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Thank you for sharing your post. I survived a complete Type A-1 ascending aortic dissection at...
genetic testing for conditions like Marfan ... syndrome, Loeys-Dietz syndrome, or
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I’m 60 now. I had a complete sudden dissection at 50. I understand how worried you...
Communities like Aortic Hope or Marfan ... Foundation (even if you don’t have Marfan ... syndrome, they deal with connective
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Hi Colleen, Thanks for asking... I worked hard last night to get some of the symptoms...
connective tissue disorders (Ehlers-Danlos Syndrome ... , Marfan Syndrome, Chiari Malformation ... (head pounds to beat of heart)
Marfan ... Abnormal thumb joints
Reynauds Syndrome
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I’m sorry to hear about the challenges you’re facing with your ascending aortic aneurysm and the...
Conditions like Loeys-Dietz syndrome ... or Marfan syndrome could predispose
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I just want to add this: Knowing that you have an enlarged aorta means you can...
RISK FACTOR: Certain genetic syndromes ... potentially fatal aortic dissection: Marfan ... syndrome, Loeys-Dietz syndrome, Turner ... syndrome and Vascular Ehlers-Danlos ... syndrome.
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