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877 total results
Comments (832)
Hello @daviddemello, Welcome to Connect. Thank you for sharing your experience and journey with Axonal Peripheral...
and journey with Axonal Peripheral Neuropathy ... pain before getting diagnosed with idiopathic ... small fiber peripheral neuropathy. ... / -- Young adult with idiopathic sensory ... /discussion/young-adult-with-idiopathic-sensory-axonal-neuropathy
Support Group: Neuropathy
Posted: Jun 8, 2021
Hi Jake @jakedduck1 - I can't say whether it's true or not true but my feeling...
a little on my own symptoms for my small ... fiber peripheral neuropathy. ... neurologist who diagnosed me with idiopathic ... small fiber PN. ... rest of my story is in the Member Neuropathy
Support Group: Neuropathy
Posted: Feb 19, 2021
Hi @joeyd5641, Welcome to Connect. I have idiopathic small fiber peripheral neuropathy but only have numbness...
I have idiopathic small fiber peripheral ... neuropathy but only have numbness in ... I've never heard of neuropathy going ... to share a little more about your neuropathy
Support Group: Neuropathy
Posted: Feb 17, 2021
Hello @crisis1152, Welcome to Connect. I also have idiopathic small fiber PN. My neurologist thought that...
I also have idiopathic small fiber PN ... - Member Neuropathy Journey Stories ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... correctly you've had peripheral neuropathy
Support Group: Neuropathy
Posted: Feb 8, 2021
Hi @rob2299, I see that you have been a member of Connect for several years and...
My neuropathy story is similar to yours ... statin but I had been dealing with neuropathy ... neurological conditions including neuropathy ... label being a possible cause for my idiopathic ... small fiber peripheral neuropathy started
Support Group: Neuropathy
Posted: Jan 13 8:29am
@dave11 I have no medical training or background but do believe that Naproxen may be helping...
I shared my neuropathy journey in another ... possibly stop the progression of my idiopathic ... small fiber peripheral neuropathy. ... PMC2675814/ -- The Metabolic Syndrome and Neuropathy
Support Group: Neuropathy
Posted: Dec 11, 2025
@immuno1982 Dear Friend, Welcome to a wonderful community of people who offer a lot of support...
I am a fellow idiopathic SFN sufferer ... It was a small hand problem that erupted ... Plus, I have 3x different types of neuropathies ... slower than other types - e.g. large fiber ... neuropathies, but mine was exacerbated
Support Group: Neuropathy
Posted: Nov 24, 2025
Hello @immuno1982, I wished I had some answers for you other than a funny story about...
than a funny story about the "idiopathic ... Back in 2016 when the Minnesota Neuropathy ... have a diagnosis of idiopathic neuropathy ... I have idiopathic small fiber peripheral ... neuropathy that started in my toes
Support Group: Neuropathy
Posted: Nov 24, 2025
I've been taking R-ALA as one of my supplements to help with my idiopathic small fiber...
of my supplements to help with my idiopathic ... small fiber PN since 2016 and feel ... maybe stopped the progression of my neuropathy ... I shared my neuropathy journey in another ... s=chemo+induced+neuropathy.
Support Group: Neuropathy
Posted: Nov 18, 2025
@ih8spiders How were you originally diagnosed with idiopathic neuropathy in your 50s? Have you been tested...
were you originally diagnosed with idiopathic ... neuropathy in your 50s? ... Have you been tested for small fiber ... neuropathy with a skin punch biopsy ... Have you had extensive neuropathy bloodwork
Discussion: EMG
Support Group: Neuropathy
Posted: Oct 22, 2025
Welcome @type2neuropathyhope, It can be overwhelming not knowing what to do following a suspected cause of...
following a suspected cause of the neuropathy ... I don't have pain with my neuropathy ... since being diagnosed in 2016 with idiopathic ... small fiber PN that I started making ... The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Sep 12, 2025
Hi Steve @steveinmontana, I did give up all alcohol after being diagnosed with idiopathic small fiber...
alcohol after being diagnosed with idiopathic ... small fiber peripheral neuropathy but ... had anything to do with causing my neuropathy ... it, the Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Aug 28, 2025
Hello @logicalperson, Welcome to Connect. You ask an excellent question and as a fellow neuropathy club...
excellent question and as a fellow neuropathy ... club member with idiopathic small fiber ... peripheral neuropathy plus a few other ... search=neuropathy+what+helps. ... The Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jul 24, 2025
Hello @ranchguy221, Welcome to Connect. You are not alone with your struggle to find out what's...
I have idiopathic small fiber PN and ... your pain and it sounds a lot like neuropathy ... bigger causes of nerve damage and neuropathy ... the more sense it made to me of my neuropathy ... papers: -- The Metabolic Syndrome and Neuropathy
Support Group: Neuropathy
Posted: Jun 1, 2025
Hello @janeenelizabeth, Welcome to Connect. You are not alone being after hearing your doctors say that...
I also have idiopathic small fiber peripheral ... neuropathy with just numbness and some ... I shared my neuropathy journey in another ... favorites for learning more about neuropathy ... : -- Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: May 30, 2025
@liloldlady Small fiber neuropathy is tested best by the gold standard of skin punch biopsy. They...
@liloldlady Small fiber neuropathy ... Small fiber neuropathy can be caused ... my.clevelandclinic.org/health/diseases/17479-small-fiber-neuropathy ... diseases-and-conditions/the-big-pain-of-small-fiber-neuropathy ... /www.medicalnewstoday.com/articles/small-fiber-neuropathy
Support Group: Neuropathy
Posted: May 16, 2025
Hello @gregoria, I can understand wanting to find the cause of the neuropathic pain in your...
;t know the cause just that I have idiopathic ... small fiber peripheral neuropathy. ... Mayo help figure out what type of Neuropathy ... gene-variants-can-affect-meds-pain-supplements-neuro-etc/ -- Small ... Fiber Neuropathy and genetic testing
Discussion: Genetic studies
Support Group: Neuropathy
Posted: May 1, 2025
Hello @agiordano, I would like to add my welcome along with Ray @ray666 and others. I...
I have idiopathic small fiber peripheral ... neuropathy. ... interesting if not helpful. -- Idiopathic ... Neuropathy with Norman Latov, MD, PhD ... https://www.foundationforpn.org/events/idiopathic-neuropathy-with-norman-latov-md-phd
Support Group: Neuropathy
Posted: Mar 30, 2025