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Comments (4,589)
Rachel. @rwinney Maybe I missed it because I'm in excruciating pain from new onset of occipital...
https://connect.mayoclinic.org/comment/1382058/
I've had small-fiber neuropathy ... What is the cure? ... At first it seemed to help.
I've read both that waiting until the pain in the knee is constant and excruciating is...
https://connect.mayoclinic.org/comment/1383965/
s important to find a PT who knows what ... gone with the surgery in spite of the neuropathy ... s going to be difficult for him to help ... really going to be difficult for him to help ... wearing a hip brace under my clothes to help
You may has many pieces to the headache puzzle. I have had number 8 headaches /...
https://connect.mayoclinic.org/comment/1384624/
2nd ENT said Tricky, 3rd ENT we can help ... some of my symptoms.
" Question What ... associated with burning sensations, neuropathy
I have CMT, which is a rare neuropathy and affects my entire body, that was diagnosed...
https://connect.mayoclinic.org/comment/1384527/
I have CMT, which is a rare neuropathy ... Staying hydrated is supposed to also help ... form of electrolytes in water that helps ... knew I needed something that would help ... What has been working for me when I
I'm 68 years young and diagnosed with Waldenstrom's Macroglobulinemia 8 months ago. My oncologists/hematologists started me...
https://connect.mayoclinic.org/comment/1385201/
tolerate Brukinsa very well and it's helped ... While still very high it's half what ... Iron once per week for 4-weeks which helped ... with anemia - the neuropathy is manageable ... and heating pad for my feet) which helps
Welcome @dwsouthwick, Looking for support and what helps is the very best thing we can do...
https://connect.mayoclinic.org/comment/1394764/
dwsouthwick, Looking for support and what ... helps is the very best thing we can ... do to help ourselves when they tell ... That's really what brought me to ... I shared my neuropathy journey in another
@bealillie I feel for you and can empathize with the vicious cycle of pain and de-conditioning....
https://connect.mayoclinic.org/comment/1367549/
and a neurologist for small fiber neuropathy ... transportation to therapy, you may want to see what ... is available to help you get started
@debbienod I and most of us here can totally relate! I’m on my 3rd neurologist -...
https://connect.mayoclinic.org/comment/1368267/
- a young smart guy, who confirmed what ... Over the last 20 years the neuropathy ... This latest neurologist explained what ... stated, having the knowledge hopefully helps ... us to accept what we can’t change.
@debbieod, I think I grappled with the same questions with my neuropathy journey which I shared...
https://connect.mayoclinic.org/comment/1367132/
Finding Connect and learning what others ... have shared about their neuropathy ... I think it helps me make better choices ... when faced with my neuropathy symptoms ... and being able to hopefully accept what
Welcome @lisette, I’ve also made some diet and lifestyle changes that I think have helped some...
https://connect.mayoclinic.org/comment/1370379/
lifestyle changes that I think have helped ... some with my idiopathic small fiber neuropathy ... What type of neuropathy do you have?
Thanks for your sound advice. I took ALA for a couple of months with no results....
https://connect.mayoclinic.org/comment/1372255/
if those two supplements are only helpful ... with diabetic neuropathy which again ... What is the B complex?
Hello, I’m really sorry about what you’re going through and with the medical field is hit...
https://connect.mayoclinic.org/comment/1371625/
Hello,
I’m really sorry about what ... same for all of us with peripheral neuropathy ... agencies such as Medical or Medicaid that help ... I’m not sure what else I can suggest
Well I tried a local chiropractor who suddenly got into Blueprint and said it was the...
https://connect.mayoclinic.org/comment/1402976/
units, you realize that your foot neuropathy ... I have only guesses at what causes PN ... compression socks from the knees down have helped ... only thing that actually seems to help
@tls5alex Not sure if this will help... 10/19/2023 - Harlan Krumholz and Akiko Iwasaki (Rishi Shiah,...
https://connect.mayoclinic.org/comment/1404785/
@tls5alex
Not sure if this will help ... Tinnitus, Numbness, Internal vibration, Neuropathy ... Yale - Medicine - Immunology ) to see what
I am now 81 years old and I have been suffering with different degrees of PN...
https://connect.mayoclinic.org/comment/1186919/
get severe enough that I sought the help ... fiber polyneuropathy and autonomic neuropathy ... My symptoms are very similar to what ... I have constantly searched for help ... suzycohen.com/articles/small-fiber-neuropathy-its-different
Hello @janeenelizabeth, Welcome to Connect. You are not alone being after hearing your doctors say that...
https://connect.mayoclinic.org/comment/1316248/
idiopathic small fiber peripheral neuropathy ... I shared my neuropathy journey in another ... have any treatments or suggestions to help ... looking for information that might help ... as we can about our condition and what
I am curious to know if you have any further successes? I had pelvic vein embolization...
https://connect.mayoclinic.org/comment/218781/
research I said I thought I had pudendal neuropathy ... I don’t know what type of doctor to ... I would love to know what type of doctors ... other are seeking for help, and what ... is helping.
@joanland, The only thing my tired brain can deduce from reading a lot of research articles...
https://connect.mayoclinic.org/comment/1308310/
contains 50% S-ALA (synthetic) which from what ... have numbness and no pain with my neuropathy ... My neuropathy hasn't gotten any ... worse so I consider it helping slow ... Antioxidant Strategy for Managing Neuropathic
Hi Tuckerdoodle (your username made me giggle. I'd be interested in hearing the story behind it.)...
https://connect.mayoclinic.org/comment/160128/
who can share experiences that may help ... discussion thread:
- Cardiac autonomic neuropathy ... Help! ... autonomic-dysfunction-or-pots-in-teens-help ... to research autonomic dysfunction, what
Hello @ranchguy221, Welcome to Connect. You are not alone with your struggle to find out what's...
https://connect.mayoclinic.org/comment/1317710/
alone with your struggle to find out what ... which I don't like but it does help ... here on Connect that you might find helpful ... What really helped me get my weight ... What’s your why?
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