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548 total results
Comments (480)
Hi Charlie, to help you connect easily with others like you, I moved your message about...
moved your message about metastatic neuendocrine ... to this existing discussion in the Neuroendocrine ... Tumor (NETs) support group: - Diagnosed
Posted: Sep 17, 2023
@albertklein Did your doctor say why? Do you have any respiratory issues? I would be concerned....
The 50+ tumors were slowly growing. ... It turned out to be neuroendocrine cancer ... NET. ... They destroyed the largest tumor through ... How many tumors do you have?
I had chronic pancreatis, abdominal swelling, nausea, heartburn, uncontrolled high blood sugars over 280-400 without cause,...
pathology to see if it was a splenule or a neuroendocrine ... tumor. ... oncologist because she thought it was the NET ... Scan which my oncologist showed the NET ... Pathology showed the NET encapsulated
I am all following up on this medication with my doctor. I just had surgery to...
I just had surgery to remove a neuroendocrine ... tumor and my doctors are advising against ... studies on how these medications affect NET ... tumors, but if anyone has any information
Hi @pb32680pbnew I had stage 1 BC 10 years ago, BRCA2+ so mastectomies and nothing else....
They removed the tumor and part of the ... body before they removed the chest tumor ... to lung NETS/DIPNECH - neuroendocrine ... know it's MBC instead of lung NETS ... I'm on meds for the lung NETS too
Support Group: Breast Cancer
Posted: Jun 23, 2023
Hi @phylrose1taubezin I have primary neuroendocrine lung cancer and unrelated stage 4 breast cancer. It's sooo...
phylrose1taubezin I have primary neuroendocrine ... Turns out it is uncommon neuroendocrine ... Lung NETS is typically one or two tumors ... The bottom line is stage 1 lung NETS ... I'm on 2 BC meds and 1 lung NETS
Support Group: Breast Cancer
Posted: Jun 8, 2023
Following a very uncomfortable blockage (I had had no carcinoid syndrome), on July 1, 2022 I...
2022 I had the surgical removal of a neuroendocrine ... tumor in the small bowel. ... surgeon removed a well-differentiated neuroendocrine ... Tumor was also present in 1 of 6 lymph ... is usually indicative of metastatic NET
@helloitsme It is nice to see so many comments to you! Congrats for choosing Mayo Phoenix...
mets to liver from an unknown primary neuroendocrine ... tumor is January 2021. ... The NETS team there is wonderful--Dr ... treatments which significantly shrunk the tumors
Posted: Apr 29, 2023
Hi. I too am on a watch and wait recommendation and am very uncomfortable with that....
My NETs were found incidentally - went ... I have a primary tumor in my small intestine ... and one biopsy, no one can get to my tumor ... for malignancy - well differentiated neuroendocrine ... tumor, grade 2.
@magnolia12 Can I ask if you spoke with a NET Specialist? If not, I have been...
magnolia12 Can I ask if you spoke with a NET ... months to help me wife, and we have NET ... important bit of advice is to get a NET ... Here is a link online to find a NET ... it: https://netrf.org/for-patients/neuroendocrine-tumor-doctor-database
Posted: Feb 15, 2023
Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...
angel 😊 in NC , find I had NET ... that was back in 2011 I had a large tumor ... forward last year in June 3 2022 more tumors ... mentioned asking for cat scan but for Neuroendocrine ... tumors pet scan are the best the tumors
Posted: Jan 5, 2023
My wife Lynn had open abdominal surgery at Mayo in 2015 and 2016. In May 2018...
my wifes entire small bowel for any neuroendocrine ... tumors that may not have been revealed ... She has NETs or neuroendocrine cancer
Hello @char1962 and welcome to Connect. I'm so glad that you found this forum. As a...
As a three-time survivor of NET surgery ... Clinic support group for patients with neuroendocrine ... tumors. ... The NETs support group meets on the ... any other surgeries planned for your tumors
Posted: Sep 10, 2022
Hello @nathanb1979 and welcome to Mayo Connect. I am glad that @colleenyoung tagged me as I...
me as I have had surgery for three neuroendocrine ... tumors and also have hyperparathyroidism ... Seeing a NET specialist is very important ... Colleen mentioned in her post, many NET ... other health issues before discovering NETs
Posted: Sep 10, 2022
Hi Mark, regarding your question about the Chromogranin A (CGA) test, I have found some information,...
patients with a suspected or confirmed neuroendocrine ... range of health conditions other than neuroendocrine ... tumors. ... As a result, CgA testing for neuroendocrine ... that shows signs of a NET when a person
Hello @stan123 and welcome to Mayo Clinic Connect. I see that you are interested in information...
As you posted in the NETs discussion ... wondering if you have a history of NETs ... (neuroendocrine tumors).
Support Group: Brain Tumor
Posted: Aug 29, 2022
AMD, As you like know, diffuse idiopathic pulmonary neuroendocrine cell hyperplasia (DIPNECH) is an extremely rare...
know, diffuse idiopathic pulmonary neuroendocrine ... this discussion: - Typical Carcinoid Tumor ... connect.mayoclinic.org/discussion/typical-carcinoid-tumor-in-lungs ... want to invite you to the monthly NETs ... See details here: - Neuroendocrine
Posted: Dec 11, 2021
Please follow this link for guidance - Neuroendocrine Cancer – tumour markers and hormone levels https://ronnyallan.net/2016/09/28/neuroendocrine-cancer-tumour-markers-and-hormone-levels/
follow this link for guidance - Neuroendocrine ... Cancer – tumour markers and hormone ... levels https://ronnyallan.net/2016/ ... 09/28/neuroendocrine-cancer-tumour-markers-and-hormone-levels