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2,922 total results
Comments (2,755)
I don't fit your criteria but I am commenting anyway. I am in my seventh year...
my seventh year of what started as pmr ... I am stuck at 3 mg prednisone for the ... Having tried to taper below 3 mg twice
Posted: Jul 31 7:45am
Hi again Dad, Missed your messages. I apologize for not staying more interested…just quite disappointed in...
was a lot of up and down dosage of prednisone ... want me to have before I stop the taper ... been above 36 so he says it’s not PMR
Posted: Jul 4 7:01pm
"I guess this is pretty much a "see how it goes" routine for now. A whole...
I only know that I was in a PMR world ... pain crisis to the next when I was on Prednisone ... Actemra, I had a rough time getting off prednisone ... Now I have successfully tapered off ... Prednisone.
Posted: Jun 26 7:05am
Your inflammation markers being normal may only indicate the current dose of prednisone is correctly eliminating...
only indicate the current dose of prednisone ... That is a good base to attempt to taper ... but it doesn't indicate that the PMR ... Tapering too low could allow inflammation ... inflammation level associated with PMR
Posted: Jul 3 6:56pm
Doc, I have been under treatment for GCA and PMR for 12 months. I started at...
have been under treatment for GCA and PMR ... I started at 60 mg of prednisone per ... I have tapered over the past year to ... I hope to be finished with prednisone ... or symptoms at all from the GCA or PMR
Discussion: PMR/GCA
Posted: Jul 8 7:46am
Did you enjoy the meteor showers of flashing lights? I would have every kind of visual...
to treat PMR, I can't remember ... to try Actemra to treat refractory PMR ... Actemra worked great for PMR and allowed ... me to taper off prednisone. ... Unfortunately, within 2 weeks of tapering
Posted: Jul 8 6:20pm
I must be very fortunate. My GP whom I saw last week for my yearly Wellness...
info as my rheumatologist regarding tapering ... prednisone and basic general info regarding ... ) my GP is knowledgeable regarding PMR
Posted: Jul 5 11:52am
I have learned my lesson several times about trying to do to much. I woke up...
I was started on 9 mg of prednisone ... increased me back to the 9mg with a longer taper ... trying to keep positive and reduce the prednisone ... has brought up Kevzara if I cannot taper ... I am quickly learning that this PMR
Posted: Jun 14 7:36pm
That's a very fast prednisone taper you've done - five months to reduce from 35mg prednisone...
That's a very fast prednisone taper ... - five months to reduce from 35mg prednisone ... Prednisone withdrawal can cause pain ... can be indistinguishable from the PMR ... doctor order such an unusually fast taper
That sounds like a big disaster waiting to happen. You've been on prednisone a long time,...
You've been on prednisone a long ... When I started tapering down from 5 ... mg, my rheumatologist told me to taper ... take weekly Actemra injections, so my PMR ... You could also have a bad PMR flare.
Ask Dr abt Kevzara…..game changer for me. I was stuck at 8mg prednisone and was able...
I was stuck at 8mg prednisone and was ... able to taper quickly. ... (over 14 weeks) I’m down to 2.5 mg prednisone ... No side effects, or PMR flares.
Discussion: PMR and the taper
Posted: Jun 25 5:49pm
"The one inflammation/pain flare I had last year felt like a huge setback and kicked off...
disorders that were diagnosed prior to PMR ... long time after PMR was diagnosed. ... nasty things were nothing like how PMR ... the other things were all because of PMR ... long-term use, requiring a gradual taper
Posted: Jun 26 8:40am
Kevzara is great!! Been on it for about a year now. It works better than Prednisone...
It works better than Prednisone for ... Tapering off Prednisone has been hard ... different inflammation receptors than Prednisone ... - I think my PMR is more active on
Posted: Jun 27 8:56am
I've been running and lifting weights for almost 50 years. I had PMR for a year...
I had PMR for a year before being diagnosed ... but once I started taking 60 mg of prednisone ... a day for the GCA and PMR, I was able ... I had some trouble when I was tapering ... can exercise while you're taking prednisone
Since I have never been diagnosed with GCA, I don't know how pertinent my experience with...
I took Prednisone for 12 years to treat ... PMR. ... Actemra allowed me to taper off prednisone ... and stay off prednisone. ... I never want to take Prednisone again
A PCP decides to refer patients to a rheumatologist when PMR gets complicated. Some people do...
patients to a rheumatologist when PMR ... Tell us more about 9 months of PMR and ... Relapsing PMR often happens before ... we taper off Prednisone. ... in to see what else can be done for PMR
Posted: Jul 5 9:09pm
I have an overlap of RA, psoriatic and spondylitis - I started methotrexate with folic acid...
Medrol with it (that’s about 10 mg of Prednisone ... We’ve tried repeatedly to taper from ... The goal is usually to try tapering ... think it’s a different regimen for PMR
Support Group: Autoimmune Diseases
Posted: Aug 7 11:09am
I started with Actemra injections on January 1st, 2019. It took me over a year to...
It took me over a year to taper off ... never relapsed while on Actemra but PMR ... After Actemra was restarted I easily tapered ... off Prednisone again. ... It only took me one month to taper off
Posted: Aug 10 5:26pm
Similar experience with a similar medication but not Kevzara. I was on Actemra which is another...
When Actemra was started for PMR, I ... tapered rapidly down to 3 mg. ... scattered aches and pains that felt like PMR ... symptoms of adrenal insufficiency with a PMR ... for 12 years for PMR.
Posted: Jul 4 6:31am
"Frankly the list of side affects scares the heck out of me, and I’m wondering if...
hardly any side effects compared to Prednisone ... It was relatively new treatment for PMR ... about the side effects on another PMR ... These same people downplayed all the Prednisone ... I was able to taper off Prednisone for