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406 total results
Comments (388)
I watched the videos and thanks. I was diagnosed using EMG testing done BY THE DOCTOR...
https://connect.mayoclinic.org/comment/1045910/
I was diagnosed using EMG testing done ... I volunteer with the GBS/CIDP Foundations ... as well as Sining through CIDP.
Discussion: Has anyone really gotten over CIDP?
Support Group: Autoimmune Diseases
Posted: Apr 5, 2024
@kgitti What were your earliest symptoms that led you to getting diagnosed with CIDP? How long...
https://connect.mayoclinic.org/comment/1045241/
earliest symptoms that led you to getting diagnosed ... with CIDP? ... did it take for you to get properly diagnosed
Discussion: Has anyone really gotten over CIDP?
Support Group: Autoimmune Diseases
Posted: Apr 4, 2024
@dlydailyhope I was diagnosed over a one year period AT LEAST. I went to five different...
https://connect.mayoclinic.org/comment/1034884/
@dlydailyhope I was diagnosed over a ... spinal taps are what honed in on the CIDP ... Anyway, my final diagnosis from a really ... trusted neurologist is MGUS with CIDP-like ... Well to me, it's just CIDP.
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Mar 16, 2024
Were you able to follow the link to the study I included? NAC is N-acetyl cysteine...
https://connect.mayoclinic.org/comment/938829/
CIDP which is also known as chronic ... Guillain-Barré Syndrome, is diagnosed ... Lumbar puncture is also used to diagnose
Discussion: Risk of vaccine for Autoimmune compromised?
Support Group: Autoimmune Diseases
Posted: Sep 29, 2023
Hello! I’m 76 years old woman and I was just diagnosed with anti Mag. Originally it...
https://connect.mayoclinic.org/comment/910945/
76 years old woman and I was just diagnosed ... Originally it was just CIDP and my neurologist
Discussion: Anti Myelin Associated Glycoprotein Antibodies
Support Group: Neuropathy
Posted: Aug 10, 2023
*** Edit Update Nov 16, 2023 *** FPN Webinar: CIDP: From Soup to Nuts, with Sami...
https://connect.mayoclinic.org/comment/909525/
Update Nov 16, 2023 *** FPN Webinar: CIDP ... condition, from when a patient seeks diagnosis ... The program will also highlight how CIDP ... has more than 20 years experience in diagnosing ... inflammatory demyelinating polyneuropathy (CIDP
Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)
Support Group: Autoimmune Diseases
Posted: Aug 8, 2023
I thought I would post an upcoming webinar from the Foundation of Peripheral Neuropathy that looks...
https://connect.mayoclinic.org/comment/898700/
interesting and helpful for those with CIDP ... -------------------- FPN Webinar: CIDP ... condition, from when a patient seeks diagnosis ... The program will also highlight how CIDP ... has more than 20 years experience in diagnosing
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Jul 19, 2023
Could it be C.L.I.P.P.E.R.S.? Chronic lymphocytic inflammation with pontine perivascular enhancement responsive to steroids (CLIPPERS) is...
https://connect.mayoclinic.org/comment/898042/
I was diagnosed with it at age 54 in ... A CLIPPERS diagnosis is one of exclusion ... brain tumor, MS, MG, neurosarcoidosis, CIDP ... due to problems with treatments and diagnosis
Discussion: Lesions on the brain and autoimmune disease
Support Group: Autoimmune Diseases
Posted: Jul 18, 2023