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284 total results

Comments (266)

Hello, it is me that is being treated for Erythromelalgia right now! There is no test...

https://connect.mayoclinic.org/comment/1146215/

it is me that is being treated for Erythromelalgia

Discussion: What is wrong with me?!

Support Group: Fibromyalgia

Posted: Sep 23 3:11pm

Good Morning and yes I have stretching regimen every morning and now include IT Band stretches....

https://connect.mayoclinic.org/comment/1149539/

have also been diagnosed with is EM (Erythromelalgia

Discussion: Is My 4 yr old Artificial Knee Joint Failing??

Support Group: Joint Replacements

Posted: Sep 30 5:29am

Erythromelalgia is hard enough to get through the days with even if you're a mature lady...

https://connect.mayoclinic.org/comment/213686/

Erythromelalgia is hard enough to get

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: May 27, 2019

Guess I'm in the same boat as you.. It just isn't fun being sick all the...

https://connect.mayoclinic.org/comment/257233/

also have the hot red burning feet (Erythromelalgia

Discussion: Have You Made Any Kind of Peace With Having Your Neuropathy?

Support Group: Neuropathy

Posted: Mar 30, 2019

I have the same problem mainly on my right lower leg and my calf seems to...

https://connect.mayoclinic.org/comment/996552/

diagnosed by Mayo's in 2006 with Erythromelalgia

Discussion: Burning Ankes

Support Group: Neuropathy

Posted: Jan 13 9:52am

I am now into my third month of IvIg infusions. My immunologist, on the basis of...

https://connect.mayoclinic.org/comment/1053401/

Has anyone been diagnosed with erythromelalgia

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 19 12:08am

My mother in law is a pharmacist, and she brought me CBD oil cream, gummies, and...

https://connect.mayoclinic.org/comment/203695/

CBD, for my pains from neuropathy, erythromelalgia

Discussion: CBD oil for Neuropathy

Support Group: Neuropathy

Posted: Mar 29, 2019

The burning tingling pain started in my feet mildly in 2017. I was misdiagnosed with neuropathy....

https://connect.mayoclinic.org/comment/1040717/

neurologist who diagnosed me with ERYTHROMELALGIA ... areas because of the vascular part of Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 26 4:30pm

At work but sure - I have cryptogenic/idiopathic small fiber polyneuropathy (non-length-dependent) verified via skin punch...

https://connect.mayoclinic.org/comment/616566/

have Cramp Fasciculation Syndrome and Erythromelalgia

Discussion: Just Diagnosed with Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jul 14, 2021

I am still rather lost on Connect.. Hopefully this is where I continue with my reports...

https://connect.mayoclinic.org/comment/260502/

NEUROPATHY that I'm trying for Erythromelalgia

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 1, 2019

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

goiter, what the dermatologist calls erythromelalgia

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18 9:55am

The burning tingling pain started in my feet mildly in 2017. I was misdiagnosed with neuropathy....

https://connect.mayoclinic.org/comment/1040743/

neurologist who diagnosed me with ERYTHROMELALGIA ... areas because of the vascular part of Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 26 5:20pm

Thank you for moving my post to autoimmune issues.. As for diagnosis of Erythromelalgia, I had...

https://connect.mayoclinic.org/comment/213662/

As for diagnosis of Erythromelalgia,

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2019

After reading others experiences with Erythromelalgia and already dealing with it in my feet, I guess...

https://connect.mayoclinic.org/comment/213734/

After reading others experiences with Erythromelalgia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Oct 4, 2020

Yes, its been fun looking at all the sales! For awhile I had unexplained hand burning...

https://connect.mayoclinic.org/comment/311834/

I was doing research and found Erythromelalgia

Discussion: Sun exposure advice

Support Group: Autoimmune Diseases

Posted: May 25, 2020

DAY 6 of my experiment using Frankincense and Myrrh NEUROPATHY daily... It took a few days...

https://connect.mayoclinic.org/comment/260511/

With Erythromelalgia in my feet, especially

Discussion: Frankincense and Myrrh for Neuropathy pain

Support Group: Neuropathy

Posted: May 7, 2019

Good afternoon - while I am not happy that you are suffering at least I feel...

https://connect.mayoclinic.org/comment/596072/

might have a form of Neuropathy and Erythromelalgia

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 21, 2021

@ txbren and @jcmoffatt I have Erythromelalgia and Burning Feet Syndrome (Grierson-Gopalan Syndrome); my burning foot...

https://connect.mayoclinic.org/comment/882731/

@ txbren and @jcmoffatt I have Erythromelalgia ... foot disease was caused/trigged my Erythromelagia

Discussion: Anyone out there with Erythromelalgia?

Support Group: Autoimmune Diseases

Posted: Jun 21, 2023

It's early morning now.. I woke up at 5:00 a.m. with my feet burning and red.....

https://connect.mayoclinic.org/comment/71931/

neuropathy, as I have, along with Erythromelalgia

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: Jul 4, 2019

You seem to have a good handle on what constitutes a good diabetic diet... Since I...

https://connect.mayoclinic.org/comment/257451/

My feet are always either too hot (erythromelalgia

Discussion: Cold feet

Support Group: Diabetes & Endocrine System

Posted: Jun 17, 2019