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791 total results
Comments (752)
Don't get your hopes up too much because there isn't that much that can be done...
Except that a low cortisol level seemed ... inflammation and the ensuing joint and muscle pain ... I have no idea if it was a PMR flare ... I think PMR inflammation necessitated ... Maybe a combination of PMR and a low
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
I have had significant pain with tapering—even ... of Prednisone in my 2.5 years with PMR ... My pain becomes unbearable (7 to 8 level ... I do believe that my shoulder pain may ... slightly improved but the hip and back pain
Posted: Nov 19, 2024
@michcan1, Do you keep a daily log with your dose and your level of pain when...
daily log with your dose and your level ... of pain when you first get up in the ... You mentioned the PMR pain was about ... level was above what I considered too ... much (anything above a 2 on my pain
Posted: Nov 17, 2024
"My recent tests showed adrenal insufficiency, after I had gone down from 5 to 4 mg....
mentioned, with 5 mg I still have pain ... mg certainly would erase most of my pain ... Was it an a.m. cortisol level or a synacthen ... still needed prednisone to control my PMR
Posted: Nov 11, 2024
Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...
Question is how much pain is worth tolerating ... should keep reducing with increasing pain ... Similarly, "tolerable pain" ... levels and side effects allow --- faster ... Only you can decide how much pain is
Posted: Nov 7, 2024
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
my opinion, prednisone perpetuates PMR ... adrenal insufficiency and a low cortisol level ... of adrenal insufficiency pain because ... Actemra targeted the problem of excess levels ... After my cortisol level normalized,
Posted: Oct 25, 2024
Hi @anncoco57, I had pain in the feet and legs including the back of my knees...
Hi @anncoco57, I had pain in the feet ... the back of my knees for my first PMR ... up but can't remember if I had pain ... of your prednisone dosage and your level ... of pain when you get up in the mornings
Posted: Oct 21, 2024
Now I'm interested in Tart Cherry capsules. I have residual (non-PMR) lower back pain but I'm...
I have residual (non-PMR) lower back ... pain but I'm told that I need a ... is able to consider other causes of pain ... was "contributing to my residual pain ... ." My uric acid level was treated
Posted: Oct 13, 2024
I am sorry you are feeling so much pain. I have had a similar experience after...
I am sorry you are feeling so much pain ... that began to hurt, not at the same level ... of pain as when PMR was in full swing ... , but probably a 4 out of 10 on pain ... night if I’m feeling a lot of joint pain
Posted: Oct 8, 2024
michik, Thank you for sharing your story. You sound like a wonderful person and patient as...
description of the conundrum that is PMR ... wanted to ask you what you consider a level ... of pain you can live with or as you ... #39;re back to hiking, walking and a pain ... level that decreases from very light
Posted: Sep 5, 2024
I tried Methotrexate and reacted badly but many others find it helpful. Hydroxychloroquine has worked for...
I had quite severe PMR and it has dramatically ... 3.25mg (plan o be at zero by xmas), pain ... levels are managed with a couple of
It isn't as easy as one would think to distinguish between seronegative RA and PMR. They...
distinguish between seronegative RA and PMR ... as elderly onset RA can all mimic PMR ... features, such as pain and stiffness ... constitutional symptoms, and high levels ... There is no consensus on what PMR is
Posted: Aug 19, 2024
My first occurrence of PMR lasted 3 and half years until I was able to taper...
My first occurrence of PMR lasted 3 ... prednisone and only have an acceptable level ... of ache/pain/stiffness when I got up
Posted: Aug 3, 2024
Prednisone reduces inflammation levels whenever we take it. However, prednisone doesn't stay in the body very...
Prednisone reduces inflammation levels ... correctly, a person's cortisol level ... Cortisol levels are regulated so the ... the excess inflammation caused by PMR ... of IL-6 start to return and the pain
Apparently most of us have age-related arthritis that has been masked until now by our natural...
the symptoms, we experience various levels ... sufficient dosage and duration to put the PMR ... probably not be successful, and the pains ... might be PMR and not those which are
My current experience is this: Tapered from 10 to 5 at 1 per month, then at...
reduction, there has been random pain ... sometimes up to level 3 on scale of ... Generally, after one week, the pains ... After PMR is in remission, pain is ... most often NOT PMR pain and should be
Posted: Jul 6, 2024
Hi susannew32, yes, PMR is often part of a differential diagnosis with other causes. If the...
Hi susannew32, yes, PMR is often part ... will be another clue that you have PMR ... In general people with PMR have high ... cortisol levels. ... That kind of fracture can cause the pain
Posted: Jul 3, 2024
I’ve had PMR since early April 2022. Have been under the care of a rheumatologist since...
I’ve had PMR since early April 2022. ... prednisone 7 months into my journey and pain ... the prednisone because I still had pain ... , although it was low levels. ... Do what you can to reverse PMR.
Posted: Jul 2, 2024