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695 total results
Comments (663)
Thanks for starting a PMR Group Ethan @ethanmcconkey! I hope other members with PMR will share...
Thanks for starting a PMR Group Ethan ... I hope other members with PMR will share ... I've had 2 occurrences of PMR. ... and write down the dosage and the pain ... level so that you have something to
Thank you for your concern. I just had another follow up with my rheumatologist today as...
work shows all is well, inflammation levels ... P.s I do not have any pain dealing with ... pmr.
Discussion: PMR Anyone?
Posted: Sep 23, 2019
@ambershe you are doing great. Like @kdmorris says everyone responds a little different to tapering off...
My first occurrence of PMR took 3 years ... stop taking it and only have a little pain ... down 1/2 mg for 3 days to see how the pain ... level is.
Hello @awag, Welcome to Mayo Clinic Connect. I also have PMR but it is currently in...
I also have PMR but it is currently ... The key for me was to maintain some level ... would all be doing the happy dance and PMR ... My PMR has mostly been in the hands, ... It sounds like your PMR is only in your
My PMR began in the summer of 2017 as I was under stress when my mom...
My PMR began in the summer of 2017 as ... She measured inflammation level @ 49% ... love in and out..and naturally a high level ... healer as I can walk and move without pain
When it went away the first time I felt pretty good and about the same as...
was such a sharp difference in the pain ... level when the PMR was active and when ... taking the prednisone I had a little pain ... prednisone with a little ache but not real pain
Hi Sally @sallygosse, the good news is that there are a lot of us here on...
are a lot of us here on Connect with PMR ... with prednisone and my episodes of PMR ... different and may have different threshold levels ... for pain. ... was too big of a jump for me and the pain
Hi @reagan1mc -- I would tend to agree with you that in most cases no one...
sort of imbalance at the cellular level ... Hoping for a pain free day for all my ... PMR pals (PN and chronic pain pals
Discussion: PMR Anyone?
Posted: Jan 5, 2018
Thanks Roland. I had noticed a few back and forth comments between Connect members and I...
Glad you are still doing OK with your PMR ... adjust the dosage based on how bad the pain ... is from the PMR. ... Right now my pain level is fairly low
Support Group: Autoimmune Diseases
Posted: Aug 11, 2017
@nyxygirl Thank-you for the article about the debate doctors are having. I was good to read...
works so quickly and provides fast pain ... long term prednisone use waiting for PMR ... When my cortisol level was found to ... Only when my cortisol level was adequate ... As far as I know, PMR is now in complete
@joan7 Your disease progression is remarkably similar to mine. I'm 64 years old, male, northern European...
PMR started on January 14, 2023, and ... was very severe, with excruciating pain ... broken in my body, extraordinarily high levels ... inflammation (10x higher than most with PMR
When my PMR was active and I was tapering, I would wake up with a pain...
When my PMR was active and I was tapering ... , I would wake up with a pain level ... The rest of the day was relatively pain ... prednisone treatment was to help the pain
Hello to Dadcue, Tuckerp and all my fellow PMR people! I have read all your posts...
Dadcue, Tuckerp and all my fellow PMR ... all your posts here in regards to PMR ... I was feeling weak and the pain in my ... the antibiotics but I had the worst pain ... was at least back to normal pain levels
Discussion: Flare
Posted: Nov 26, 2024
Don't get your hopes up too much because there isn't that much that can be done...
Except that a low cortisol level seemed ... inflammation and the ensuing joint and muscle pain ... I have no idea if it was a PMR flare ... I think PMR inflammation necessitated ... Maybe a combination of PMR and a low
Hi @dadcue, I also find your posts very helpful and was hoping you could share more...
I have had significant pain with tapering—even ... of Prednisone in my 2.5 years with PMR ... My pain becomes unbearable (7 to 8 level ... I do believe that my shoulder pain may ... slightly improved but the hip and back pain
Posted: Nov 19, 2024
@michcan1, Do you keep a daily log with your dose and your level of pain when...
daily log with your dose and your level ... of pain when you first get up in the ... You mentioned the PMR pain was about ... level was above what I considered too ... much (anything above a 2 on my pain
Posted: Nov 17, 2024
"My recent tests showed adrenal insufficiency, after I had gone down from 5 to 4 mg....
mentioned, with 5 mg I still have pain ... mg certainly would erase most of my pain ... Was it an a.m. cortisol level or a synacthen ... still needed prednisone to control my PMR
Posted: Nov 11, 2024
Question is how much pain is worth tolerating to keep reducing prednisone? ------------------------------- I don't think...
Question is how much pain is worth tolerating ... should keep reducing with increasing pain ... Similarly, "tolerable pain" ... levels and side effects allow --- faster ... Only you can decide how much pain is
Posted: Nov 7, 2024
In my opinion, prednisone perpetuates PMR after the adrenals are suppressed. I wonder how many people...
my opinion, prednisone perpetuates PMR ... adrenal insufficiency and a low cortisol level ... of adrenal insufficiency pain because ... Actemra targeted the problem of excess levels ... After my cortisol level normalized,
Posted: Oct 25, 2024
Hi @anncoco57, I had pain in the feet and legs including the back of my knees...
Hi @anncoco57, I had pain in the feet ... the back of my knees for my first PMR ... up but can't remember if I had pain ... of your prednisone dosage and your level ... of pain when you get up in the mornings
Posted: Oct 21, 2024