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304 total results
Comments (293)
I’m so sorry to hear you’ve had relapses. My husband was diagnosed with PMR in May...
diagnosed with PMR in May 2023 and GCA ... case being severe and resistant to treatment ... he doesn’t get relapses because his GCA
Posted: Mar 20 1:22pm
DMARD's are medications that change the progression of inflammatory arthritis. That is where the "disease modifying"...
commonly tried after about 2 years of treatment ... treats the symptoms until PMR and/or GCA ... happen in 2 years but sometimes PMR/GCA
I just wanted to suggest that finding a "stable dose" of prednisone that works was more...
called Actemra was sought for the treatment ... Actemra was FDA approved for GCA. ... still isn't FDA approved for the treatment
Posted: Oct 5, 2023
Charlotte. I had PMR somewhere back around 2011 when I finally got off prednisone 2014 I...
got off prednisone 2014 I developed GCA ... Never mentioned GCA during my treatment ... rheumatologist do not know much about GCA
Posted: Nov 26, 2023
Thank you for your words, which have given me hope. I am so glad to hear...
I believe that approaching the treatment ... I was diagnosed with GCA in February ... However, throughout treatment for GCA ... that I have large-vessel vasculitis (GCA
Discussion: GCA conserns
Posted: Nov 30, 2023
Hello @taxmeless, Welcome to Connect. I would definitely be concerned about GCA given the symptoms you...
would definitely be concerned about GCA ... to make sure I didn't also have GCA ... Has your doctor started you on any treatment ... for GCA? ... had a temporal biopsy to check for GCA
Posted: Jan 11 6:46pm
I'm in awe with biologics in general. I remember being on a forum for people with...
they weren't impressed that my treatment ... autoimmune disorders dictates what treatment ... it is correct, there might be other treatment ... PMR/GCA were autoimmune disorders that ... were left behind as far as treatment
The problem with testing for adrenal insufficiency is because cortisol levels can't be tested reliably until...
Not many people with PMR/GCA can do ... people on long term prednisone for PMR/GCA ... prednisone. "Glucocorticoid treatment ... reluctance to stop glucocorticoid treatment ... pubmed.ncbi.nlm.nih.gov/32031663/ What is the treatment
Posted: Apr 11 4:58pm
I was diagnosed with GCA in January 2020 - my sed rate was 117 - and...
I was diagnosed with GCA in January ... links to some info about Actemra and GCA ... tocilizumab-shows-promise-as-a-new-treatment-for-gca-pmr ... / https://www.actemra.com/gca/about-actemra ... /actemra-for-gca.html Reading over
Posted: Mar 30, 2020
Hello @vfaye, I've had 2 occurrences of PMR and am thankful that it is now in...
www.ncbi.nlm.nih.gov/pmc/articles/PMC3402515/ PMR, GCA ... www.rheumatologynetwork.com/vasculitis/pmr-gca-tied-statin-use-case-report ... mentioned you are trying alternate treatment ... Here are some alternate treatments for ... www.rheumatologynetwork.com/jointbone-health/2015-treatment-recommendations-polymyalgia-rheumatica
Posted: Nov 29, 2019
Actemra is FDA approved for the treatment of GCA. I hope Actemra works for you. I...
Actemra is FDA approved for the treatment ... of GCA. ... I wasn't diagnosed with GCA but ... was to treat me the same as if I had GCA
Posted: Oct 18, 2023
I took prednisone for more than 30 years for a variety of autoimmune problems but GCA...
variety of autoimmune problems but GCA ... Perhaps I was never diagnosed with GCA ... I'm not sure PMR and/or GCA responds ... a massive flare of uveitis ... not GCA ... #39;t think Actemra was "optimal treatment
Posted: Oct 21, 2023
Not being able to taper gracefully is a good way to describe it. There was nothing...
article/fda-approves-sarilumab-for-the-treatment-of-adults-with-glucocorticoid-resistant-pmr ... Actemra is FDA approved for GCA.
Prednisone helps arthritis too. It depends on whether the arthritic pain is inflammatory pain or not....
Prednisone was first used as a treatment ... of effective, safe, and inexpensive treatment ... active RA" and not a long term treatment ... PMR/GCA have some catching up to do
Interesting paper about IL-6 and inflammatory diseases The Two-Faced Cytokine IL-6 in Host Defense and Diseases...
Giant Cell Arteritis (GCA) and Takayasu ... GCA is the most common large vessel ... study involving 251 patients with GCA ... compared six months of treatment with ... Japan approved TCZ for the treatment
Posted: Dec 6, 2023
I was diagnosed with PMR and GCA in April 2023. High doses of Prednisone relieved my...
I was diagnosed with PMR and GCA in ... the rheumatologist to see what other treatment ... Has anyone had other treatments that
Posted: Dec 13, 2023
@654321, @beaver, and all...It sounds like you've made some decisions about your treatments and are moving...
;ve made some decisions about your treatments ... like, and that there are procedures, treatments ... I think my body will react to the treatment ... Tried to taper off but the PMR and GCA ... But, if the treatments help reduce the
Support Group: Autoimmune Diseases
Posted: Jan 28 2:42pm