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695 total results
Comments (663)
Thats good to know on the drug. Maybe in the future Kevzara can be prescribed to...
Kevzara can be prescribed to treat PMR ... taper off steroids by keeping the PMR ... unable to taper steroid below the pain ... level of withdrawal.
My rheumy told me at the outset that I would be having some pains during the...
outset that I would be having some pains ... were not PMR, so I should not be tempted ... And so I fought through some level 2 ... hand/wrist/thumb pains while tapering ... 8 to 6, and now I am at 5 with no pains
Posted: May 18, 2024
Hello @marielynn -I'm just curious - how was the opportunity to go on Kevzara described to...
until about 6 pm and then the pain in ... you experienced with your onset of PMR ... tuckerp what are your CRP and ESR levels ... I had some weird pains in the duration
My Mayo rheumatologist told me I needed to "listen" to my body when tapering my prednisone...
He had me keep a daily log with my level ... of pain (0 to 10) and if it was time ... to taper and my pain was a little too ... My first time with PMR took 3 and half ... For me that was anything below a 2 level
Hi @leetaanderson, Welcome to Connect. Sorry to hear you joined the PMR club but happy to...
Sorry to hear you joined the PMR club ... the eating part down that helps with PMR ... / --- PMR Diet: Foods to eat and avoid ... you keep a daily log to track your pain ... levels in the morning when you get
Welcome @321design, That does seem to be the magic and elusive question when diagnosed with PMR...
elusive question when diagnosed with PMR ... and wanting to get rid of the pain ... I've had PMR twice now and started ... different and had me keep a daily pain ... it got better I tapered to the next level
Welcome @joaniem5, I'm sorry to hear that you have joined the PMR club but you have...
members who have normal CRP and ESR levels ... but still have PMR pain. ... try to taper down to the next lower level ... daily log of your prednisone dose and level ... of pain when you wake up?
Posted: Mar 30, 2024
Starting in October, initially on P20, my dose had to be adjusted to P30 to tame...
to be adjusted to P30 to tame the PMR ... normal, and we were no longer treating PMR ... (which at that time was up to level ... is in fact or probably PMR, increasing ... , returning pain is not always PMR,
Posted: Mar 19, 2024
Hi @isabelle7, Not everyone with PMR develops GCA, but roughly 30% do. My rheumatologist told me...
Hi @isabelle7, Not everyone with PMR ... My rheumatologist told me PMR and GCA ... The onset of PMR for me followed an ... hour a day through the incredible pain ... to my previous energy levels, but I&
Posted: Mar 8, 2024
@charlotte61 I just read your post and will share our experience. It is my husband who...
He developed PMR in May 2023. ... dose at 3 am (with some food) and the pain ... His ESR levels were taken monthly (or ... symptoms (terrible headaches, jaw pain ... the lab results with those raised levels
Posted: Mar 7, 2024
At the higher doses of 20mg or more, it is definitely possible to get very irritable,...
have to ride that out to benefit from pain ... However being in chronic disabling pain ... If your pain levels are tolerable maybe ... i wasnt completely disabled by the PMR
Posted: Mar 7, 2024
Sorry to hear about your diagnosis! I was also scared of going on prednisone when I...
prednisone when I was diagnosed with PMR ... godsend at dramatically reducing the pain ... world, but stress has a huge impact on pain ... to keep my stress levels low, which ... Good luck with your PMR journey.
Posted: Mar 7, 2024
Your article is well written and informative as you say. Thank-you for posting this information. When...
When I was 10 years into my PMR journey ... dialog that happened on a chronic pain ... forum rather than a PMR forum. ... discussion is on a personal nonscientific level
I was on prednisone for more than 12 years. I have been completely off prednisone for...
tocilizumab) to treat "refractory PMR ... FDA approved for the treatment of PMR ... because he believed it should work for PMR ... My symptoms were muscle and joint pain ... My cortisol level isn't a problem
Discussion: PMR Taper and pain
Posted: Feb 15, 2024
@bitsygirl, The prednisone is the magic pill that makes PMR symptoms go away or at least...
make it where we don't feel the pain ... coming back with every little shoulder pain ... already keeping a daily log with your level ... of pain when you wake up, that might ... search=pmr+managing+symptoms.
Posted: Jan 22, 2024
I am so sorry that you are having so many problems. My thoughts and prayers are...
My PMR symptoms started four months ... Suffered for 3+ years with severe pain ... As of now, I still only have PMR, but ... dramatically in the morning and a lot faster (pain ... found meds did not give me the same level
@dsm68, @johnbishop, @megz, and all...Good conversation, but I have different experiences to report. I've taken Prednisone...
77 now, I'm back on it for new PMR ... intake of calories...although, during a painful ... work hard to keep my blood sodium level ... down and my potassium levels up! ... determined to get my weight down...my pain
Posted: Dec 20, 2023
Hi, I spent 10 months suffering from pain I knew to be totally consistent with PMR....
I spent 10 months suffering from pain ... knew to be totally consistent with PMR ... Rheumatologist would not accept it was PMR ... because I did not have raised levels ... something like 20% of people with PMR
Dear SCA108, I was diagnosed with PMR after an inoculation for flu one year ago. Sorry...
Dear SCA108, I was diagnosed with PMR ... Sorry you are having pain in your legs ... blood test showed a low potassium level
Posted: Oct 14, 2023
Welcome @salmountain, My PMR has been in remission for 5+ years so I don't have any...
Welcome @salmountain, My PMR has been ... rheumatologist was to keep a daily log of my level ... of pain when waking up in the morning ... good days I normally had a 1 or 2 level ... of aches/pain when waking up.
Posted: Oct 1, 2023