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375 total results
Comments (360)
I thought I would post an upcoming webinar from the Foundation of Peripheral Neuropathy that looks...
interesting and helpful for those with CIDP ... -------------------- FPN Webinar: CIDP ... condition, from when a patient seeks diagnosis ... The program will also highlight how CIDP ... has more than 20 years experience in diagnosing
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 19, 2023
Could it be C.L.I.P.P.E.R.S.? Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids (CLIPPERS) is...
I was diagnosed with it at age 54 in ... A CLIPPERS diagnosis is one of exclusion ... brain tumor, MS, MG, neurosarcoidosis, CIDP ... due to problems with treatments and diagnosis
Support Group: Autoimmune Diseases
Posted: Jul 18, 2023
I was diagnosed with peripheral sensorimotor polyneuropathy last year with symptoms mostly in my feet and...
I was diagnosed with peripheral sensorimotor ... went to an orthopedic surgeon who diagnosed ... The EMG resulted in a diagnosis of CIDP
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 16, 2023
I just got my 3rd rejection to my 3rd time application for Mayo Clinic. With the...
I was diagnosed with CIDP 2 1/2 years ... ago, but I serious doubt if CIDP is ... the right diagnosis or if there a second ... symptoms that don't belong to CIDP
Support Group: Autoimmune Diseases
Posted: Jun 11, 2023
Hi @jshdma, I don't have CIDP but I also have to be careful walking downhill with...
Hi @jshdma, I don't have CIDP but ... some clues for you. "Motor CIDP ... 2020" --- The Misdiagnosis of CIDP ... Diagnosis: https://practicalneurology.com ... neuromuscular-notes-taking-the-mis-out-of-cidp-diagnosis
Support Group: Autoimmune Diseases
Posted: Apr 27, 2023
@becsbuddy - Thank you for this reference. Actually 2 separate neurologists told me very definitely I...
told me very definitely I do NOT have CIDP ... The only diagnosis I have is OLP, an ... company suggested that symptoms fit CIDP
Support Group: Autoimmune Diseases
Posted: Apr 27, 2023
Welcome @biker201, Medicare can be confusing and I'm always struggling with decisions. There is another discussion...
that you might find helpful: --- CIDP ... , Diagnosis, Treatment, Insurance - ... /connect.mayoclinic.org/discussion/cidp-diagnosis-treatment-insurance-medicare-and-medicare-part-d
Support Group: Neuropathy
Posted: Apr 5, 2023
To @mabelandlynne I am so sorry to hear it has taken so long for you to...
for you to finally have a medical diagnosis ... It is a very challenging diagnosis and ... John Bishop sent you the site for GIB-CIDP ... excellent care centers that specialize in CIDP ... possible is very important…….. the GIB-CIDP
Support Group: Autoimmune Diseases
Posted: Mar 12, 2023
Just a suggestion: go to the gbs-cidp.org for more informations. Also, my partner was diagnosed with...
Just a suggestion: go to the gbs-cidp.org ... Also, my partner was diagnosed with ... CIDP 15 years ago. ... where they see many cases of GBS and CIDP
Support Group: Autoimmune Diseases
Posted: Nov 23, 2022
Hello Yes, I was diagnosed with CIDP about 10 months ago and have been receiving IgG...
Hello Yes, I was diagnosed with CIDP ... to be concerned about your husbands diagnosis ... great group to follow or join GIB-CIDP.org
Support Group: Neuropathy
Posted: Jul 25, 2022