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Comments (337)
Normal for being on Prednisone ... not so normal for PMR. The problem is that there...
Normal for being on Prednisone ... not ... so normal for PMR. ... problem is that there aren't many alternatives ... to Prednisone for the treatment of ... PMR.
"I need to figure out the difference between a PMR flare and adrenal insufficiency pain." ---------------------...
figure out the difference between a PMR ... PMR pain and adrenal insufficiency pain ... What you can do is be open to alternative ... Fortunately, more alternatives to prednisone ... are being researched and some alternatives
Posted: Sep 10, 2025
I think you are the first to report that you are taking Rinvoq for GCA since...
it feel to be a pioneer in getting alternatives ... to Prednisone for PMR/GCA? ... Long term prednisone as the only option ... for PMR/GCA is becoming a thing of ... beginning when I successfully tapered off Prednisone
Posted: Sep 5, 2025
My doctor had to jump through some hoops to get Actemra approved for PMR. The authorization...
hoops to get Actemra approved for PMR ... mentioned being unable to taper off prednisone ... factor was that all other suitable alternatives ... Actemra prevented a flare of PMR. ... to stay at 3 mg let alone taper off prednisone
I agree with your comments however I’ve come to the conclusion that given the alternatives and...
to the conclusion that given the alternatives ... inherent side effects I’ll stick with prednisone ... as long as it eliminates my PMR/GCA ... miserable existence that comes with PMR ... /GCA , prednisone and all that comes
Posted: Jul 19, 2025
I have multiple autoimmune disorders. My first Prednisone dose was more than 30 years ago. I...
When I took Prednisone for PMR, I relapsed ... The protocol for PMR is "long term ... PMR but never put PMR into remission ... and "wait until PMR burns itself ... a year or two they should seek an alternative
Posted: May 20, 2025
Terri @rocksology, I'm sorry to hear about the prednisone effecting your heart and causing additional problems....
rocksology, I'm sorry to hear about the prednisone ... of cardiovascular disease while on Prednisone ... /risk-of-cardiovascular-disease-on-prednisone ... / Are you able to discuss alternatives ... to the prednisone to treat your PMR
My Mayo rheumatologist discussed the side effects with me when we discussed a tapering strategy to...
amount of time I would have to be on prednisone ... to control the PMR. ... own research along with discussing alternatives
Posted: Apr 24, 2025
Surfing the net on PMR alternative treatments, one can go down no end of rabbit holes....
Surfing the net on PMR alternative treatments ... Have come to the conclusion, Prednisone ... "cure alls" , of value in PMR ... there not enough risks associated with Prednisone ... treatment modality in conjunction with Prednisone
Posted: Apr 18, 2025
Welcome @thomsoncat, There are quite a few discussions and member comments on opioids being used for...
opioids will do anything to help the PMR ... search=alternative%20to%20prednisone ... %20for%20PMR. ... other than prednisone to help with ... the PMR with your rheumatologist or
Posted: Feb 14, 2025
The first time I attempted this taper I alternated 4 and 3 for 2 weeks and...
first time I attempted this taper I alternated ... and then just 4 for two weeks before alternating ... started at 5mg feeling good, started alternating ... stopped tapering and increased my prednisone ... leg pain but Dr does not think it is pmr
Yes, I had PMR before the GCA symptoms started. It was never officially diagnosed, but starting...
Yes, I had PMR before the GCA symptoms ... monitor for side effects from the prednisone ... Prednisone and Actemra both have some ... risks, but they're better than the alternative
Posted: Dec 31, 2024
PMR is not supposed to last 30 years. It is only supposed to last 1 to...
PMR is not supposed to last 30 years ... last longer or at least people take Prednisone ... I started wondering if I still had PMR ... Fortunately we found an alternative ... to prednisone that seems to work well
Posted: Dec 2, 2024
Kevzara is now an option for me since it was FDA approved for PMR in February...
for me since it was FDA approved for PMR ... biologics that were FDA approved for PMR ... and that all other alternatives to ... Now my PMR is said to be in remission ... not for everyone with PMR.
Posted: Nov 11, 2024
There is an alternative to Prednisone now! It's Kevzara. Patients are initially put on Prednisone and...
There is an alternative to Prednisone ... Patients are initially put on Prednisone ... My PMR responded like a dream to Kevzara ... different inflammation pathway than Prednisone
Posted: Nov 9, 2024
I like to share my personal experience. I was on Prednisone for more than 12 years...
I was on Prednisone for more than 12 ... years after PMR was diagnosed. ... After long term Prednisone use for PMR ... Also, there are some alternatives to ... long term Prednisone for PMR/GCA if
Okay, the pain (that comes from the swelling/inflammation) is secondary. Personally, if my PMR hadn't hurt,...
Personally, if my PMR hadn't hurt ... it usually does work for those with PMR ... If not Prednisone, other drugs. ... I was not offered any alternative medicines ... God, it works for you, and most with PMR
Discussion: newly diagnosed
Posted: Sep 2, 2024
Thats a good question. But really depends on a lot of your particulars. Other auto immunes...
adrenal system is not damaged from the prednisone ... pain and inflammation restart your PMR ... back to 1mg for a few days then maybe alternate
Sara Muller et al. are doing some great research in my opinion. More of a patient...
The next step is to find alternatives ... when people can't taper off Prednisone ... Nearly all research papers I read about PMR ... evidence is emerging that people with PMR ... Some people like to say these Prednisone
Posted: Aug 29, 2024
Yes .. a fast response to prednisone is "one of the defining characteristics" of PMR. However...
the defining characteristics" of PMR ... a "defining diagnosis" of PMR ... then an alternative diagnosis needs ... You can't conclude it is PMR because ... /prednisone-oral/details
Posted: Aug 28, 2024