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80 total results
Comment
I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you...
Communities like Aortic Hope or Marfan ... Foundation (even if you don’t have Marfan ... syndrome, they deal with connective
Support Group: Aortic Aneurysms
Posted: Jan 26 10:27am
Comment
Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart) Marfan ... Abnormal thumb joints Reynauds Syndrome
Comment
I just want to add this: Knowing that you have an enlarged aorta means you can...
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
Support Group: Aortic Aneurysms
Posted: Dec 29, 2024
Comment
Hi @kariulrich thank you for sharing your experience! That is very helpful. I have no idea...
I've been evaluated for Marfan twice ... particular, so he also was leaning towards Marfans ... are more prevalent in people with Marfan ... Syndrome so that's the most likely
Support Group: Visiting Mayo Clinic
Posted: Nov 6, 2017