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982 total results
Comments (953)
Interesting. By coincidence, I am taking acyclovir right now, 400 mg x 3/day. We'll see if...
for background, I was diagnosed with PMR ... Weekly shots of Acterma (tocilizumab ... The Actemra shots will likely continue
Posted: Oct 15, 2023
I was diagnosed with PMR about 17 years ago. I took prednisone for 13 out of...
I was diagnosed with PMR about 17 years ... of the inflammation that results in PMR ... Kezvara was recently FDA approved for PMR ... Technically, I still have PMR without ... the pain that PMR caused and the side
I was diagnosed with PMR in 2007. I was on moderately high doses of prednisone for...
I was diagnosed with PMR in 2007. ... Actemra was called my "best chance ... Actemra was something of a last resort ... I have not been able to stop Actemra ... My rheumatologist thinks Actemra is
Just started again Actemra. Not sure it’s my PMR or GCA that’s flaring. Have had them...
Just started again Actemra. ... Not sure it’s my PMR or GCA that’s flaring ... We will see how much the Actemra helps
Hi @marid57, You will notice that we moved your post to an existing discussion on the...
. --- Actemra (Tocilizumab) to treat ... PMR?? ... /connect.mayoclinic.org/discussion/actemra-tocilizumab-to-treat-pmr ... (Tocilizumab) with PMR? ... discussion/how-hard-is-it-to-get-on-actemra-tocilizumab-with-pmr
Welcome to the forum and the PMR/GCA---prednisone world. I was a neurosurgery nurse for the majority...
Welcome to the forum and the PMR/GCA ... I'm on a biologic now to treat PMR ... second surgeon says I need to be off Actemra
How is it going with Kevzara? I am self-injecting weekly with Actemra, which is also a...
I am self-injecting weekly with Actemra ... Actemra has been very effective in reducing ... my PMR/GCA symptoms as I taper off
Posted: Jul 14, 2023
One would hope PMR patients of the future will have better options than prednisone. I took...
One would hope PMR patients of the future ... prednisone for more than 12 years for PMR ... prednisone being the only option for PMR ... It made me wonder why Actemra wasn&#39 ... approved for me to treat PMR was no
Posted: Jul 9, 2023
You wrote: "How are you doing with Actemra?" Actemra seems to be working well for me,...
wrote: "How are you doing with Actemra ... " Actemra seems to be working ... My blood tests are very near my pre-PMR ... Actemra really seems to be working for ... I'm continuing with weekly Actemra
Posted: Jul 6, 2023
I will try to answer your questions but I don't have any experience with Kevzara. My...
about 4 years ago to treat refractory PMR ... years while my primary diagnosis was PMR ... was prescribed specifically for PMR ... dose was 40 mg of prednisone when PMR ... The flare wasn't a PMR flare but
Thanks, this is very helpful. You mentioned that Actemra can be stopped at any time (unlike...
You mentioned that Actemra can be stopped ... I assume suddenly stopping Actemra would ... increase the risk of a PMR relapse,
Posted: Jul 1, 2023
That was hope my rheumatologist gave me too about Actemra. That was before Kevzara was FDA...
before Kevzara was FDA approved for PMR ... PMR flares haven't happened as long ... as I continue Actemra. ... after taking it for 12 years to treat PMR ... regulating inflammation because of PMR
Posted: Jun 28, 2023
I should add that Medicare may not cover Kevzara injections. Injections are considered "outpatient medications" so...
the companies that make Kevzara and Actemra ... Since Kevzara is FDA approved for PMR ... covered by Medicare for the treatment of PMR
Posted: Jun 28, 2023
I'm currently doing Actemra infusions. It was somewhat difficult for my rheumatologist to get Actemra authorized...
I'm currently doing Actemra infusions ... since it isn't FDA approved for PMR ... I insisted that Actemra was working ... prednisone for more than 12 years to treat PMR ... 12 years after being diagnosed with PMR