Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
907 total results
Comments (877)
@tsc. Thankyou for your message, Teri. I have a battery of new meds, following the July...
meds, a pill to calm my heart down, Actemra ... injections every two weeks for my GCA ... I do wish there were other GCA patients ... adjustments are needed regarding the Actemra
Posted: Oct 26, 2021
@tsc. Thankyou for your post. In answer to your questions, yes, I had symptoms of extreme...
muscles for several months before the GCA ... done shortly thereafter, confirming GCA ... My rheumatologist has cut my Actemra ... whether that's the result of the Actemra ... sure isn't much posting about GCA
Posted: Oct 20, 2021
@loribmt Hi Lori. I'm thinkin' by now we're in the wrong discussion group, no longer looking...
was hospitalized immediately once GCA ... Actemra was then started - a kinder, ... weekly injection made specifically for GCA ... For me, it stopped the GCA blindness
Support Group: Just Want to Talk
Posted: Sep 22, 2021
John, that's a good idea, splitting your Prednisone into smaller doses. I had to be taken...
same time, the doctors took me off Actemra ... for my GCA as well as Clozapine, both ... I'm back on Actemra now, but only ... I have more painful GCA symptoms due ... to the lesser dose of Actemra and the
Hello @paddington, Thank you for the private message. I thought I would answer it here in...
all but the digest entries regarding GCA ... Medications and Actemra? ... need to re-post your response to the Actemra
I understand how you feel. I was lucky that the right rheumatologist found me! The possibility...
reasonably sure there was no evidence of GCA ... It was somewhat ironic when Actemra ... to treat me "as if" I had GCA ... Otherwise Actemra wouldn't been ... behalf but first made me promise to try Actemra
Hi @jenb I have both PMR and GCA. Before I was diagnosed I had severe itching...
Hi @jenb I have both PMR and GCA. ... discontinue Prednisone, even with the Acterma ... GCA/PMR is a stubborn disorder that
C-reactive protein (CRP) and erythrocyte sedimentation rate (ESR) levels are "monitored" when a person is on...
monitored" when a person is on Actemra ... When a person is on Actemra a doctor ... When I didn't have an Actemra infusion ... activity" for people with PMR/GCA ... people have active symptoms of PMR/GCA
Posted: Sep 20, 2024
"Endo I saw said she could not test my adrenals until I was completely off steroids...
of this is hard for people with PMR/GCA ... He talked about new research about Actemra ... being used to treat GCA that was & ... Now Actemra is FDA approved for GCA ... Actemra worked for me but not immediately
I have never had IL-6 testing done. It does seem like it could be a useful...
considers a biologic like Kevzara or Actemra ... asked my rheumatologist why he thought Actemra ... is "implicated" in PMR and GCA
Posted: Aug 28, 2024
Sometimes I'm reluctant to say which biologic because tapering off prednisone wasn't simply a matter of...
was done with this biologic to treat GCA ... diagnosis was PMR without much evidence of GCA ... would be treated "as if" I had GCA ... I had a good response to Actemra. ... the treatment of GCA.
Posted: Aug 27, 2024
"What was the turning point that made you use a biologic?" I didn't want to take...
" I didn't want to take Actemra ... FDA approved for GCA but not PMR. ... I only tried Actemra to "get it ... I just tried Actemra to prove to my ... When Actemra worked ...
Posted: Aug 5, 2024
Methotrexate is an older conventional medication that is frequently used by rheumatologists for many autoimmune conditions....
Both Kevzara and Actema are biologics ... been shown to work for PMR and/or GCA ... Actemra and Kevzara are IL-6 receptor ... (tocilizumab) was FDA approved for GCA ... I started Actemra in 2019.
Posted: Aug 2, 2024
The biologic was called Actemra (tocilizumab). It is FDA approved for several autoimmune conditions. It was...
The biologic was called Actemra (tocilizumab ... It was FDA approved for GCA about 7 ... reading the research studies when Actemra ... was approved for GCA. ... He thought Actemra should work for PMR
I was diagnosed with GCA last July. It was very scary, I was hospitalized for 5...
I was diagnosed with GCA last July. ... I am now on a Actemra injection (self ... As far as autoimmune diseases go, GCA
I was on moderately high doses of prednisone for 12 years ... in the 20-40 mg...
Actemra would have worked sooner had ... Actemra allowed me to taper from 10 ... The relapse wasn't GCA but another ... I couldn't wait to try Actemra again ... I'm much better on Actemra.