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177 total results
Comments (173)
Hi @bunnykfl, I've had PMR twice and was able to taper off of prednisone both times...
https://connect.mayoclinic.org/comment/1125041/
twice and was able to taper off of prednisone ... don't have any experience with Actemra ... by members when searching for "Actemra ... and prednisone +remission" - https ... search=Actemra+and+prednisone+%2Bremission
What you have experienced is very common. I think PMR is like other autoimmune conditions because...
https://connect.mayoclinic.org/comment/1528955/
recurring pattern characterized by remission ... by relapses following a period of remission ... , stays active and never goes into remission ... been shown to provide "sustained remission ... relapses thanks to a biologic called Actemra
@jfannarbor Yes .. according to my medical records, my Prednisone use has spanned "decades." I would...
https://connect.mayoclinic.org/comment/1526107/
My very first dose of Prednisone was ... how quickly uveitis would go into remission ... and achieve remission again in a month ... for the rest of my life -- Actemra ... I'm still on Actemra but I have
I debated whether or not to post this but after giving it a lot of thought...
https://connect.mayoclinic.org/comment/1526152/
I was on Actemra for 5 years for PMR ... great in that it allowed me to get off prednisone ... So, I restarted the Actemra. ... fungal for 3 months and am currently in remission ... struggling to control it with low dose prednisone
@alandy233 & re: Jeff. I also have PMR/GCA. My rheumatologist put me on 60 mg of...
https://connect.mayoclinic.org/comment/1481629/
rheumatologist put me on 60 mg of prednisone ... During that year I was also placed on Actemra ... Fortunately, the Actemra worked very ... three months until I was deemed in remission ... heal so I had to come off my meds ( Actemra
@alandy233 I'm sorry you are having such difficult problems with your vision. I was fortunate that...
https://connect.mayoclinic.org/comment/1480815/
you received and 6 weeks of 60 mg prednisone ... helped me to eventually get off of prednisone ... When I google "does Actemra help ... helps patients stay in remission longer ... starting you back at a high dose of prednisone
@aussiedogmom As far as I know ... you are correct. In addition to PMR, I have...
https://connect.mayoclinic.org/comment/1474953/
Actemra allowed me to taper off Prednisone ... My ophthalmologist abruptly stopped Actemra ... Uveitis went into remission again but ... ultimately I decided to go back on Actemra ... When Actemra was restarted, I tapered
@retiredphil I started Actemra on January 1st 2019 for PMR. It took me nearly 2 years...
https://connect.mayoclinic.org/comment/1469399/
nearly 2 years to get completely off Prednisone ... I have now been off prednisone for ... Actemra put PMR quickly into remission ... function like prednisone did. ... instead of prednisone.
@elleninz Hi my diagnosis is the same as yours, but with PMR too. Actemera ( initially...
https://connect.mayoclinic.org/comment/1498333/
Actemera ( initially & concurrent ... my disease , I went quickly into a remission ... GCA /PMR , and quickly tapered off prednisone ... and I’ve remained in medication free remission ... that can come from extended use of prednisone
@judith75 Don't let hives and going back to 50 mg discourage you. When I tapered off...
https://connect.mayoclinic.org/comment/1482984/
time, I needed 60 mg of prednisone ... worked for uveitis because it went into remission ... intolerable and uveitis was in remission ... months to make sure uveitis was in remission ... month to put PMR back into remission
I was diagnosed with GCA from symptoms in April—awful headache constantly for nearly three weeks across...
https://connect.mayoclinic.org/comment/1469586/
which was inconclusive, but began prednisone ... My goal is remission without relapse ... anyone with good or bad experiences on Actemra
@stonewheel Some people are able to discontinue their biologic after a period of time and they...
https://connect.mayoclinic.org/comment/1472656/
experience a sustained or permanent remission ... England, patients are required to stop Actemra ... England they go back on prednisolone (prednisone ... Prednisone might be said to attack muscles ... traditional immunosuppressants like prednisone
@kare1 It sounds like your prednisone dose is a little too low. 10 months of treatment...
https://connect.mayoclinic.org/comment/1499468/
@kare1
It sounds like your prednisone ... studies showing sustained, steroid-free remission ... . "
Prednisone, Kevzara, and ... Actemra are all considered high risk ... for a long time or if prednisone isn
I do an Actemra infusion every month. I'm pre-medicated with 25 mg of benedryl and 650...
https://connect.mayoclinic.org/comment/1503684/
I do an Actemra infusion every month ... I was on Actemra injections before I ... The only thing Actemra does to me is ... I have been off Prednisone for 5 years ... All my autoimmune disorders stay in remission
Tocilizumab (Tyenne/Actemra) doesn't work completely for everyone. People have different amounts of the inflammatory substances that...
https://connect.mayoclinic.org/comment/1506913/
Tocilizumab (Tyenne/Actemra) doesn' ... Actemra has worked very well for me. ... I have been off of prednisone for 6 ... Polymyalgia Rheumatica (PMR) goes into remission ... way through a 3 year plan of using Actemra
@dadcue Hi Mike, Thanks for your reply. Being a "worry wart" [NOT good for anyone!], I'm...
https://connect.mayoclinic.org/comment/1485770/
often out of our control...glad that Actemra ... of Prednisone. ... But also glad that Prednisone initially ... impression that it would be 2 years, remission ... (Unlike Prednisone which made me feel
@mun68 I know that sciatic pain you are referring to --- it was soooo painful, I...
https://connect.mayoclinic.org/comment/1452915/
sciatic pain was while I was still on Prednisone ... I'm off Prednisone but I still don ... I'm on Actemra which keeps PMR in ... remission and that controls my pain ... My PCP says Actemra only controls inflammation
@kimmgb I was diagnosed with GCA (after biopsies on both sides of temple region) approx 7...
https://connect.mayoclinic.org/comment/1442582/
Due to adverse reaction to Prednisone ... dose for too long) I began monthly Actemra ... I am in remission re: the GCA.
"The PMRGCAuk forum asked people for a brief summary of their experience with Actemra." --------------------------- If...
https://connect.mayoclinic.org/comment/1398398/
allowed me to stay off Prednisone for ... I have been completely off Prednisone ... The advice was to take more Prednisone ... was counter to the narrative that prednisone ... 20respondents%20was,recapture%20GCA%20remission
That is a good question! I think most rheumatologists are reluctant to start elderly people on...
https://connect.mayoclinic.org/comment/1378411/
It was prednisone by default because ... My treatment with Actemra has achieved ... remission of PMR and is also preventing ... pain while we wait for PMR to go into remission ... It can be a long wait for remission
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