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352 total results
Comments (337)
The curious thing about the "dead slow nearly stop" (DSNS) tapering method is that the person...
that the person who identifies as the PMR ... a "pro" comes from having PMR ... life because there wasn't any alternative ... to prednisone for PMR. ... my doctors, they came up with some alternative
What a timely and valuable post. I was diagnosed with PMR in October but changed to...
I was diagnosed with PMR in October ... and anxiety go hand and hand with prednisone ... We all know PMR/GCA are not like the ... struggle to remind myself but what’s the alternative
Posted: Mar 20 11:51am
The research effort was something we could only dream about in the not so distant past....
#34; at least initially for GCA and PMR ... The great thing about this PMR/GCA forum ... sharing their personal experiences with alternatives ... to prednisone. ... tsunami-of-effortbrings-biologics-to-the-forefront-in-giant-cell-arteritis-pmr
@inga71 So I asked my AI tool, MS Copilot "what are the DMARD medications used to...
the DMARD medications used to treat PMR ... agent Leflunomide, csDMARD, Possible alternative ... IL‑6), FDA‑approved for refractory PMR ... Only two drugs are FDA‑approved for PMR ... - Prednisone (Rayos®) and Sarilumab
Discussion: Prednisone
Posted: Mar 21 1:15am
At 66, diagnosed with PMR Oct. 2025. On 10 mg prednisone with all symptoms resolved, until...
At 66, diagnosed with PMR Oct. 2025. ... On 10 mg prednisone with all symptoms ... the only analgesic ok to take with prednisone ... a very serious diagnosis with life altering
@dadcue I wander where and how Acterma is given and taking, and if it is prescribed...
This year I was diagnosed with PMR ... looks like have no choise as started prednisone ... helped for about 3 weeks but than all PMR ... Therefore, looking for any alternative ... is it taking with prednisone or instead
@prettypatti76 My Prednisone side effects were numerous but I didn't always realize they were prednisone side...
@prettypatti76 My Prednisone side ... My prednisone side effects were somewhat ... not much of it is being caused by PMR ... 't a good treatment option for PMR ... I think there are better alternatives
@dadcue Hi Mike, I have been on prednisone for PMR and trying to taper. I am...
@dadcue Hi Mike, I have been on prednisone ... for PMR and trying to taper. ... I am currently alternating 7 mg one ... going back up to 7.5 mg to and then alternating ... that you were able to come off the prednisone
Posted: Mar 5 3:28pm
@abbeyc "I believe the doctors kept me on Prednisone much longer than needed because they could...
flawed because that assumes all pain is PMR ... I simply didn't want the alternative ... There still needs to be alternatives ... Actemra has taken PMR out of the overall ... picture because I no longer have PMR
Posted: Feb 23 10:25am
BTW I had serious liver problems from one of the alternative PMR medications. It is a...
serious liver problems from one of the alternative ... PMR medications. ... That is why I went back on prednisone
Posted: Jan 27 6:08pm
I am not taking a biologic. I've been taking prednisone for seven years. The last several...
I've been taking prednisone for ... I was told I could try alternating ... I started alternating 3mg/2.5mg. ... have not taken any other meds for pmr ... I'm feeling like the pmr has &#39
thereselefecver and all, I’ve always been very optimistic with a positive mental attitude. Recently, I’ve discovered...
Before PMR I only took Levothyroxin ... Then, Prednisone made all pain go away ... I think (I feel certain) the Prednisone ... started me on Kevzara to get me off Prednisone ... sleep and prescription drugs that alter
Discussion: PMR and Depression
Posted: Jan 28 11:38am
Well, mcds80, I am 65, for 4 more days! Not in the younger group, but feel...
crawling into bed and all the life altering ... symptoms that comeceith PMR. ... I began 10 mg of prednisone and within ... I am told I need to be on the prednisone ... I started the prednisone early Oct.
Posted: Jan 21 3:15pm
@shoregirljill Hi there. I have tapered down to 7mgs from 10 by doing the alternating days....
down to 7mgs from 10 by doing the alternating ... is when I knew I had to start with alternating ... From there I alternated 8 & 7.5 ... insufficiency as well as flare ups of PMR ... body is more apparent as I reduce the prednisone
Posted: Jan 14 3:05pm
HI @sgp, My anemia was diagnosed shortly before I was diagnosed with Giant Cell Arteritis. I...
I had PMR before. ... #34; Apparently chronic inflammation alters ... but Once I started treatment with Prednisone
Support Group: Autoimmune Diseases
Posted: Jan 11 2:05pm
I am a dentist and have had PMR for 35 years. I have taken prednisone off...
I am a dentist and have had PMR for ... clinical studies that show a link between PMR ... not experienced it as a person with PMR ... patients taking prednisone. ... Altered salivary composition may contribute
Posted: Feb 27 11:05am
@jeff97 "I'm tired of being tired." ---------------------- That probably stems from adrenal suppression. Regardless ... everything...
back to being treated long term with prednisone ... the fingers were all pointing toward prednisone ... PMR and my other autoimmune problems ... However, being on an alternative to ... prednisone solved many of my additional
Hello @betsyhase, I saw your other discussion that mentioned you were recently diagnosed with PMR and...
mentioned you were recently diagnosed with PMR ... and started on 12 mg prednisone and ... For both occurrences of my PMR, my starting ... treatment of either of my PMR occurrences ... already to see if there may be an alternative
Discussion: Is this common?
Posted: Feb 11 5:37pm
@lori62yb I started kevzara at 5 mg of prednisone 3 months ago. I have tapered to...
lori62yb I started kevzara at 5 mg of prednisone ... I will have been on prednisone for 6 ... for PMR for the last 15 years of her ... Anyone that is a candidate for an alternative ... to hope for long term freedom from PMR
Posted: Feb 6 10:11am
Welcome buc153. I am 65 and self diagnosed last July/ August after onset of life altering...
last July/ August after onset of life altering ... research, he asked if I thought it was PMR ... He started me on 15 mg of prednisone
Discussion: Newly diagnosed
Posted: Jan 22 4:16pm