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Comments (2,496)
Diagnosed GCA Jan 2025. Started 60mg prednisone, and started monthly infusions of Actemra about 3 weeks...
, and started monthly infusions of Actemra ... Never had a single side effect from Actemra ... I expect to continue with Actemra for
"I wasn't about to enter a long relationship with Prednisone, if there were options available to...
I have a 4 year relationship with Actemra ... relationship with prednisone after Actemra ... No guarantees Actemra will work for ... everyone but Actemra works for me.
Welcome @pickle7, My only experience is with PMR. I'm wondering if @marilyncarkner, @paddington and @tsc may...
continuing or discontinuing treatment with Actemra ... of Giant Cell Arteritis Patients on Actemra ... creakyjoints.org/treatment/tocilizumab-actemra-giant-cell-arteritis-prolonged-remission ... any other treatment along with the Actemra
People say taking Prednisone is about quality of life. Waiting for prednisone to take effect every...
My monthly infusions of Actemra give ... , I'm also afraid of long term Actemra ... After 5 years of Actemra being symptom ... Minimal side effects from Actemra are
Posted: Sep 3, 2024
I do think that Actemra and Kevzara are dangerous. I mentioned recently on this forum that...
I do think that Actemra and Kevzara ... lists "use of a high risk drug Actemra ... You have to assess the risk of Actemra ... treat my GCA, it makes sense to take Actemra
I'm currently doing Actema infusions for "refractory PMR." I was on prednisone for more than 12...
I'm currently doing Actema infusions ... Since Actemra isn't FDA approved ... PMR, my rheumatologist had to get Actemra ... Actemra was approved by a medical panel ... Being off prednisone makes Actemra worth
PMR was my primary diagnosis and I was treated with daily prednisone for 12 years. I...
Actemra was called my best chance of ... I relapsed when supplies of Actemra ... The available supply of Actemra was ... Actemra is FDA approved for GCA. ... Either Kevzara or Actemra should work
Posted: Aug 17, 2024
@jeff97 My rheumatologist and I discuss "possibilities" but in reality, there is no plan to ever...
, there is no plan to ever stop my Actemra ... #39;m into my 8th year of being on Actemra ... We talk about stopping Actemra but my ... says that I don't need to stop Actemra ... My rheumatologist would let me stop Actemra
There are different benefits to all three ways of getting Actemra. I have done all three...
benefits to all three ways of getting Actemra ... I switched from Humira back to Actemra ... Weekly injections of Actemra worked ... until a supply shortage of Actemra ... When Actemra was restarted, I was in
Posted: Jul 8, 2025
At this point, I can see why you don’t stop the Actemra. I have gone back-and-forth...
, I can see why you don’t stop the Actemra ... back-and-forth with prednisone and Actemra ... I would definitely try getting off Actemra
Posted: Apr 16, 2023
I am two months into Actemra infusions and on prednisone since March, now at 20 mg...
I am two months into Actemra infusions ... has anyone experienced this while on Actemra ... could be ongoing if I have to be on Actemra
"I guess the Kevzara does nothing for the arthritis pain?" ----------------------- Osteoarthritis pain is more of...
speak for Kevzara because I'm on Actemra ... I think Actemra helps my arthritis pain ... Both Actemra and Kevzara were originally
Actemra is helping me to taper off of prednisone at a faster rate. I started Actemra...
Actemra is helping me to taper off of ... I started Actemra when I was taking ... I take weekly injections of Actemra. ... Key points about Actemra and IL-6: ... Mechanism of action: Actemra
Posted: Dec 30, 2024