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135 total results
Comments (128)
I have GCA and PMR. I got relief immediately from prednisone, but I started at 60...
I have GCA and PMR. ... 10 mg is a low starting dose for PMR ... and or GCA. ... also develop GCA, which is an illness ... tenderness, weight loss, night sweats, or fatigue
Posted: Aug 25 1:28pm
"I need to figure out the difference between a PMR flare and adrenal insufficiency pain." ---------------------...
figure out the difference between a PMR ... PMR pain and adrenal insufficiency pain ... doses the prednisone.The pain and fatigue ... when I was taking Actemra to keep PMR ... PMR and GCA are lagging behind in terms
Posted: Sep 10 11:16am
I was diagnosed with GCA and PMR about 15 months ago. I am currently taking weekly...
I was diagnosed with GCA and PMR about ... prednisone, I started having problems with fatigue ... I was on a high dose due to GCA.
Posted: 8 hours ago
HI, @sbtheplumber, best to seek medical help immediately. If you experience any visual disturbance, go to...
GCA can cause loss of vision and blindness ... I had PMR for a number of months, then ... GCA and relapsed once so far. ... tenderness, a dry cough, loss of appetite, fatigue ... you currently taking anything for PMR
Posted: Jun 22 3:17pm
I think you're right. I've tapered over the past year from 60 mg prednisone down to...
mg prednisone down to 2, to treat GCA ... and PMR. ... occasional days where I felt minor anxiety, fatigue ... takes at least 1 - 2 years for the PMR
Posted: Jun 29 3:42pm
It's been over 2 years on my search for a diagnosis. Started with blood cancer diagnosis...
m back to square one with horrible fatigue ... saying based in my Mom's AIs - PMR ... , GCA and Raynauds and she also had ... said no wonder you were extremely fatigued
When I had untreated GCA my jaw muscles got extremely fatigued when I was chewing food....
When I had untreated GCA my jaw muscles ... got extremely fatigued when I was chewing ... I also had undiagnosed PMR before the ... GCA, so lots of stiffness all over, ... 't have PMR.
Discussion: Possible GCA
Posted: Feb 21 1:50pm
@terrym Why do you see an endocrinologist? I was originally referred to an endocrinologist when I...
All those symptoms of extreme fatigue ... happen but nothing remotely like a PMR ... Kevzara is FDA approved for PMR and ... Actemra is only FDA approved for GCA ... that was recently FDA approved for GCA
Discussion: Tapering pain
Posted: May 6 11:16am
I had a great response from Actemra. My first dose was on January 1st, 2019. It...
having familiar symptoms of extreme fatigue ... weren't anything like my original PMR ... to both adrenal insufficiency and PMR ... /GCA symptoms.
The chapter on GCA and PMR in a medical textbook (Goldman and Sachs) lists anemia as...
The chapter on GCA and PMR in a medical ... ." When I was diagnosed with GCA ... I also was quite fatigued before taking
Discussion: Tiredness
Posted: Jul 28, 2024
I was first diagnosed with PMR in August, 2023, and I was also worried that I...
I was first diagnosed with PMR in August ... of the 8 of symptoms along with the PMR ... FACT: Only 10% of people with PMR get ... Fatigue - PMR Unintended ... 8 symptoms and still did not have GCA
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
PMR but just hoped and prayed he wouldn ... as he was tapering off Prednisone (PMR ... had low-grade fever on and off) - Fatigue ... With these illnesses, both PMR and GCA ... As far as PMR, I'm not sure it&#39
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
was somewhat a relief that my dad’s PMR ... ’s my understanding that untreated PMR ... there’s still the risk of developing GCA ... dad’s case, he had the debilitating fatigue ... and pain that’s indicative of PMR,
Posted: Apr 17, 2024
I have a different perspective on this because I’m a daughter of someone with PMR. I...
because I’m a daughter of someone with PMR ... With GCA the effects are scarier, so ... what was being done to monitor for GCA ... joints, and the arteries in the case of GCA ... saw him—that he would appear very fatigued
Hello, all... I had the first Covid infection last July 2023, then again was infected in...
infections, and I'm dealing with PMR ... and GCA taking Prednisone and Methotrexate ... I developed PMR, GCA and daily asthma ... pain, joint flares, and developed PMR ... and GCA.
@cropdoc, @emo, @ae2024, and all... YES! ITS AWFUL! Since Covid last July and again in November,...
, GCA, and Sarcoidosis flares after ... The PMR and GCA are residual from Covid ... I have less fatigue, less pain all over ... , GCA, Sarcoid flares, shortness of ... breath, fatigue, increased edema/neuropathy
Unfortunately in my experience over the last 1 1/2 years with PMR there are many different...
experience over the last 1 1/2 years with PMR ... to protect me from going blind with GCA ... ve struggled a lot with incredible fatigue
I have had 15 treatments of ACTEMRA for GCA (I also have PMR) but wanted to...
have had 15 treatments of ACTEMRA for GCA ... (I also have PMR) but wanted to know ... hight cholesteral, tryglicerides and fatigure ... lose hope as I was diagnosed with PMR ... in May 2022 and GCA Sept 2022.
I had epstein-Barr and mono feels like 100 years ago. Both were awful. I was very...
Epstein-Barr was then called chronic fatigue ... 17 to Epstein-Barr to Raynauds to PMR ... to GCA. ... I’m 81 and still on prednisone for GCA ... disease that was diagnosed promptly was GCA
Discussion: Epstein barr
Support Group: Autoimmune Diseases
Posted: Oct 28, 2023
Hi @gcaunder50, terrible fatigue is one of the symptoms of PMR/GCA. It can be caused by...
Hi @gcaunder50, terrible fatigue is ... one of the symptoms of PMR/GCA. ... alleviate your fatigue? ... /PMR. ... PMR and GCA are viewed as self-limiting