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Comments (10,000+)

Hello, @ambershe, just read your comments re throbbing knee pain during the night...have you ever been...

https://connect.mayoclinic.org/comment/137878/

don’t think anyone knows why we get PMR ... experiencing is being caused by prednisone or PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 9, 2019

I am retired nurse. I am now on dexamethasone for pmr. And doing best after 3...

https://connect.mayoclinic.org/comment/1086751/

I am now on dexamethasone for pmr.

Discussion: The pros and cons of Prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 14, 2024

I got first time PMR symptoms days after Prevnar 13 pneumonia vaccine. Struggled with symptoms for...

https://connect.mayoclinic.org/comment/331530/

I got first time PMR symptoms days after

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 10, 2021

If you're battling PMR , I highly recommend Georgedaniel . Their regimen has been a game-changer...

https://connect.mayoclinic.org/comment/1236468/

If you're battling PMR , I highly

Discussion: Can PMR present in the clavicle too?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 14 6:23am

I've read it might take up to 12 weeks for it to start working with PMR...

https://connect.mayoclinic.org/comment/1230743/

weeks for it to start working with PMR

Discussion: Kevzara

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6 11:34am

Happy holidays and good health to us all in the coming year! I agree this site...

https://connect.mayoclinic.org/comment/1196883/

knowledge for all of us suffering with PMR

Discussion: Holidays

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 25, 2024

PS, it frightens me that when I first got PMR 16 years ago it was the...

https://connect.mayoclinic.org/comment/1172621/

frightens me that when I first got PMR

Discussion: PMR savvy doctors in Portland Oregon

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 13, 2024

Research is showing that the base of vaccines (called adjuvants) seem to spark PMR (whether flu,...

https://connect.mayoclinic.org/comment/1265654/

vaccines (called adjuvants) seem to spark PMR

Discussion: Surprised and Uncertain: Should I get a second opinion?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 24 10:35am

I was 48 years old when diagnosed with PMR and a few months later with GCA....

https://connect.mayoclinic.org/comment/1010697/

was 48 years old when diagnosed with PMR

Discussion: PMR onset under 55?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 6, 2024

Has anyone tried infusions for PMR? I know they are expensive and not all insurance covers...

https://connect.mayoclinic.org/comment/965506/

Has anyone tried infusions for PMR?

Discussion: I’m Not Responding to Prednisone and I Need Advice

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 15, 2023

It is so frustrating how little seems to be known about GCA/PMR. We can only be...

https://connect.mayoclinic.org/comment/960504/

little seems to be known about GCA/PMR

Discussion: Had Shingles shot and now have PMR

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 7, 2023

The study definitely got my attention especially since I was diagnosed with PMR & Fibromyalgia after...

https://connect.mayoclinic.org/comment/921185/

especially since I was diagnosed with PMR

Discussion: Any suggestions getting or not getting RSV, flu, covid vaccines?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 29, 2023

Hello! Just diagnosed with PMR, put on prednisone. Please tell me your experiences with weight gain,...

https://connect.mayoclinic.org/comment/867378/

Just diagnosed with PMR, put on prednisone

Discussion: Prednisone Side Effects

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 26, 2023

Agree. Think my PMR came after my 1st booster. Not planning on a 2nd booster. Afraid...

https://connect.mayoclinic.org/comment/739828/

Think my PMR came after my 1st booster

Discussion: Anyone with PMR have experience with 4th COVID vax jab?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 21, 2022

I think I feel better if I exercise. I have had PMR for 30 years off...

https://connect.mayoclinic.org/comment/722504/

I have had PMR for 30 years off and

Discussion: PMR and exercise: What helps you?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 30, 2022

Good attitude Beckie I am having a return of PMR and trying hard to smile and...

https://connect.mayoclinic.org/comment/138044/

attitude Beckie I am having a return of PMR

Discussion: How to address PMR pain while decreasing prednisone

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 31, 2019

Yes I’ve had 50% hair loss with a 4months course of prednisone for PMR & large...

https://connect.mayoclinic.org/comment/1380232/

a 4months course of prednisone for PMR

Discussion: Anyone experienced hair loss while taking or tapering Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 27 5:21am

Same here, muscle strength but quickly fatigue and a lack of stamina. I have been off...

https://connect.mayoclinic.org/comment/1394301/

doctor told me to get used to it, that PMR

Discussion: Weakness won't go away

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 4 days ago

My husband is scheduled for carpal tunnel surgery this Tuesday, because of severe pain and numbness...

https://connect.mayoclinic.org/comment/1178680/

He was diagnosed with PMR, May (2024 ... we are thinking this is actually a PMR ... all simply further symptoms of his PMR ... want to add any complications to this PMR

Discussion: Tingling fingers part of PMR symptom?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 23, 2024

I am fairly confident my PMR was triggered by my last Covid booster. I received it...

https://connect.mayoclinic.org/comment/1116043/

I am fairly confident my PMR was triggered ... received it in May 2023 and started with PMR ... seeing more and more indications that PMR ... vaccine since being diagnosed with PMR

Discussion: Could your PMR have been a result of the Covid mRNA vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 1, 2024