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I agree that you probably tapered too soon after starting Kevzara, and your prednisone dose is...
https://connect.mayoclinic.org/comment/1520491/
When I started Actemra to treat GCA ... I never had any symptoms of GCA or PMR ... once I started treatment.
6 shots
Comment
@caroljeand -- I really appreciate your response to my inquiry. Your sense that my treatment should...
Your sense that my treatment should ... be addressing GCA/PMR is reassuring ... I'll keep pursuing treatments for ... perspective of fellow travelers on the GCA
Comment
Your experience was similar to mine, except it sounds like I had worse problems at the...
for about 7 months, and then PMR and GCA ... The GCA symptoms were low grade fever ... any symptoms or flares of the PMR or GCA ... I know that my PMR and GCA have been ... well controlled by basically the same treatment
Comment
@alonna I was Dx with PMR in 2020, been sick for a year prior to Dx....
Was Dx with asymptomatic GCA Vasculitis ... I have only had 7 of the weekly treatments
Comment
@dougrout I think the vascular surgeon is right. After starting Prednisone it is hard to interpret...
that it isn't a "targeted treatment ... your symptoms sounds consistent with GCA ... www.hopkinsvasculitis.org/vasculitis-treatments
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