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154 total results
Comments (147)
I've been on monthly Actemra infusions since January 2025. Actemra allowed me to taper off of...
don't have, which I had during PMR ... , is the fatigue. ... /GCA. ... I was always very active before PMR/ ... GCA.
@elleninz I started Tyenne in January. My doctor Dx GCA in early Nov and tried to...
My doctor Dx GCA in early Nov and tried ... I had asymptomatic GCA so did not need ... old-age type pains in joints rather than PMR ... pains, increased fatigue, interaction
I have pretty much had the same issues as has been mentioned in the comments so...
He diagnosed me with PMR and placed ... There is a good chance I have GCA, jaw ... So much fatigue, light headed and brain
Posted: Mar 8 10:09am
I was diagnosed with PMR last October! It has been a struggle and am on 60mg...
I was diagnosed with PMR last October ... now due to side effects similar to GCA ... want to lay down and sleep, so much fatigue
Posted: Mar 10 7:39am
@jr46 I'm sorry you developed GCA in addition to PMR. I also have both of them....
@jr46 I'm sorry you developed GCA ... in addition to PMR. ... ;m currently experiencing a little fatigue ... ;s from age (72), the Actemra, the PMR ... and GCA, or something else.
@tuckerp because my inflammation markers are abnormal and my body is responding to Prednisone, it is...
Prednisone, it is thought that I have PMR ... and a question of GCA. ... enough to cause the degree of pain and fatigue
Posted: Mar 3 9:42pm
I had undiagnosed PMR for about 6 months before I developed symptoms of GCA. The GCA...
I had undiagnosed PMR for about 6 months ... before I developed symptoms of GCA. ... My GCA symptoms were low grade fever ... on my scalp, and jaw claudication (fatigue ... monthly Actemra infusions to treat the PMR
Your experience was similar to mine, except it sounds like I had worse problems at the...
I had undiagnosed PMR for about 7 months ... , and then PMR and GCA symptoms for ... the ears and on my scalp, a lot of fatigue ... I know that my PMR and GCA have been ... I had extreme fatigue when I chewed
Posted: Mar 3 6:49pm
@linda7 "He told me that in my present condition, without any major side effects from prednisone,...
It hasn't been learned for PMR/GCA ... Prednisone after 12 years of treating PMR ... adrenal function while it controlled PMR ... The overwhelming fatigue on low doses ... than 3 mg of Prednisone to control PMR
@pmrnew Be careful if you're not going to take prednisone. I developed PMR about 3 years...
I developed PMR about 3 years ago, and ... After a few months of untreated PMR ... Anyone with PMR needs to be familiar ... Up to 20 percent of people with PMR ... grade fever, pain in my cheekbones, fatigue
Discussion: New PMR diagnosis
Posted: Jan 26 12:19pm
@peaceprevail7 I had PMR for several months before developing GCA. The PMR was primarily stiffness in...
@peaceprevail7 I had PMR for several ... months before developing GCA. ... The PMR was primarily stiffness in the ... around my ears and on top of my head, fatigue ... and PMR.
Julie - I will reply, however I am on weekly home injectables and just started my...
I have had PMR/GCA Vasculitis since ... 2019 and was only diagnosed with PMR ... I do not have cranial GCA which means ... I did not have classic GCA symptoms ... pain, IBS-D, neuropathy, cold chills, fatigue
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
All those symptoms of extreme fatigue ... happen but nothing remotely like a PMR ... Kevzara is FDA approved for PMR and ... Actemra is only FDA approved for GCA ... that was recently FDA approved for GCA
Discussion: Tapering pain
Posted: May 6, 2025
When I had untreated GCA my jaw muscles got extremely fatigued when I was chewing food....
When I had untreated GCA my jaw muscles ... got extremely fatigued when I was chewing ... I also had undiagnosed PMR before the ... GCA, so lots of stiffness all over, ... 't have PMR.
Discussion: Possible GCA
Posted: Feb 21, 2025
It's been over 2 years on my search for a diagnosis. Started with blood cancer diagnosis...
m back to square one with horrible fatigue ... saying based in my Mom's AIs - PMR ... , GCA and Raynauds and she also had ... said no wonder you were extremely fatigued
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
having familiar symptoms of extreme fatigue ... weren't anything like my original PMR ... to both adrenal insufficiency and PMR ... /GCA symptoms.
The chapter on GCA and PMR in a medical textbook (Goldman and Sachs) lists anemia as...
The chapter on GCA and PMR in a medical ... ." When I was diagnosed with GCA ... I also was quite fatigued before taking
Discussion: Tiredness
Posted: Jul 28, 2024
I was first diagnosed with PMR in August, 2023, and I was also worried that I...
I was first diagnosed with PMR in August ... of the 8 of symptoms along with the PMR ... FACT: Only 10% of people with PMR get ... Fatigue - PMR Unintended ... 8 symptoms and still did not have GCA