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I debated whether or not to post this but after giving it a lot of thought...
https://connect.mayoclinic.org/comment/1526152/
was on Actemra for 5 years for PMR/GCA ... symptoms which I thought were related to GCA ... I’m now 7 months into treatment for ... Treatment for this has been challenging ... of GCA and PMR, but make sure you understand
Comment
I agree that you probably tapered too soon after starting Kevzara, and your prednisone dose is...
When I started Actemra to treat GCA ... I never had any symptoms of GCA or PMR ... once I started treatment.
6 shots
Comment
@caroljeand -- I really appreciate your response to my inquiry. Your sense that my treatment should...
Your sense that my treatment should ... be addressing GCA/PMR is reassuring ... I'll keep pursuing treatments for ... perspective of fellow travelers on the GCA
Comment
Your experience was similar to mine, except it sounds like I had worse problems at the...
for about 7 months, and then PMR and GCA ... The GCA symptoms were low grade fever ... any symptoms or flares of the PMR or GCA ... I know that my PMR and GCA have been ... well controlled by basically the same treatment
Comment
@alonna I was Dx with PMR in 2020, been sick for a year prior to Dx....
Was Dx with asymptomatic GCA Vasculitis ... I have only had 7 of the weekly treatments
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