the lung. ... discussions: - Typical Carcinoid Tumor ... not-sure-if-i-am-in-the-right-place/ - NETs ... /connect.mayoclinic.org/discussion/net-liver-debulking
Hi @reallywells Although CgA is the most widely used tumor marker in patients with a suspected...
patients with a suspected or confirmed neuroendocrine ... range of health conditions other than neuroendocrine ... tumors. ... As a result, CgA testing for neuroendocrine ... that shows signs of a NET when a person
Posted: Dec 11, 2022
Hello @carrie55 and welcome to Connect. I'm sorry to hear of this new diagnosis and the...
From my understanding, NETs and Neuroendocrine ... best way to determine the presence of NETs ... if you would be able to contact a NET ... website offers a world-wide listing of NET ... a liver embolization to lessen the tumor
Posted: Sep 23, 2022
Hi Lenora, I am the leader of The Wisconsin Neuroendocrine Cancer Connection, a group of 163...
, I am the leader of The Wisconsin Neuroendocrine ... of 163 and growing people who have Neuroendocrine ... My wife was DX with NETs in April 2015 ... Halfdanarson who is a NETs specialist ... is to control growth of the liver tumors
Posted: Jan 7, 2022
Hello @kate12345 and welcome to Mayo Clinic Connect. While I'm sorry to hear of your diagnosis...
of your diagnosis of a Pancreatic NET ... looking for support groups by googling NETs ... i-have-recently-been-diagnosed-with-my-third-neuroendocrine-tumor-has-anyone ... are some other links to Pancreatic NETs ... Here is a listing of NET specialists
Posted: Dec 24, 2021
@rababkoepp I also had invasive ductal breast cancer, but in addition had a secondary tumor that...
cancer, but in addition had a secondary tumor ... that is neuroendocrine cancer. ... due to the aggressive nature of the NET
Support Group: Breast Cancer
Posted: Mar 18, 2021
Hi @tlambeth70. Welcome to Mayo Connect. As @dbamos1945 suggested, here is the link to find a...
suggested, here is the link to find a NETs ... find-a-doctor/ I have a pancreatic neuroendocrine ... tumor that has spread primarily to ... Being treated by a NET specialist is
Posted: Feb 16 9:52am
@colleenyoung – After my husband’s colon removal surgery, three of his tumors were biopsied with the...
colon removal surgery, three of his tumors ... following results: 1) NEC, 2) MiNEN (mixed neuroendocrine ... and non-neuroendocrine), and 3) Adenocarcinoma ... informed that the mixed NE & non-NE tumor ... present in his liver, but we suspect NET
Manabearpr71: NRT? Are you referring to NET cancer? If your daughter gets Pathologist’s biopsy results identifying...
Are you referring to NET cancer? ... Pathologist’s biopsy results identifying Neuroendocrine ... Carcinoid Tumor she will have the specifics ... tumor (location & size) and hopefully ... help control symptoms and perhaps tumor
@nannybb I always had asthma when I was sick or exposed to many animals. Then in...
The CT/PET scan showed most lung tumors ... They wanted to know if the lung tumors ... baffled why no one else had so many tumors ... DIPNECH is multiple benign neuroendocrine ... tumors that can turn into lung NETs
Posted: Nov 6, 2025
@jessie1990 Hello Ireland. I just googled and found this: Yes, Ireland has neuroendocrine tumor (NET) specialists...
and found this: Yes, Ireland has neuroendocrine ... tumor (NET) specialists through a national ... The National Centre for Neuroendocrine ... Tumours is located at St. ... How to access: If a NET is suspected
Posted: Oct 31, 2025
Hello @grandfather2, and welcome to the NETs support group on Mayo Clinic Connect. It sounds like...
@grandfather2, and welcome to the NETs ... It sounds like this neuroendocrine tumor ... connect.mayoclinic.org/discussion/any-one-with-neuroendocrine-tumors-getting-the-shot-once-a-month ... Here is a link to another NETs discussion ... /connect.mayoclinic.org/discussion/neuroendocrine-carcinoma
@panorman3: I hope your Oncologist has some experience with Neuroendocrine Carcinoid Cancer due to NET tumors...
Oncologist has some experience with Neuroendocrine ... Carcinoid Cancer due to NET tumors ... I urge you to research NET disease and ... Many of our tumors are slow growing ... Opinion from a specialist in your NET
@flowerpower: Hi there! My diagnosis is like @vinnie694 at about the same time, so won’t repeat...
Our type of NET cancer is different ... we usually have very slow growing tumors ... that shrink and control growth of tumors ... more you research and learn about Neuroendocrine ... Tumor Carcinoid cancer (NET/NEC) the
Posted: Aug 12, 2025