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Comments (480)
@westwind Thanks for providing more information. While I'm not a medical expert, my impression is that...
However, since I've had a history of neuroendocrine ... tumors (NET) in the duodenum, I was ... however, the procedure did reveal a new NET ... As these NETs are best if found early
Discussion: Internal Cysts
Support Group: Just Want to Talk
Posted: Jul 23, 2016
What exciting news Teresa. I found some further information for Ga-68 or Gallium-68. From the Carcinoid...
Unique Opportunity for Carcinoid & NET ... nih-clinical-trial-unique-opportunity-for-carcinoid-net-cancer-state-of-the-art-scan ... 68Gallium-DOTATATE PET/CT for Detecting Neuroendocrine ... Tumors https://clinicaltrials.gov/ct2
Posted: Jul 11, 2016
Hello @mgreene and others in this group who are interested in information about the different tests...
that are used for surveillance for NETs ... Clinical Management in Patients with Neuroendocrine ... for patients: – Imaging Tests for Neuroendocrine ... /nets-info/diagnostic-tests-for-neuroendocrine-cancer ... Some NET tumors may not have enough
Posted: Mar 2, 2020
I agree that you need to see a net specialist. The fact that your doctor doesnt...
I agree that you need to see a net specialist ... at https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
@kaiulani: I’m sorry to hear you have had such reaction to your Lutathera PRRT 4 session...
PRRT 4 session cancer treatment for Neuroendocrine ... I had this treatment for my NET in 2024 ... much success in controlling your tumor ... and perhaps killing off those nasty tumors ... you go through the challenges our NET
Hello @dak10, I so appreciate hearing from you again with some more information on your journey...
more information on your journey with NETs ... common reaction to a diagnosis of NETs ... discussions: – Typical Carcinoid Tumor ... connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs ... 'm in the right place: Stage 4 Neuroendocrine
@jessicamc- I'm unsure if you received my message as my computer acted up when I hit...
www.mayoclinic.org/diseases-conditions/neuroendocrine-tumors ... www.netcancerawareness.org/what-is-net-cancer
Support Group: Lung Cancer
Posted: Dec 15, 2023
Hello @devil4ever and welcome to Mayo Connect. It is great that you are seeking more information...
I see that you posted in the Neuroendocrine ... Tumors (NET) support group. ... is a neuroendocrine tumor? ... rare (although not impossible) for a NET ... as a NET, you might want to post your
Support Group: Thyroid Cancer
Posted: Nov 21, 2023
Welcome, @wanimdee. I moved your question about duodenum NETs to this existing discussion: - Recently Diagnosed...
moved your question about duodenum NETs ... - Recently Diagnosed with Duodenal Neuroendocrine ... Tumor Grade 1 https://connect.mayoclinic.org ... discussion/recently-diagnosed-with-duodenal-neuroendocrine-tumor-grade ... tumors.
Hello @racb I see that I am coming in a bit late to this discussion you...
let you know the Ki-67 value of the tumor ... that it provides, https://www.cancer.net ... /cancer-types/neuroendocrine-tumors/ ... was not tested for on the original tumor ... after the fact on the slides when the tumor
Hi--glad to answer. My cancer situation is confusing. I have a rare neuroendocrine tumor in my...
I have a rare neuroendocrine tumor in ... stats for if any of this works for a NET ... have consulted with two different NET ... all because of the location of the NET ... have never even seen this kind of tumor
Support Group: Just Want to Talk
Posted: Sep 9, 2023
Hi Teresa. Thanks for the nice welcome! As a result of elevated Alk P in my...
diagnosed with Stage Four, Grade Three NETs ... Mayo and had a PET/MR and met with a Neuroendocrine ... clearly the extent and progress of the NETs ... My tumors did not have the right receptors ... I have the breast tumor, lots of NETs
Posted: Aug 3, 2023
Hi mgb20, following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1,...
2022 I had the surgical removal of a neuroendocrine ... tumor in the small bowel. ... surgeon removed a well-differentiated neuroendocrine ... Tumor was also present in 1 of 6 lymph ... group will hopefully reassure you that NET
Welcome, @sandip. I moved your message to this existing discussion: - Neuroendocrine tumor in small bowel...
message to this existing discussion: - Neuroendocrine ... tumor in small bowel with lymph nodes ... /connect.mayoclinic.org/discussion/neuroendocrine-tumor-in-small-bowel-with-lymph-nodes-involved ... connect easily with fellow small bowel NETs ... that the nodule in the left lung is NETs
Hello @prasad3029 and welcome to the NETs discussion group on Mayo Connect. I'm glad you found...
Hello @prasad3029 and welcome to the NETs ... dealing with a rare disorder like neuroendocrine ... tumors. ... I have had three surgeries for NETs ... to seek out a consultation with a NET
Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...
Hi tatteesmom3, are you seeing a NETS ... (neuroendocrine tumor) multidisiciplinary ... oncologist who is not very familiar with NETS ... are the only ones likely to have a NETS ... Are those NETS too?
Posted: Apr 18, 2023
Hi LouLou23. I just turned 69yrs. I had an upper left lung lobectomy in 2019 and...
After 3 biopsies, I was diagnosed with neuroendocrine ... tumour likely metastasized from the ... side effects from the Chemo and my NETS
Support Group: Lung Cancer
Posted: Apr 14, 2023
Two things that I’d like to mention. If perhaps they say you have a neuroendocrine tumor...
If perhaps they say you have a neuroendocrine ... tumor (NET), pls be certain to seek ... out a NET specialist. ... He had a NET/IPMN on the tail of his
Support Group: Pancreatic Disorders
Posted: Apr 9, 2023
Hi @bcraft. I'm new to this site too and what brought me here was a search...
Even after discovering 50+ tumors in ... want one familiar with DIPNECH and neuroendocrine ... He said if any other tumors hit 2 cm ... Mayo clinic MN has a neuroendocrine ... They sometimes do that if the tumor(
@lisa812, it looks like you've had thorough testing and follow through for NETs, but that you...
thorough testing and follow through for NETs ... to an oncologist who specializes in neuroendocrine ... tumors. ... diagnosis process before getting their NETs ... be related to something other than NETs