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Comments (2,759)
Are you currently taking both Actemra and prednisone? I took prednisone daily for 12 years for...
I took prednisone daily for 12 years ... for PMR. ... of an adrenal issue rather than a PMR ... I needed to take 10 mg of prednisone ... Actemra was restarted, I was able to taper
Posted: Apr 16, 2023
I have peripheral neuropathy too. It was confirmed by an EMG and a nerve conduction study...
After PMR and other autoimmune problems ... peripheral neuropathy was higher than PMR ... Pain from PMR held first place on my ... that it seems to be improving since I tapered ... off prednisone. 1) Prednisone is
Hello @valerie6062, Welcome to Connect. I haven't read any conclusive evidence on prednisone causing neuropathy but...
;t read any conclusive evidence on prednisone ... In my first round with PMR, I had some ... pain flares due to tapering off of ... prednisone too quickly or too big of ... ride with the treatment is due to tapering
As I understand it, you should only be tapering at a pace where you have no...
understand it, you should only be tapering ... That tells you the prednisone is working ... COVID shots/boosters are possible PMR
I was diagnosed in Nov 2022, they think the Shingrix vaccine triggered the PMR. Got a...
the Shingrix vaccine triggered the PMR ... right away in December, and I'm tapering ... the Prednisone down, currently at 8 ... Been on Prednisone for almost 4 months
Hi @everettcatlin, There are a couple of other discussions you might find helpful for tapering off...
off of prednisone and managing symptoms ... : --- PMR Dosages and Managing Symptoms ... /connect.mayoclinic.org/discussion/pmr-dosages ... / --- Prednisone tapering is challenging ... /connect.mayoclinic.org/discussion/prednisone-tapering-and-remission
Posted: Apr 11, 2023
One of the worst aspects of PMR, for me, is that the treatment (prednisone) works but...
One of the worst aspects of PMR, for ... me, is that the treatment (prednisone ... wants me to add methotrexate to the prednisone ... , which might allow me to taper to a ... Prednisone can have very negative effects
Thanks for these comments. My insurer and medical provider are the same entity, Kaiser Permanente. Getting...
"Imaging while you are taking prednisone ... because it is "hidden" by prednisone ... still visible for months after taking Prednisone ... ...but again, the research papers I ... rheumatologist says that is true for PMR
How did you feel about PMR being treated with prednisone? I still struggle with that issue...
How did you feel about PMR being treated ... for PMR for about 10 of the 12 years ... I tried to taper off but there was no ... uncertain terms that "I can't taper ... I tapered prednisone from 15 mg to zero
I have been tapering down from 10mg. of prednisone starting April 2022 when I was first...
I have been tapering down from 10mg. ... of prednisone starting April 2022 when ... I was first diagnosed with PMR . ... I am down to 1 mg. of prednisone now ... not want to take a higher dose of prednisone
Well ... where should I begin? I was diagnosed with reactive arthritis with uveitis some 20...
with uveitis some 20 years before PMR ... type of inflammatory arthritis and PMR ... a biologic treatment that targeted PMR ... I was able to taper off prednisone after ... but it didn't work so well for PMR
Posted: Mar 24, 2023
Wow that is quite a history. Sounds like the tocilizumab has really helped. That's good to...
This may be in addition to PMR. ... that are really inconsistent with PMR ... test, he tentatively wants to start tapering ... my prednisone down from 60 mg in a
Hi! I'm new to this group as I was diagnosed with PMR in December 2022. I...
this group as I was diagnosed with PMR ... Started on 20mg/day of prednisone, first ... for only 2 weeks followed by tapering ... Symptoms returned again when I tapered ... ), or biologics in addition to the prednisone
Posted: Mar 13, 2023
I have tapered from 5 mg prednisone to 4 3/4 the last two days and find...
I have tapered from 5 mg prednisone ... Is this “normal “ and is it prednisone ... How do you tell the difference from pmr
DSNS didn't work for me either. I noticed the person who promotes this tapering plan says...
and kept trying to taper off prednisone ... I felt like I knew how to taper off ... for 12 years after PMR was diagnosed ... that wasn't approved to treat PMR ... was the only option for PMR."
Posted: Mar 9, 2023
Yes ... you are correct about doing a slow taper. The questions that nobody has ever...
you are correct about doing a slow taper ... How long does PMR really last and when ... should I stop taking prednisone?
Posted: Mar 1, 2023
Your story is very interesting. It seems to confirm what I've seen from others with PMR:...
what I've seen from others with PMR ... I do think that a slow taper is a good ... I'm still in my first year of PMR ... congratulations on finding a way to get off Prednisone
Posted: Mar 1, 2023
Just my opinion but I feel that pain should be gone or nearly gone before starting...
or nearly gone before starting to taper ... your prednisone dose. ... pain it means you're low on the prednisone ... my opinion) are hellbent to get a PMR ... PMR forum discussions are a very important
Posted: Feb 28, 2023
My PMR has always affected my quads and calves. I had a flare up 2 1/2...
My PMR has always affected my quads ... ago after getting down to 5 mg. of prednisone ... pretty good but will have to start tapering
Posted: Feb 25, 2023