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Hi @pag1949, You will notice that we merged your discussion into an existing discussion on the...
-- How often does PMR progress to GCA ... discussion/how-often-does-pmr-progress-to-gca ... interesting. --- Disease stratification in GCA ... 00976-8 How are you doing with your GCA ... symptoms and treatment?
Posted: Nov 18, 2023
Comment
At the time, Actemra (tocilizumab) was FDA approved for GCA but not PMR. My rheumatologist wanted...
(tocilizumab) was FDA approved for GCA ... #39;t usually pay for experimental treatments ... Also, if the treatment causes harm to ... required to give justification if their treatment ... patients now have an FDA-approved treatment
Comment
@lashley7 I understand you not wanting to live with the possible side effects of steroids. But...
could mean your disease has moved to GCA ... GCA is an inflammation of the lining ... The same thing happens when you have GCA ... Headaches are dangerous with GCA. ... First, if you are not happy with the treatment
Comment
That’s understandable. Apologies for the delayed reply. I agree it’s frustrating treatment options are limited seemingly...
I agree it’s frustrating treatment options ... don’t have an established “go to” treatment ... there’s still the risk of developing GCA ... Forgoing treatment was absolutely not
Posted: Apr 17 12:33am